Finding light in darkness along my stage IV cancer journey on The podcast includes a recurring segment, "movie quotes." podcasts.apple.com/us/podcast/d...
Seeking Boston Marathon
@seekingboston.bsky.social
Former marathoner & triathlete that raced w/ Liam. Disabled w/ Long Covid & stage IV cancer. Artist. Long Covid advocacy satire videos. Co-host of The Butterfly Pavilion Podcast. Love my wife, kids, family. https://linktr.ee/seekingbostonmarathon
We talk about "Finding light in darkness" on The Butterfly Pavilion Podcast. Although topics are often heavy dealing with long Covid and stage IV cancer, we try to lighten things up with a recurring segment, "movie quotes" podcasts.apple.com/us/podcast/d... @uchealth.bsky.social #cancer #podcast
Today I heard they want to mandate cancer patients on Medicare work. This is written by someone without stage IV cancer. No way I can work with cancer metastisized to bone.
They said they would never touch Medicare. Then they passed a bill that triggers hundreds of billions in automatic cuts. Seniors on fixed incomes are paying the price. #RepublicansCutHealthcare
Having cancer doesn't make me worthy of an award, but I do think my wife has been amazing in living w/ my chronic illness turned terminal cancer. It's only amplified our 💍 moments. RT. Keep voting as we've dropped to 3rd in our group. You can vote daily americasfavcouple.org/2026/the-god...
Vote for The Godwins as America's Favorite Couple!
One couple will share their love story in a Variety Magazine advertorial, take home $20,000, and enjoy a triple date with Jeff & Emilie Goldblum, plus Charlie Day & Mary Elizabeth Ellis.
americasfavcouple.org
We made it through Monday. Can I get a click and a share? Seeking Boston and Mrs SBM need your vote. We made it out of the first Rd. You can vote once a day. americasfavcouple.org/2026/the-god...
Vote for The Godwins as America's Favorite Couple!
One couple will share their love story in a Variety Magazine advertorial, take home $20,000, and enjoy a triple date with Jeff & Emilie Goldblum, plus Charlie Day & Mary Elizabeth Ellis.
americasfavcouple.org
It's my birthday today! I nominated my wife (and I) as my caregiver in my stage IV cancer journey. Moments and experiences are so much more poignant in our lives and marriage. I'd appreciate it. americasfavcouple.org/2026/the-god...
@joho.bsky.social Hey Dr J. I'm working on a post. On SBM, or your Susbstack do you have a good post or list of Covid-19 vaccine safety studies?
The legacy of MAHA/MAGA doctors.
Netherlands recruited 29 top scientist leaving U.S. under Trump
The fund the Netherlands established to recruit leading scientists mainly attracted American researchers leaving the United States under the Trump administration. Of the 34 top scientists recruited la...
nltimes.nl
The brain drain is real, my fellow USicans. Scientists are not indentured servants. They are allowed to go where they will be appreciated and compensated. They will take their most talented trainees with them. US science will be crippled for at least two generations.
There's no tougher job than to be a spouse of someone dealing w/ stage IV cancer. I entered my wife and I into a couples contest unbeknownst to her (she knows now) because of her love & devotion that's got us thus far in our journey. Can you kindly vote, share? americasfavcouple.org/2026/the-god...
#icymi Reel with my daughter and podcast partner during my cancer infusions. Immunotherapy clinical trial for my stage IV prostate cancer based on the movie Jojo Rabbit. #cancer #longcovid #podcast podcasts.apple.com/us/podcast/t...
Had an ER visit last night. They said symptoms from my cancer immunotherapy infusion would hit 3-5 days later. They did. Also said to go to ER if any of x symptoms happen. Serious dizziness and severe cognitive fog. All checked out okay. Not my ideal Sun night and missed #HOD
Did the rapture happen overnight? Fox & Friends is broadcasting from a completely empty Trump state fair on the National Mall
First full dose of cancer immunotherapy clinical trial infusion treatment. Daughter and co-host from our podcast joined me along w/ my wife for a very long 12 hr day. We have HOPE w/ the trial. Reel insp. from Jojo 🐰 podcasts.apple.com/us/podcast/t... @uchealth.bsky.social @cuanschutz.bsky.social
Grateful to have been asked alongside fearless #IAQ advocates, Ruth, Liesl and Lisa, to have a chat about the huge role the air we breathe indoors has on our kids’ lives & on those in the community. Sharing successes, failures, tips & tricks, we hope you’ll register! @onschoolsafety.bsky.social
Join WHN's Clean Air Panel Discussion 2: Safer Schools on June 29th from 11 AM to 1 PM ET to hear from a panel of experts working to improve air quality in educational settings. Learn why clean air in schools matters, what solutions are available today, and how we can create (...)
