Supporting patient leadership for patient -led conferences: analysis and recommendations 🧪 bmjopen.bmj.com/content/16/6...

What are the characteristics and impacts of a patient-led conference? A qualitative study | BMJ Open bmjopen.bmj.com/content/16/6...

1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals. 💭Thoughts can be shared directly with our team by emailing: contact@pxphub.org

1/ We’re undertaking an informal scan of the current status of patient engagement across the globe. This will help us shape the next phase of PxP and determine new goals. 💭Thoughts can be shared directly with our team by emailing: contact@pxphub.org

🚂How do you get research to the people who can learn or use something from it? Get some ideas here: www.youtube.com/watch?v=gwde...

More than a paper: ways to share research

YouTube video by PxP For Patients, By Patients

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How are patients are changing the research system from within? www.youtube.com/watch?v=Wf5v...

Patients leading the way: research from within

YouTube video by PxP For Patients, By Patients

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🌎How are research teams engaging patients as partners in different parts of the world? ☑️Check out case studies from Brazil and Australia in this session recording from the #PxP25 conference in September: www.youtube.com/watch?v=LBW8...

At the cutting edge: innovations in patient engagement

YouTube video by PxP For Patients, By Patients

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Learn more about evidence-based advocacy and using justice-informed, trauma-informed approaches to patient engagement in health research. 🎥Check out this webinar recording from the #PxP25 conference: www.youtube.com/watch?v=-xoH...

Stronger together: building capacity on research teams

YouTube video by PxP For Patients, By Patients

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💭How do you navigate owning your lived experience as one aspect of your identity? www.youtube.com/watch?v=F39U...

Owning your lived experience: patient partner as part of your identity

YouTube video by PxP For Patients, By Patients

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At #PxP25, we hosted three unique sessions that weren’t recorded for our YouTube channel to create a safe space for open dialogue. Check out the anonymized illustrations from these sessions here, along with other artwork from this year’s conference: pxphub.org/pxp-2025-art...

PxP 2025 Artworks - PxP

PxP 2025 artworks created by visual alchemist Candace Ramjohn during the annual conference, including impactful quotes...

pxphub.org

How can you lay the groundwork for successful patient partnership? #PxP25 speakers shared practical strategies for building research teams where patient partners feel prepared and supported—no matter their experience or role. 🎥 Watch back: www.youtube.com/watch?v=EnJ6...

Laying the groundwork: setting up for success in patient partnership

YouTube video by PxP For Patients, By Patients

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Do you feel like an "accidental advocate"? During #PxP25, speakers and attendees spoke about how their personal health journeys led them to advocacy and research in ways they had never imagined. 🎥Check out this session recording to learn about pathways of patient partners: youtu.be/2Rht0OAVSR8

Journeys of impact: pathways of patient partners

YouTube video by PxP For Patients, By Patients

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What are some unique challenges and opportunities for patient engagement in research in different parts of the world? 👀Watch back this session from day 1 of #PxP25 youtu.be/xJwAKSoHGNs #PPI #PatientEngagement #ConsumerInvolvement

Global voices, local impact: Patient Engagement in research around the world

YouTube video by PxP For Patients, By Patients

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Looking for a case study on co-design? PxP Australia featured an insightful presentation by Joan Carlini and Letisha Living, facilitated by Janelle Bowden. Their #ConsumerInvolvement project used Lego! Intrigued? Watch the session back here: www.youtube.com/watch?si=UQV...

PxP Australia 2025

YouTube video by PxP For Patients, By Patients

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Having a great international chat with patients and researchers at #PxP25. Bold, daring, brave and powerful voices in health research

PxP (For Patients, By Patients)@pxphub.bsky.social · 11mo ago

At the cutting edge: innovations in patient engagement The first sessions of #PxP25 day 3 is underway! Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/ #PatientEngagement #ConsumerEngagement #ForPatientsByPatients

At the cutting edge: innovations in patient engagement The first sessions of #PxP25 day 3 is underway! Join us now, or consider coming to catch-up at a rewatch party 👉 pxphub.org/event/ #PatientEngagement #ConsumerEngagement #ForPatientsByPatients

Event - PxP

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

pxphub.org

I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....

‘There's just no flexibility’: How space and time impact mental health consumer research

Non-consumer researchers collaborating with consumer researchers can benefit from greater relevance of research and improved congruence between research processes and health policy. As with all resea...

doi.org

PxP (For Patients, By Patients)@pxphub.bsky.social · 11mo ago

“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25

💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.

For Patients, By Patients Day 2 - Discussing all things #PatientEngagement #PPI #PatientPartners and more is in session! If you want to join, it's free! Sign-up here ➡️ pxphub.org/event/ And if you missed day 1, head to the #Rewatch parties 🥳

Event - PxP

Save the dates! Our free, virtual conference will be September 12-14 (for those in Europe, Africa or North and South America), or 13-15 (Asia and Oceania).

pxphub.org

The #PxP25 re-watch parties will be starting in a little under an hour. There are three sessions - and the timings should work well for people in parts of Asia and Oceania, or people joining us after work in West Coast Americas. Looking forward to seeing some of you there!

What did you learn at #PxP25 today? Did particular words resonate with you? We would love to hear your reflections in the comments below ⬇️

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement

PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

#PxP25 starts tomorrow! A huge thank you to our incredible 2025 steering committee for their guidance at every step of the way. 💜💚💜 We are excited to learn from this amazing line-up of speakers! ✅Still time to register: bit.ly/PxP-2025

PxP (For Patients, By Patients)@pxphub.bsky.social · 11mo ago

🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake... #PxP25 #PatientEngagement #PPI #ConsumerInvolvement

PxP India is taking place on August 30th 7 pm IST. The session is geared towards those based in India, but open to people from across the globe with an interest in patient engagement (PPI) in health research. 👉More info and register: pxphub.org/event/pxp-in...

PxP India 2025 - PxP

We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.

pxphub.org

🤩We are so grateful to these incredible people who will be speaking during the virtual conference in September (9th-12th). Check out their speaker biographies here: pxphub.org/event/speake... #PxP25 #PatientEngagement #PPI #ConsumerInvolvement

🎥Recording is now available to watch PxP Africa if you missed joining us live, or want to watch the session back to reflect on all the valuable insights from our speakers: youtu.be/ol0bavw8psA #PxP25 #PatientEngagement #PPI

PxP Africa 2025

YouTube video by PxP For Patients, By Patients

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PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

📢We are very excited to announce that the speakers for PxP Africa will be Action Amos, Mbali Ngobese, and Rosebud Ombura. We are looking forward to connecting with everybody on August 13th! There is still time to register here: pxphub.org/event/pxp-af... #PxP25 #PxPAfrica