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Stuart Selby

@stuartselby.bsky.social

In my 50s, married to a wonderful husband, living in Toronto, Canada with incurable brain cancer. Pharma, Pun and Food geek. Brain Cancer Canada ambassador.

139 Posts94 Follower120 Folgt
Stuart Selby@stuartselby.bsky.social · 10mo ago

Not only did I find an amazing community in #BTSM (brain tumor social media), I was welcomed with open arms and remain energized even though our scheduled chats are done. Lets still use the hashtag to connect and share updates. Thank you to all who built our community.

Brain Tumor Social Media Chat@btsmchat.bsky.social · 10mo ago

We are incredibly grateful for the community we have created - it's time to say goodbye to our regularly scheduled chats. With ❤️, the #BTSM chats co-founder & organizer team @thelizarmy.bsky.social @sabine-nj.bsky.social @mcintose.bsky.social @shawncarey42.bsky.social @stuartselby.bsky.social

The Friends We Made Along the Way: Sunsetting Brain Tumor Social Media (#BTSM) Online Chats December 7, 2025 Dear Members of the #BTSM Community, It is with both gratitude and reflection that today we announce the decision to sunset the regular Brain Tumor Social Media (#BTSM) online chats. The #BTSM community was founded in May 2012 to foster support, provide education, and advocate for the brain tumor community, and has served as a vital online gathering place for patients, care partners, clinicians, researchers, and advocacy organizations. Through monthly live Twitter chats (and later other online formats), participants could share experiences, ask questions, and discuss topics related to diagnosis, treatment, research, quality of life, survivorship, and end of life. #BTSM has always been a grassroots initiative—created, moderated, and sustained by patients and care partners committed to connection and advocacy. Rationale for Sunsetting #BTSM Chat This decision was made after careful consideration of several key factors, and #BTSM advance care planning: • The social media landscape has changed significantly since #BTSM began, and patterns of engagement have evolved accordingly. • Many of our dedicated moderators and organizers are transitioning into new professional and personal roles, making it increasingly difficult to sustain the regular chat schedule. • The needs of the brain tumor community continue to evolve, and the traditional live-chat format no longer fully reflects the ways individuals connect and share information online. After much discussion, the organizer team determined that this is an appropriate moment to close this chapter of scheduled #BTSM chats, while honoring the extraordinary legacy of community and advocacy they represent. Gratitude to the #BTSM Community We extend our deepest appreciation to every person who participated in #BTSM chats over the years. Whether you shared your story, offered support, asked a question, or simply followe…
Stuart Selby@stuartselby.bsky.social · 12mo ago

Today is Brain Cancer Awareness Day. Every day, 9 Canadians are told they have brain cancer. We need dedicated research to give doctors better tools to save lives. I stand with Brain Cancer Canada to drive research, to give more time, hope, & one day, the promise of a cure.

Stuart Selby@stuartselby.bsky.social · last yr.

I'll catch up on tonight's chat a little later, when I'm back at my computer and better able to take in the conversations, so don't be surprised if I chime in with a reply or more thoughts tomorrow or later in the week! #btsm

Stuart Selby@stuartselby.bsky.social · last yr.

A4. I'm energized by people I meet along the way. Living with #braincancer is a really tough way to meet the most amazing people, but it's worth it! I'm only about a year into my proper advocacy path but I keep learning and growing along the way; my advice is to keep at it and grow as we go #BTSM

Stuart Selby@stuartselby.bsky.social · last yr.

A1 ctd. As I become more active in volunteering and learn more about Health Economics and Health Equity topics, I'm driven to keep doing and learning more. When we work together, we can make much-needed progress! We build hope when we come together as a community! #BTSM

Stuart Selby@stuartselby.bsky.social · last yr.

A1. I volunteer with Brain Cancer Canada (www.braincancercanada.ca) on the Scientific Advisory Cttee as we fuel research through grant funding, and I participate wherever I can with Canada's Drug Agency ( @cda-amc.bsky.social ) to stay connected with health care delivery in Canada. #BTSM

Brain Cancer Canada - Accelerate | Advocate | Transform

Dedicated to funding research and neurosurgical technologies for pediatric and adult primary brain cancers.

braincancercanada.ca

Dr.rer.pol. Sabine Schwab@sabine-nj.bsky.social · 2y ago

Mark your calendars for the last Sunday of the first quarter of 2025! I'm honored to be the host/moderator for the inaugural #btsm #skychat. Infos on topic, date, and time below ⬇️

Brain Tumor Social Media Chat@btsmchat.bsky.social · 2y ago

⚠️ The first ever #BTSM #skychat will take place on March 30, 2025, 4 pm PT / 7 pm ET. We sincerely hope the #bsky #braintumor community will continue to contribute to the more than a decade-long history of #btsm chats. #oncsky #ayacsm #academicsky #medsky #cansky #neurooncology #neurosurgery

Stuart Selby@stuartselby.bsky.social · 2y ago

My second #WorldCancerDay TikTok talks about getting access to new cancer drugs after a clinical trial, about getting financial support for new approved drugs, and how donating to fund cancer research can build a brighter future. #BTSM #BrainCancer That TikTok is at www.tiktok.com/@oligo_stu/v...

In my second #worldcancerday post, I talk about accessing new drugs after clinical trials and seeing financial support for costly therapy. #braincancer #hope

TikTok video by Stuart

tiktok.com

Stuart Selby@stuartselby.bsky.social · 2y ago

One more reminder, the Brain Tumor Social Media chat (BTSM Chat) is tonight, now less than six hours away 🤓🥳 It's over on Twitter / X today, so please join there if you still use X and are interested in joining the discussion. #BTSM

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Stuart Selby@stuartselby.bsky.social · 2y ago

As New Year 2025 approaches, I reflect on the importance of support networks. At www.tiktok.com/@oligo_stu/v..., I speak about support and a wonderful grassroots group in Brain Tumor Social Media Chat x.com/btsmchat. If you've not found them, take a look! #BTSM #BrainTumour #BrainCancer

As we prepare for the 2025 New Year, I reflect on support groups and talk about a great grassroots brain tumor social media chat, #BTSM #braintumor #braincancer

TikTok video by Stuart

tiktok.com