From community engagement to lived experience leadership: a systematic review of HIV services among men who have sex with men @aaronharoldp.bsky.social, Elizabeth Waldron, I Nyoman Sutarsa, Mary Lou Rasmussen, Brett Scholz @wingspan.bsky.social academic.oup.com/heapro/artic...

From community engagement to lived experience leadership: a systematic review of HIV services among men who have sex with men

Abstract. Community responses are essential to achieving the global goal of Ending AIDS by 2030, yet men who have sex with men (MSM) remain underrepresente

academic.oup.com

Hanson is just the tip of the oligarchs’ far-right iceberg theshot.net.au/uncategorize... #auspol #Australia #OneNation

Hanson is just the tip of the oligarchs’ far-right iceberg - The Shot

Pauline Hanson is a Sunny Boy.​​ A bright orange triangle of highly flavoured ice that delights immature palates. She is...

theshot.net.au

Feel free to check out this paper about #Aphantasia, @notcorry.sciguys.co.uk & @lukecutforth.bsky.social -- it uses a SciGuys transcript as part of the data. Hope you enjoy how meta that is -- SciGuys being used to produce scientific knowledge -- and thanks for giving us a lot to think about!

Brett Scholz@wingspan.bsky.social · 7mo ago

Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4) doi.org/10.58544/ims...

Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4) doi.org/10.58544/ims...

I always say 明後日 because I didn't know there was an English word for it. We need a word for 明明後日 though... not sure if overovermorrow or overmorrowmorrow would work best...

Gretchen McCulloch@gretchenmcculloch.com · 7mo ago

all the other germanic languages in my replies being like yeah we're still using this 😙🎶 english, we could bring overmorrow back, it used to exist and it could come back! en.wiktionary.org/wiki/overmor...

Pretty happy finishing up the working year by being recognised in a group email as a relentless voice for lived experience leadership. Honestly feeling like I can log-off for 2025 satisfied now.

Hi @notcorry.sciguys.co.uk 👋 I just had a paper published that includes extracts of the SciGuys episode transcript on aphantasia as data. I couldn't find a SciGuys contact but would love to send you a copy! Will be sharing the details on here too in due course.

The Eurovision vote didn't go the way I expected. Its kind of both incomprehensible but also semi-unsurprising. Honestly just devastating to know 2026 is going to be yet another year we can't enjoy celebrating music together.

Feeling a little worn out (but perhaps not surprised) that the glass ceiling in lived experience leadership we described almost a decade ago (across a range of orgs) is still going strong (as described here in service orgs)... Doi.org/10.1080/01612840.2017.1280106

Breaking through the Glass Ceiling: Consumers in Mental Health Organisations' Hierarchies

Contemporary mental health policies call for consumers to be engaged in all levels of mental health service planning, implementation, and delivery. Critical approaches to traditional healthcare hie...

doi.org

Mad in America@mad-in-america.bsky.social · 8mo ago

The “Clinical Ceiling” Blocking Lived Experience Leadership Lived experience workers describe a “clinical ceiling” that confines peer roles to the margins while hospitals and services preserve traditional chains of command By Kelli Grant www.madinamerica.com/2025/12/the-...

I'd seen the reporting around Keira Knightley's awful response but wow the video makes it... even worse??? It's so dismissive and callous and that horrible little laugh??? like what the hell?? And the smarmy, "I'm very sorry" in the least apologetic tone I've ever heard in my life. Jfc.

Lady Emily ☄️@ladyemily.nebula.tv · 10mo ago

The thing that gets me about actors responding like this whenever they’re asking about JKR is that they always say “we need to learn to agree to disagree ^_^” as if trans people are the ones leading the campaign, when we’re just trying to live our lives while JKR posts about trans hate 24/7

I just read a paper I wanted to cite in a grant application, only to get to the reference list and see that it cites what must be an AI hallucinated paper "written" by me. 🙃

I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....

‘There's just no flexibility’: How space and time impact mental health consumer research

Non-consumer researchers collaborating with consumer researchers can benefit from greater relevance of research and improved congruence between research processes and health policy. As with all resea...

doi.org

PxP (For Patients, By Patients)@pxphub.bsky.social · 11mo ago

“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25

The NHMRC is seeking feedback on its Draft Statement regarding Consumer and Community Involvement. In this article, I discuss how the Statement falls short in incorporating recent research and addressing current best practice for effective consumer participation: open.substack.com/pub/livedexp...

Making a timid statement

And how the NHMRC Statement on Consumer and Community Involvement could become more bold and live up to its values

open.substack.com

I spent my Sunday morning writing about how the NHMRC & CHF draft Statement on Consumer and Community Involvement in Health and Medical Research draws on outdated ideas that limit consumer involvement. I'll be posting it to the Lived Experience Leadership Substack tomorrow.

