When someone asks about Long Covid….

As if Long Covid and ME/CFS aren’t heartbreaking already, to have relief ripped away. “Corporate realities do not align with needs of very sick people. We asked if patients could stay on the drug via a compassionate-use protocol. The gains didn’t stick around after he stopped the drug.”

Access to potential long COVID drugs dwindles as trials falter

Two sets of studies for COVID-driven conditions show the struggles of drug development

cen.acs.org

I’ve never heard of the glymphatic system but I’m sure Long Covid messed with mine too. “impaired glymphatic clearance in people with ME/CFS - the brain cannot efficiently flush out waste products in these individuals.” Hence the gummed up circuitry causing my brain to short out.

Babies now suffering neurological damage from airborne covid infections before they even have a chance of life. It’s inexcusable not to act at this point.

Dr David Joffe MB BS(Hons), PhD, FRACP@davidjoffe64.bsky.social · 2w ago

Because Cövid really isn't okay for kids... Specifically those yet to be borne www.nature.com/articles/s41...

My friend had to remind a ticket agent at the airport of the ADA when the stressed agent scoffed at me needing a wheelchair. My cane wasn’t enough of an indication. I usually travel wearing my “Dynamically Disabled by Long Covid” tshirt.

Tammy Duckworth@duckworth.senate.gov · 2w ago

36 years after the Americans with Disability Act was signed into law, our fight isn’t over. However long it takes, we’ll keep pushing until all 70 million Americans with disabilities have the dignity, independence and freedom they deserve.

“WHAT NEEDS TO CHANGE: Recognising Long Covid as a fluctuating disability Improving workplace flexibility Reforming benefits systems Supporting people to remain partially in work is more economically sustainable than forcing them out entirely.”

Long Covid and Work in the UK: Why Thousands Are Leaving the Workforce - Long Covid Journey

Britain faces an economic crisis due to Long Covid, with over two million affected individuals suffering debilitating symptoms. The rise in economic inactivity, currently at 2.8 million, highlights th...

longcovidjourney.com

“Long Covid is an autoimmune disease, and women are more prone to autoimmune diseases than men, including multiple sclerosis and rheumatoid arthritis,” Dr. Koralnik said.

Northwestern Medicine study finds women experience more severe neurological symptoms of long COVID than men

CHICAGO – July 21, 2026 – A new study from Northwestern Medicine shows that adult women experience more severe neurological symptoms of long COVID than adult men.While past studies have found that wom...

news.nm.org

🌈🌈 Hope looks like reasons for Long Covid ➡️ treatements for Long Covid

Ruth Ann Crystal@drruth.bsky.social · 3w ago

Long COVID shows structural damage to the Vagus Nerve. Gastric biopsies showed 50% lower nerve fiber density, especially cholinergic fibers ➡️ linked to worse HRV, higher NT-proBNP and D-dimer. Direct evidence of autonomic nerve injury. buff.ly/fa6h84w #MedSky #GIsky 😷 #publichealth

I hope people make the connection between the cyclosporiasis outbreak and our government’s approach to Covid (then and now.) If you adopt survival of the fittest as your public health ideal, prepare to face a lot of tests designed to hurt you. Sooner or later, you will no longer be the fittest.

We should have learned that you can’t manage a public health crisis by ignoring it. Politicizing science and weakening disease surveillance doesn’t make threats disappear, it only makes us less prepared to respond.

Flight delay calls for drastic measures. Any true Diet Coke drinker knows that I mean.

Exactly. People think of long Covid as a binary state - you either have it or you don't. But another way LC exists is by turning up the volume dial to various extents on pre-existing conditions

Long Covid is a thief. Running, teaching, live music, traveling. The list goes on… “Running is a form of mood regulation. It doesn’t matter how far or how fast you run. It’s part of how you’ve come to understand yourself.” “Losing running is a kind of grief and you are allowed to mourn it.”

When Lifelong Runners Are Forced to Quit

nytimes.com

From Griffin University “We found a significant TRPM3-calcium pathway dysfunction in ME/CFS, resulting in impaired calcium entry into mitochondria” Science is catching up to what my acupuncturist suspected years ago. I wrote about in my Long Covid memoir….In The Space Between (link in bio)

Jonathan Toews tried with all he had to comeback after Long Covid. So did I. He made it through one season. I’ve made it to ten hours/week. He earned 29 points, down from the high 50’s-low 60’s I am a math interventionist instead of an AP Calculus teacher Link to the book of my story in bio.

Tucson Writers Alliance book showcase purchases from yesterday. Writers supporting writers. Check out my Long Covid memoir - link in bio. @saralafontain.bsky.social #booksky

Amazing technology - how I would LOVE to see a Long Covid brain.

Danielle Beckman@daniellebeckman.bsky.social · 2mo ago

Not all brains age the same🧐🧠 Using whole-brain 3D imaging combined with spatial proteomics, @erturklab.bsky.social revealed multiple trajectories of cerebrovascular aging. A fascinating new study: biorxiv.org/content/10.6... I'm always excited to share great work from my colleagues! #Neuroscience

Hope looks like 🌈🌈 “At a certain point, I stopped waiting for that one medication to magically make all my symptoms disappear. Instead, I began to believe that I could have a good life even with this illness.” Long Covid has plagued many overachievers like myself and it’s a hard adjustment.

Work until you disappear: Long COVID ensnared me in an exploitative health system - The Sick Times

The disease emphasizes the racism and ableism of the public health sector in Germany. People with disabilities and chronic illnesses must be prioritized over profits.

thesicktimes.org

An accurate picture of Long Covid too….

Researchers Find Long Covid More Common Than Willingness To Say Long Covid

Hope looks like 🌈🌈🌈🌈

The two sides of being dynamically disabled by Long Covid.

All my Long Covid sufferers who’ve been gifted Celiac’s disease as a bonus know what this bear knows! (The TikTok video then pans to a pile of demolished trash)

Long Covid…… you can’t leave home without it. At least there is a nice view from my bed.

If you're an author and you see another author promoting their book, give 'em a boost.

Just the tip of the iceberg….. Long Covid has directly wrecked many lives already. How many more will be impacted once the billion $ crash happens? Thanks @seekingboston.bsky.social for the perfect image!

Thanks, Vonnegut. 💜

Even Fortune magazine couldn’t ignore numbers like these. For MANY of us, the median cost would probably be a better measure. I would love to see it published. I know my number is close to $50,000/year.

The quiet $8 billion crisis: long COVID costs keep rising as Washington looks away | Fortune

NIH grants canceled, the federal office shuttered, clinics closing — the government is turning its eyes elsewhere as 44 million suffer.

fortune.com

It’s a microcosm of the larger disability system. Those of us with invisible or dynamic disabilities know the “side eye” and the repercussions of the few that do legitimately scam the system. I wish people were honest. What’s not mentioned is the number of children impacted by Long Covid.

Parents Are Fuming About Other Peoples’ Kids Getting Extra Time on the SAT

Special accommodations for irritable bowel syndrome? Families are getting creative, and spending big, in pursuit of an edge.

wsj.com

“For many disabled and chronically ill patients, Long COVID did not reveal a new medical phenomenon. It revealed how selectively medicine has historically recognized suffering. And in many cases, the healthcare system lacked the humility to admit that uncertainty openly.”

Long COVID Changed Everything

What a mass disabling event revealed about medicine’s limits

blog.brittanijamesmd.com