ME has been misunderstood and underfunded for decades, but there's genuine reason for hope. We spoke with Sonya Chowdhury, CEO of @actionforme.bsky.social, about ME/CFS, the progress that is transforming research, diagnosis and care, and what still needs to be done. precisionlife.com/biology-matt...

ME/CFS: From Neglect to New Hope | Biology Matters

Watch Steve Gardner interview Action for ME CEO Sonya Chowdhury for the Biology Matters podcast on ME/CFS, long COVID, breakthroughs and reasons for hope.

precisionlife.com

I shared @precisionlife.bsky.social plans to launch a consumer 🧬wellness report at @investinmeresearch.bsky.social conference. People living with #LongCOVID and #MECFS interested in finding out more can sign up at this link precisionlife.com/mx-reports/p... Thank you to everyone who shared data.

#BiologyMatters episode 1 is now live on all major podcast directories. **LISTEN ON** Apple Podcasts: podcasts.apple.com/us/podcast/b... Spotify: open.spotify.com/show/033nwHQ... YouTube: www.youtube.com/watch?v=a33U...

Chronic diseases are one of the world's biggest challenges. Today we launch Biology Matters, a new podcast exploring how advances in science and technology could help us build a more predictive and preventative future and solve chronic disease. #BiologyMatters

Healthcare is changing. As chronic diseases place growing pressure on patients, healthcare systems, and society, new approaches are needed to improve how we predict, prevent, and personalize care. Better healthcare starts with better disease understanding. A new conversation begins June 17 🎙️

PrecisionLife CEO Steve Gardner will join fellow industry leaders at #TechBioX Cambridge on 18 June to launch the Health Data Vision 2035 report and discuss how HDRS can help drive innovation and improve patient outcomes across UK life sciences. Find out more at: www.bioindustry.org/events/our-e...

We're pleased to welcome Dr Pradip Banerjee as Independent Non-Executive Director and Dr Kam Pooni as Chief Product Officer. Two exceptional leaders who will help accelerate our mission to predict, treat, and prevent chronic diseases through precision medicine. #PrecisionMedicine #PrecisionLifers

Rowan Gardner (@rowanbio.bsky.social) will present new DecodeME analysis at #IIMEC18: 'Expanding Mechanistic Insights in ME - Analysis of DecodeME population and what’s next' New insights into ME/CFS and long COVID biology, patient stratification, and future research directions. #MECFS #LongCOVID

Steve Gardner will speak at #BRMEC15 on: 'GLP-1s for ME/CFS and long COVID: hope, hype and hidden dangers' Exploring the potential for GLP-1 therapies, how to predict patient response, and the use of precision medicine in these complex chronic diseases. #MECFS #LongCOVID #MillionsMissing

This #WorldMEDay we’re delighted to share that we will be supporting International ME Conference Week 2026 as a sponsor of the event and look forward to sharing new research on ME and long COVID through talks and presentations from the PrecisionLife team.

New data presented at #EEC2026 identified and validated novel reproducible genetic risk factors associated with endometriosis across UK & US patient cohorts. 🎥 Watch the presentation: precisionlife.com/womens-healt... 📜 Read the preprint: www.medrxiv.org/content/10.1... #WomensHealthMonth

Endometriosis Genetic Risk Factors Identified and Validated

Watch Krystyna Taylor present PrecisionLife’s validation of genetic risk factors for endometriosis using combinatorial analysis.

precisionlife.com

Delighted to see our partner @actionforme.bsky.social selected for a BBC Lifeline TV appeal this Sunday (26 April). Please watch and share to help raise awareness and vital funds for ME. #pwME #MECFS

Our second talk at #EEC2026 will focus on validating novel genetic risk factors for endometriosis. 25 Apr | 11:30 Krystyna Taylor presenting 1,700+ genetic signatures identified Up to 88% reproducibility across US/UK patient cohorts 75 novel genes identified previously missed by GWAS 🧬

Presenting new research at #EEC2026 Our talk on genomic signatures of female #infertility in #endometriosis & related conditions was selected for the best abstracts session. 24 Apr | 11:30 Krystyna Taylor presenting

PrecisionLife & Ovation are bringing precision medicine to GLP-1s - with new genetic markers predicting response and tests launching in 2026. This creates a significant opportunity to improve outcomes for patients, payors, providers, and pharma. Learn more here: precisionlife.com/news-and-eve...

PrecisionLife & Ovation identify the first genetic biomarkers to quantitatively predict GLP-1 treatment response. Results from 4,600 patients show how genetics can help predict efficacy and improve outcomes. Read more: precisionlife.com/first-geneti...

PrecisionLife and Ovation identify first genetic biomarkers to quantitatively predict GLP-1 efficacy response

PrecisionLife and Ovation identify genetic biomarkers to predict GLP-1 response and expand their partnership to develop precision prescribing tools.

precisionlife.com

Why is precision urgently needed for GLP-1 coverage? Demand is surging, costs remain high, and patient responses vary. Predictive biomarkers can help payors prioritize coverage where GLP-1s deliver the most value, while protecting affordability and access. #GLP1 #PrecisionMedicine #ValueBasedCare

Those lovely people @actionforme.bsky.social have shared the recording of the webinar covering presentation of @precisionlife.bsky.social LOCOME results. #MECFS #longcovid www.youtube.com/watch?v=ITZ3...