Lived Experience Leadership | Brett Scholz | Substack

A monthly reflection on the trends and developments in lived experience leadership across the health sector. Click to read Lived Experience Leadership, by Brett Scholz, a Substack publication. Launche...

livedexperienceleadership.substack.com

Check out the #pechakucha I presented at ISCHP2025 about the exponential increase in patient involvement (and how we're not really as participatory as we'd like to believe) livedexperienceleadership.substack.com/p/the-expone...

The exponential growth of patient involvement

Much ado and not doing much

livedexperienceleadership.substack.com

Nothing says US centric social media as when everyone assume pride month is in june. When thats just the case in the US. Sweden has pride month july/august and some countries have it in december. EVERY MONTH is pride month somewhere in the world.

Bridget Brennan asking the important questions of the treasurer about Labor's commitments to Indigenous communities...to a somewhat lacklustre answer. Australians showed they don't buy into the exclusion sold by conservatives. Let's hope Labor lean in to the mandate they have been handed #AusVotes

Hey Albo, how about fixing the universities now, eh? #auspol #ausvotes #binnight

In honour of the great work of Antony GREEN @antonygreenelec.bsky.social I made a matcha cheesecake to enjoy while sitting back watching #AusVotes outcomes.

Have a listen to this latest ISCHP podcast! I had great chat with Wendy Stainton-Rogers about where critical health psychology has been and where it might go next...

International Society of Critical Health Psychology@ischp.bsky.social · last yr.

Wendy Stainton-Rogers joins us to look back on receiving the ISCHP lifetime achievement award (2023), shares her plans for (more!) book-writing, reflects on q-methodology as a ‘boutique method’, and reminisces about memorable conference moments (including a story about the infamous water pistols!).

Jane is in Victoria and Chinese Victorians may consider making a public complaint to the Victorian Equal Opportunity and Human Rights Commission.

Osmond Chiu (赵明佑)@redrabbleroz.bsky.social · last yr.

Jane Hume made an extraordinarily defamatory & racist claim that “Chinese spies” are handing out for Labor #auspol #ausvotes

I loved having this chat with Gareth Treharne about all things ISCHP. Have a listen to get into the ISCHP spirit ahead of #ISCHP2025 in Galway in 3 months time!!

International Society of Critical Health Psychology@ischp.bsky.social · last yr.

The next episode of The Operative Word, with Gareth Treharne is out now! Gareth reflects on his research and teaching, experiences attending ISCHP conferences, and his term as ISCHP Chair. Listen below, or wherever you get your podcasts.

Just as Trump cuts billions from U.S. universities and drives leading academics out of the country, Dutton chooses yet another Trump card from the deck. Cash is spot on; Dutton will aim to deliver “exact same” as Trump

I really enjoyed this study. Perhaps not surprising, but good to get some data about how lived experience disclosures can show clients that their therapist is “human,” but this may come at the cost that they are no longer viewed as a “professional.

Marita Hennessy@maritahennessy.bsky.social · last yr.

Goldilocks Disclosures: A Qualitative Exploration of When Therapist Self-Disclosure of Lived Experience Is “Just Right” Alysia Robertson, Tegan Cruwys, Anika Quayle, Mark Stevens, Michael Platow, Brett Scholz (@wingspan.bsky.social) psycnet.apa.org/fulltext/202...

How bizarre that there is someone out there who thought men would need their own cakes...

This month, I reflect on the use of "lived experience leader" as an identity, and talk about how it's both positive (making #LivedExperienceLeadership visible) and concerning (in how it relates to central tenets of lived experience leadership) livedexperienceleadership.substack.com/publish/post...

Is ‘Lived Experience Leader’ an identity?

Or is lived experience leadership better understood as an action oriented practice?

livedexperienceleadership.substack.com

ABOUT ME: I post mostly about lived experience leadership in health policy, services, research and education. I don't work from a lived experience perspective myself, but write a lot of academic articles and substack posts about lived experience leadership. I also post about Eurovision and Matcha.

So disappointed in how bland the matcha #MeghanMarkle just made looks. It's barely green!

Gearing up for #ISCHP2025? Make sure you're subscribed to The Operative Word podcast and listen to the first episode of Season 2. We will be talking about where ISCHP has come from and where it might go...

International Society of Critical Health Psychology@ischp.bsky.social · last yr.

Kicking off Volume Two of The Operative Word podcast, Kerry Chamberlain discusses how the society came to be what it is today and what he sees as the challenges and future possibilities for qualitative research in health psychology. Listen below or subscribe wherever you get your podcasts 🎙️