Solve M.E.
@solveme.bsky.social
Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
ICYMI: Solve & Bateman Horne Center co-hosted a series on Severe ME. Webinar #1 focused on navigating health systems, role changes, daily care, caregiver mental health, & maintaining healthy relationships. https://ow.ly/5tWQ50ZwKRj #SevereME #MEAwarenessHour #SevereMEAwarenessMonth
Our friends at ME/CFS San Diego created these helpful heat intolerance tips for #MECFS & related conditions. Learn more: https://ow.ly/F6Hm50ZwK1f #MEAwarenessHour
ME/CFS San Diego - ME/CFS Heat Tips
Link to PDF 2026 Guide for Tips for Managing Heat Intolerance in ME/CFS Patients
ow.ly
Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in recognition of #SevereMEAwareness Month. Wed. Aug. 12 | @9:00 am PT / 12 pm ET. Register: https://ow.ly/j1AR50ZvWcK #UnitedForME
📢Check out our latest Research 1st Roundup! Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here: https://ow.ly/fYGq50ZuS5M
On Aug. 12 @ 9 am PT / 12 pm ET, Solve will join @openmedf.bsky.social, @meactnet.bsky.social, WIMEL writers, & hosting org @meactnet.bsky.social for a special "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Sign up: https://ow.ly/M6GU50Zo1qG #UnitedForME #MEAwarenessHour
We're thrilled to share the news of the latest Solve-funded study by Rob Wüst. People with ME/CFS and Long Covid are often told that their reduced exercise capacity and muscle abnormalities are the result of physical inactivity.
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest - Nature Communications
Low aerobic capacity in patients with long COVID and ME/CFS is often attributed to physical inactivity. The authors show that long COVID and ME/CFS patients have distinct skeletal muscle changes that ...
nature.com
1/ 🚨 Big news: @solveme.bsky.social has awarded @renegaderesearch.bsky.social a Catalyst Award to launch SIGNAL - a decentralized platform to test promising therapeutic devices for ME/CFS and Long COVID. Here's what it means for patients 🧵
📣 We’re looking for someone with ME/a carer to a PwME who would be interested to write a short piece (500 words) for our @thereforme.bsky.social blog about their experiences of/challenges with social care. Ideally looking for someone in Wales or NI - but can be flexible!
1/3 🚨 The comment period on OMB's proposed research grant rule has closed with nearly 500,000 comments, overwhelmingly opposed, in just 45 days. The public has spoken. Now it's Congress's turn. Take 2 min 👉solvecfs.quorum.us/campaign/166932
It's halfway through the year…what are you carrying? What could make it feel like less? Get your Caregiver Intensity Score. It takes two minutes and helps answer both. https://archangelscii.me/4wkc5CM
Solve CEO Emily Taylor recently joined Dr. Elena Borrelli for a conversation about ME/CFS and Long Covid on the podcast "Ask the Patient Advocate." Emily shares her journey as a caregiver and explains how patient voices are changing healthcare. Watch: https://ow.ly/Qfpi50ZrzeA
Our Science Spotlight summaries make complex scientific discoveries accessible to all. Read our coverage of the latest Solve-funded study on repurposing rapamycin for #MECFS by Simmaron's Dr. Avik Roy and Dr. Gunnar Gottschalk here: https://ow.ly/Bjyw50ZruhC #MEAwarenessHour
We’re excited to join the Comorbidity Corner at #GLC2026! 📅 July 24–26, 2026 📅 Dallas, TX + Virtual Use code GLC26CCM10 for 10% off registration and join us for three days of learning, connection, and community.* 📅 https://ow.ly/8TwR50ZrbUi *Code only valid for new registrations
Solve CSO Dr. Sadie Whittaker spoke to cenmag.bsky.social for the article "Access to Potential Long Covid Drugs Dwindles As Trials Falter," weighing in on why identifying subgroups is crucial for the future of #MECFS & #LongCovid research. Read the full story here: https://ow.ly/7qoW50ZqVMq