LOCOME webinar, December 2025

YouTube video by Action For ME

youtube.com

Action for ME@actionforme.bsky.social · 8mo ago

(4/4) 👉 Register here: us02web.zoom.us/webinar/regi...

WEBINAR TODAY: Our researchers are unpacking the new ME genetics study today - join the live webinar to hear the findings first-hand and get your questions answered. 📅 Today 🕑 2PM GMT 🔗 Register: us02web.zoom.us/webinar/regi... #pwME #MECFS #longCOVID #MissingMillions

Helen Baxter, Patient Advocate and PPI Representative: "These results greatly enhance our understanding of the biology of ME and present opportunities for drug repurposing which affords hope to the millions of people living with #ME and #longCOVID around the world." @precisionlife.bsky.social

The most detailed genetic analysis of myalgic encephalomyelitis ever conducted

Groundbreaking ME study identifies 250+ genes, links with long COVID, and uncovers new drug repurposing opportunities to advance targeted treatments

precisionlife.com

LOCOME Project: Major #ME and #LongCOVID Genetics Findings Announced. Today we are excited to share landmark new findings from the LOCOME project. www.medrxiv.org/content/10.6... @precisionlife.bsky.social

Identification of Novel Reproducible Combinatorial Genetic Risk Factors for Myalgic Encephalomyelitis in the DecodeME Patient Cohort and Commonalities with Long COVID

Background: Myalgic encephalomyelitis (also known as ME/CFS or simply ME) has severely impacted the lives of tens of millions of people globally, but the disease currently has no accurate diagnostic t...

medrxiv.org

Delighted how @precisionlife.bsky.social and @actionforme.bsky.social et al used consented @decodemestudy.bsky.social data to -replicate #MEcfs genetic signal & -show its shared/distinct genetics with Long Covid. Next: replicate ME/CFS subtypes w/ targeted therapies www.medrxiv.org/content/10.6...

Identification of Novel Reproducible Combinatorial Genetic Risk Factors for Myalgic Encephalomyelitis in the DecodeME Patient Cohort and Commonalities with Long COVID

Background: Myalgic encephalomyelitis (also known as ME/CFS or simply ME) has severely impacted the lives of tens of millions of people globally, but the disease currently has no accurate diagnostic t...

medrxiv.org

(1/4) 🧬 @precisionlife.bsky.social has released exciting results from the LOCOME project Using DecodeME and other datasets, LOCOME has identified a number of genetic signals and biological pathways that may be involved in ME.

New myalgic encephalomyelitis (ME, also known as ME/CFS) genetics study reveals 250+ core genes, shared mechanisms with long COVID, and dozens of drug repurposing opportunities. This would not have been possible without the thousands of people with ME who contributed their data. Thank you.

We’ve partnered with Ovation.io to identify biomarkers that predict which patients will respond safely and effectively to GLP-1 therapies. The goal: help payors and providers achieve the best, most cost-effective outcomes for patients using GLP-1. ➡️ www.precisionlife.com/glp1 for more.

PrecisionLife & Ovation partner to develop first precision medicine test to inform reimbursement of GLP-1 anti-obesity drugs

PrecisionLife and Ovation partner to develop real-world GLP-1 drug-response biomarkers to support value-based reimbursement and improve patient outcomes.

precisionlife.com

In a new article in Healthcare Leader, our CEO Steve Gardner explains how by understanding the biological mechanisms behind chronic conditions we can now predict and prevent complex diseases, improve diagnosis, treatment and patient outcomes. Read it here: precisionlife.com/healthcarele...

Why would anyone take on what is arguably the most complex of the complex, chronic diseases? That’s the question Cort Johnson, founder of leading patient advocacy site Health Rising, asks in his latest feature about our work in ME/CFS and Long COVID. ➡️ www.healthrising.org/blog/2025/10...

Yesterday at #TechBioUK - hosted by @bia-uk.bsky.social - our CEO Steve Gardner joined leaders from AstraZeneca, Healx and Recursion to explore the real-world impact of AI in drug development and healthcare – and what’s needed for it to reach its full potential. What do you think?

Our 2025 Big Survey is now open! 🎉 For more information, our FAQs, and to take part, head to our web page: www.actionforme.org.uk/research-campaigns/our-research-work/big-survey/ Thank you for supporting our research💙 🤝in collaboration with @durhamimh.bsky.social @kacheston.bsky.social

Thank you to Golda Arthur for inviting me to be on the Overlooked Pod. A curation of conversations about women's health from patients, clinicians and scientists. Highlighting @precisionlife.bsky.social's work in #endometriosis and #womenshealth check out the series overlookedpod.com/episode/a-ne...

A new way of looking at endometriosis, with Rowan Gardner | Overlooked: women's health can't wait

Even a basic definition of endometriosis tells us a lot about why we need to rethink how we’re dealing with this condition. Rowan Gardner is co-founder of...

overlookedpod.com