Great episode ladies. I'm behind you in supastah LC guests. Great Ep if you believe in decency, want an understanding of how the right infiltrated HHS & now literally taking over major outlets like @cbsnews.com brazenly @60minutes.bsky.social. Didn't know Walker was published political cartoonist!
The problem w accurate reporting, like that of @accountabilityji.bsky.social & @walkerbragman.bsky.social, is that sometimes you learn things that burst your bubble! Alas, we know it’s better to be aware & as @coopspeak.bsky.social jokingly says in this epi, maybe LIAM needs to be “taken” 😝:
A new chapter. Cancer treatment stopped working (listen to background in latest podcast.) Started a new Immunotherapy cancer clinical trial yesterday. h/t to amazing team at @uchealth.bsky.social @cucancercenter.bsky.social Finding light in darkness podcasts.apple.com/us/podcast/d...
go.bsky.app/UQRG3Hz Wednesday BlueCrewResisters 💙🌟 by @seekingboston.bsky.social 💙✌️🌟 Please Follow All💙💙 Thanks SB 🙏 🌺🌟💙 for including me 💙🌟👍✌️🦋
Here’s what’s happening. The House already passed H.J. Res. 140 a resolution that would wipe out the 20-year mining ban protecting the Boundary Waters watershed in Minnesota. 225,000 acres of Superior National Forest. 1,100 lakes. The most visited wilderness in the country.
Disney's new CEO, whose pay package is worth nearly $45M, just announced 1,000 layoffs. Reminder that Disney paid an effective federal income tax rate of ZERO in 2025 and aims to buy back $7B of its own stock in 2026. This is what corporate greed looks like.
Five days away from the greatest run race in the land. The 130th running of the Boston Marathon. I talk w/ my boys about my cancer. We talk Boston, my five races there including the '13 bombing tragedy on this month's Ep of the Butterfly Pavilion Podcast. podcasts.apple.com/us/podcast/r... #podcast
A 2026 Cell study shows a method to deliver healthy mitochondria into damaged cells, restoring mitochondrial function in disease models. www.cell.com/cell/fulltex... David Putrino says a first human study is planned x.com/PutrinoLab/s...
Transplantation of encapsulated mitochondria alleviates dysfunction in mitochondrial and Parkinson’s disease models
A mitochondrial transplantation approach rescues mitochondrial deficiency and prevents mitochondrial DNA depletion syndrome, Leigh syndrome, and Parkinson’s disease in cellular and mouse models.
cell.com
The last couple of days of Long Covid Awareness Month. Was fortunate to have Dr David Putrino on The Butterfly Pavilion Podcast. "The Long Covid Kaleidoscope" podcasts.apple.com/us/podcast/t... 👀 @mileswgriffis.bsky.social #LongCovid #LongCovidAwareness #podcast #cancer
RFK Jr being RFK Jr. HHS' U.S. Preventative Services Task Force hasn't met in a year. The task force makes recommendations on preventive health services like mammograms, diabetes, and a variety of cancer screenings. If I'd had a timely prostate cancer screening, I wouldn't have terminal cancer
ICYMI: Democratic senators have taken notice of RFK Jr.'s quiet undermining of the United States Preventive Services Task Force. "That’s not benign neglect, that’s malicious neglect," Senator Angus King, independent (caucuses with Dems) of Maine, told me.
Thanks to these new 🌊 followers. Kindly share and check out my stage IV cancer journey podcast podcasts.apple.com/us/podcast/t... @ggvotesblue.bsky.social @coloradofaux.bsky.social @griffin-richardson.bsky.social @jimmyc1126.bsky.social @nawforeal.bsky.social @dixrae.bsky.social
Thanks to these new 🌊 followers. Kindly share and check out my stage IV cancer journey podcast @shortcakesrevenge.bsky.social @giggle-angel.bsky.social @jerseyrules.bsky.social @rcbhudson.bsky.social @oldfashionednuts.bsky.social @cab428.bsky.social podcasts.apple.com/us/podcast/t...
Thanks to these new 🌊 followers. Kindly share and check out my stage IV cancer journey podcast. podcasts.apple.com/us/podcast/t... @keithdpatch.com @robinh2.bsky.social @bluehealrh.bsky.social @crabbyappleton517.bsky.social @diann66.bsky.social @antifakate.bsky.social
Somewhere in NYC, @joho.bsky.social was toasting the judge that infused rational thought into the decimation of RFK Jr's childhood vaccine schedule. We talked with Dr Howard about RFK Jr's politically motivated vaccine schedule on The Butterfly Pavilion Podcast. podcasts.apple.com/us/podcast/w...