🧵🍎 PKD & Food | Apple with Peanut Butter During the summer, a simple and refreshing snack can be the perfect way to enjoy a light and nutritious break.

🧵❤️ Kidney health and heart health go hand in hand The UK Government has published its new Cardiovascular Disease Prevention Framework, recognising the close relationship between cardiovascular disease and chronic kidney disease.

🧵🧪 STOP-PKD study | Four additional trial sites activated The STOP-PKD study continues to expand its recruitment network across Europe, with four additional trial sites now initiated: three in Germany and a second centre in Austria.

🧵🩺 Protecting kidney health starts early Kidney disease is influenced by many interconnected factors, including diabetes, obesity, and cardiovascular health.

🧵🍓 PKD & Food | Red Berry Smoothie As summer arrives, a fresh and light breakfast can be a great way to start the day. This month, our PKD & Food series features the Red Berry Smoothie — a simple, colourful, and flavourful recipe, perfect for the warmer season.

🧵☀️ Summer & Kidney Health | 4 practical tips for staying safe in the heat Hot weather can make it more challenging to manage thirst and fluid balance, especially for people living with advanced kidney disease or undergoing dialysis.

🧵🌍 Towards more equitable and patient-centred ADPKD care across Europe PKD International was pleased to contribute to the recent high-level webinar on rare kidney diseases, organised by EKHA - European Kidney Health Alliance and ERKNet.

🧵 For the first time, PKD advocates from across the world are coming together in person.

🧵 For the first time, PKD advocates from across the world are coming together in person.

🧵 🧬 Supporting the next generation of PKD research Progress in PKD research depends on investing in innovative ideas and the scientists working to turn discoveries into better care for patients.

🧵🤝 PKD International congratulates Dr. Alessandra Boletta and her team on being awarded a European Research Council (ERC) Proof of Concept grant for the project “Targeting Glutamine (Q) Metabolism in the Renal Ciliopathies” (QrCiliopathies).

🧵 🧬 Patient perspectives matter in ADPKD research As research continues to evolve through Artificial Intelligence, data sharing, and Open Science, it is essential that the voices of people living with ADPKD remain at the centre of these developments.

🧵💙 Supporting kidney health at every stage of the journey Living with kidney disease means facing different challenges over time, and having access to the right information and support can make a meaningful difference.

🧵☀️ Summer & Kidney Health | 4 practical tips for hot days High temperatures can be particularly challenging for people living with advanced kidney disease or undergoing dialysis. As summer approaches, a few simple precautions can help improve comfort and wellbeing.

🧵💙 Behind every PKD diagnosis, there is a personal story. Living with PKD is about much more than managing a medical condition. It can mean facing uncertainty, navigating complex healthcare journeys, worrying about loved ones, and sometimes feeling alone.

🧵💧 PKD & Nutrition | When fluid needs change Hydration is often an important part of PKD management, but as kidney function declines, fluid needs may change.

🧵 Following the European Renal Association Congress 2026 in Glasgow, we would like to take a moment to thank everyone who visited the PKD International booth, shared their experiences and took the time to connect with us.

🧵 🧬 KDIGO 2025 ADPKD Guideline | Vascular manifestations 📄 Read the full article: academic.oup.com/ndt/advance-... #KDIGO2025 #ADPKD #PKDInternational

KDIGO 2025 Clinical Practice Guideline for ADPKD: a commentary on intracranial aneurysms and other vascular manifestations from the ERA Working Group Genes & Kidney

ABSTRACT. The 2025 KDIGO Clinical Practice Guideline for Autosomal Dominant Polycystic Kidney Disease (ADPKD) addresses intracranial aneurysms (ICAs) and o

academic.oup.com

🧵 🧪 STOP-PKD study | New recruitment sites Research on ADPKD continues to move forward: stop-pkd.de/en

🧵 Many PKD International members from around the world joined the Novartis ADPKD Advisory Board in Glasgow on 2 June to discuss patient needs, clinical trials, research access, and health equity.

🧵 🥑 PKD & Food | Avocado Toast A balanced diet can play an important role in the day-to-day management of Polycystic Kidney Disease (PKD). Through our nutrition series, we continue to share simple and flavourful recipes that support more informed food choices.

🧵 💙 ERA Congress 2026 | Glasgow & Virtual From June 3–6, 2026, Glasgow will host the 63rd ERA Congress, one of the leading international events in nephrology, research, and kidney health.

🧵 🧬 ADPKD research needs your voice The future of ADPKD research is evolving — and patient perspectives are essential to guide this change.

🧵 🧪 STOP-PKD study | Expanding recruitment across Europe: stop-pkd.de/en The STOP-PKD study continues to expand, marking an important step forward for ADPKD research in Europe.

PKD International was delighted to attend the @erknet.bsky.social Annual Meeting in Lyon, contributing the patient voice in 2 WGs and participating in valuable discussions on clinical trial readiness and collaboration for rare kidney diseases across Europe. #RareKidneyDiseases #ADPKD #ARPKD

ERKNet - European Reference Network for Rare Kidney Diseases@erknet.bsky.social · 3mo ago

𝐄𝐑𝐊𝐍𝐞𝐭 𝐀𝐧𝐧𝐮𝐚𝐥 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 2026 🇫🇷  Our 10th Annual Meeting concluded one week ago today. We could not be happier with the feedback, the results and the follow-up ideas and projects. Thank you so much to everyone that joined, we can't wait to see everyone again in 2027 in Heidelberg 💙

I usually think twice before posting preprints. But this time it’s different. MEDA-PKD is the essence of our work over more than a decade — and, to me, one of the most meaningful contributions I’ve been able to make to biomedical research. 🧵

🧵 💙 WCN 2026 | What it means for the PKD community: www.pkdinternational.org/news-and-eve...

🌍 A historic milestone for PKD in Mexico — and just the beginning of something bigger. 📅 On 29 April 2026, a legislative initiative was presented at the Chamber of Deputies to establish 4 September as National Polycystic Kidney Disease Awareness Day.

🌍 #PKDInternational connects experiences and knowledge worldwide, building a strong global community for people affected by PKD. 🤝 Your support strengthens international initiatives and amplifies patients’ voices. 💛 Donate here: www.pkdinternational.org/donate

Sometimes, the most difficult part of living with PKD is understanding how to manage it day by day. That’s why we are promoting the PKD Foundation of Canada’s campaign: “$10 for 10 months” — a simple yet meaningful way to support education, and research: conta.cc/4lPyWlv