Save your spot at the global premiere of Unbound, a dance film created by twenty people living with #MECFS, #LongCovid, and other disabilities. July 29 at 6:30 PM ET REGISTER FOR FREE: https://ow.ly/OWOx50ZqUOK #UnboundFilm #DisabilityCulture #LongCovid #MECFS
📢Big news! Solve has selected @renegaderesearch.bsky.social for our ME/CFS Catalyst Award. We’ll fund their study “SIGNAL: A Decentralized Discovery Platform for Emerging Therapeutic Devices in ME/CFS and Long Covid.” 🧵
Sign up for the NINDS event, "From Mechanisms to Medicine: Rethinking the Discovery-to-Care Continuum in Multi-System Disorders," Sept. 23- 24, 2026. Topics include: chronic overlapping pain conditions, #IACCs, neuroimmune dysfunction, & more. Register: https://mregs.nih.gov/ninds/vf45-44z5606
On Aug. 12 @ 9 am PT / 12 pm ET, Solve will join @openmedf.bsky.social, @meactnet.bsky.social, WIMEL writers, & hosting org @meactnet.bsky.social for a special "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Sign up: https://ow.ly/M6GU50Zo1qG #UnitedForME
ICYMI: Watch our webinar “Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS,” with Dr. Gunnar Gottschalk, Dr. Avik Roy & Courtney Alexander from Simmaron Research https://youtu.be/oJnUW-B089I #MEAwarenessHour
Starting soon! Register for our free webinar, “Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS,” with the Simmaron Research team. Today, July 14, @ 3:00 pm PT / 6:00 pm ET. https://ow.ly/jsrZ50Zg3CA
If you were a participant in the Vyvgart trial, please email Mackenzie at coreresearch@mountsinai.org to get a free at-home lab kit. Mt. Sinai & Yale are testing against a newly discovered autoimmune biomarker, with the goal of initiating a new FCRN inhibitor trial by year-end!
🚨 DEADLINE TODAY: Proposed federal regulatory guidance would let political appointees override scientific peer review & terminate active research grants with no finding of wrongdoing. ME/CFS & Long COVID research is on the line. Submit a public comment before tonight 👇 https://ow.ly/rtlb50Zn4T9
Building on our 2026 Advocacy Week efforts, Solve, #MEAction Network, Bateman Horne Center, and a local constituent had a productive meeting with the Montana Board of Medical Examiners to discuss #MECFS medical education. Learn more: https://ow.ly/U3uz50ZlLNi #MEAwarenessHour #UnitedForME
Register today for our free webinar, “Repurposing Rapamycin: A Report On the First Biomarker-Driven Treatment Trial for ME/CFS,” with the Simmaron Research team. Tues. July 14, @ 3:00 pm PT / 6:00 pm ET. https://ow.ly/jsrZ50Zg3CA #MEAwarenessHour
Starting on Jan. 1, 2027, new Medicaid work requirements will significantly impact many Medicaid beneficiaries. The American Association of People w/ Disabilities will host a webinar on the new requirements on Tuesday, July 14th, 2 - 3:30 PM ET. To learn more, register: https://ow.ly/2LmN50Zlne1
Welcome! You are invited to join a webinar: Understanding Medicaid Work Requirements - Part 2. After registering, you will receive a confirmation email about joining the webinar.
Join the American Association of People with Disabilities (AAPD) for our second policy webinar on Medicaid work requirements. Starting on January 1, 2027, these requirements will significantly impact many Medicaid beneficiaries.
ow.ly
You don't have to name it to know it's a lot. Get your Caregiver Intensity Score from @ARCHANGELS.ME — quick, free, and built to point you to the things that can help. https://archangelscii.me/4wkc5CM
We filed our public comment this week on the federal regulatory guidance that will shape how research gets funded and managed. 1/5
📢A proposed federal rule could let the government cancel active #MECFS research mid-study when political priorities change. The public comment window closes July 13. Take action: https://ow.ly/J5EP50ZcpV0 How to submit a public comment: https://ow.ly/Oq6150ZcpUZ Please share! #MEAwarenessHour
Because of you, we met our $200,000 fundraising goal! Our research and advocacy programs are only possible with the support of our community. Thank you so much for your trust and partnership!
