Jon Adams

@soundcube.bsky.social

AuDHDy, Syni, NBi, Cats, Lego, Autistic Researcher: Trauma, Creativity & MentalH (lived experience) FRSA, Qualified geologist & Palaeontology/Stratigraphy, Artist & Illustrator, Sound-sci art, ND Advocate, ‘difficult’ over being lied 2 /gaslit/injustice

I'm glad to see this. It's what many of us have been arguing for a long time, but until now no one in government seemed ready to listen. Let's hope we will begin to see an education policy which works for children, and for the 21st Century. In The Times today.

Schooling ‘straitjacket’ has left a million behind, minister says

Lucy Powell, the education secretary, says ‘one-size-fits-all’ academic approach has led to children being branded a ‘failure’

And it’s infuriating that the view is to catch and accept more sickness and disability, rather than prevent. Over 409 million people were estimated to have long covid by the end of 2023, this is not a success story, it’s a Public health disaster and they need to own it!

🇨🇦Ian - #RLessThanOne@simpson-ian.bsky.social · 2w ago

"According to health officials and experts, it wouldn’t be surprising for a summer increase in COVID to begin now. Large numbers of people haven’t fallen ill with COVID for quite a while." The same health officials & experts making decisions on limiting access to vaccines. Because... immunity.

Long Covid encompasses all of this damage. The CDC published this prior to Trump and it’s sad because some degree of warning was coming through. Neither in the UK or the US do we have messaging on why we should be preventing airborne infections.

Bild

You’ve Waited a lifetime Told due to a crisis you need a DX to get help to begin to sort out the havoc it’s wrought on your life You wait and wait Get the DX & still in crisis then ask for that help to deal with the consequences You wait and wait And wait And it never comes #LateDX #AuDHD

Remember Streeting's review into whether young people are being overdiagnosed with ADHD, autism, and mental health issues? Well, the interim report is out, and there's a reason the media are silent on it (spoiler: it proves what a lot of us have been saying all along)

In others, notably ADHD and autism, rising diagnoses and referrals appear to exceed changes in underlying epidemiological prevalence and are likely to reflect a combination of:

improved recognition
changing help-seeking behaviour
institutional incentives
pressures within existing service pathways
Across both ADHD and autism, best currently available population-based estimates remain relatively stable, while administrative diagnoses, self-identification and recorded service demand have increased substantially. In autism, the evidence also points to particularly rapid growth in identified need within educational systems, including increasing identification among girls and among young people without learning disability.These patterns suggest that rising demand is not simply the result of increasing prevalence, but of several processes operating simultaneously, including:

real increases in distress in some groups
improved recognition of previously unmet need
changing expectations about support
systems that frequently rely on formal diagnosis as the primary route to assistance
Across the system, support is too often accessed through pathways that are slow, fragmented and heavily dependent on diagnostic categorisation. While diagnosis remains essential for some forms of clinical decision-making, the evidence suggests that current arrangements do not always provide the most effective or efficient way of identifying and responding to need. In particular, where access to support depends heavily on formal diagnosis, demand for diagnostic assessment can increase more rapidly than systems are able to respond, generating long waiting times, duplication of assessment and pressure on specialist services.

The next phase of the review will therefore focus on clarifying the relationship between distress, diagnosis and need, and on examining how systems might respond more effectively to these patterns. A central objective will be to identify opportunities for developing more coherent, evidence-informed care pathways that enable support to be provided earlier and more proportionately, while ensuring that specialist services are available in a timely and appropriate manner for those whose needs are most complex.