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Susannah Fox

@susannahrfox.bsky.social

Author, REBEL HEALTH. Amateur sunflower farmer. There are people who would love to help you, if only they knew how to find you.

200 Posts347 Follower229 Folgt
Silly Goose Baker@bakedbyramal.bsky.social · 3mo ago

Everyone should read No More Tears by Gardiner Harris for insight into the decades long coverup of the asbestos in the talcum powder

A hand holding a book entitled “No More Tears” by Gardiner Harris
Ms Otobo@mskomeotobo.bsky.social · 3mo ago

'Johnson & Johnson said it would pay an estimated $5.5bn to resolve tens of thousands of lawsuits alleging its baby ⁠powder and other talc products caused ⁠ovarian cancer, in a landmark deal that could end a contentious, decade-long legal battle.' www.theguardian.com/business/202...

Susannah Fox@susannahrfox.bsky.social · 4mo ago

I admit I love a "gotcha" survey question. Gallup asked people if they had used an AI-enabled app or platform in the past week and fully 50% said no, they had not. In fact, 99% said they used at least one of 6 AI-enabled products in the past week.

Nearly all Americans use at least one AI-enabled product weekly. Bar chart showing the in the past seven days, only 1% of U.S. adults used zero, 2% used one, 5% used two, 9% used three, 20% used four, 31% used five, and 31% used all six AI-enable products listed (personal virtual assistant like Alexa or Siri; navigation apps; weather apps; social media, streaming services like Netflix, and online shopping apps or sites). Survey conducted by Telescope/Gallup Nov 26-Dec 4, 2024
Susannah Fox@susannahrfox.bsky.social · 7mo ago

The videocast of Rare Disease Day at NIH is now available. My pick: session on how AI can be leveraged in rare disease clinical care starts around 2:15 videocast.nih.gov/watch/8ada3c...

NIH VideoCast - Rare Disease Day at NIH 2026

There are more than 10,000 known rare diseases and only a few hundred have safe, effective treatments. In the United States, rare diseases affect millions of people. On February 27, 2026, NIH will hos...

videocast.nih.gov

Susannah Fox@susannahrfox.bsky.social · 8mo ago

Rare Disease Week is a chance for patients, advocates, scientists, clinicians, & policymakers to learn from each other about how to build solutions on the frontiers of medicine. Events happening this week...

SSRS@ssrsresearch.bsky.social · 12mo ago

From social media platforms to gaming communities, digital life surrounds adolescent boys. To better understand the impact of this digital lifestyle, Common Sense surveyed more than 1,000 U.S. boys ages 11–17 on the SSRS Opinion Panel. www.commonsensemedia.org/research/boy...

Boys in the Digital Wild: Online Culture, Identity, and Well-Being

From social media to gaming, apps, and more, adolescent boys spend hours each day online. Our new research reveals how this relates to their identities, relationships, and emotional well-being.

commonsensemedia.org

Bethany Brookshire@beebrookshire.bsky.social · 12mo ago

I have been traveling and today I present to you...the thing I saw in the Frankfurt airport. Is it efficient? Undeniably. Does it probably work better than the normal way? Oh certainly. Produce less of a mess? Probably? But the existence of Condiment Udders gives me a deep, aghast disquiet.

A hotdog and pretzel stand with large hanging bottles of mustard, ketchup, and mayonnaise. The bottoms contain squeeze tubes to dispense the condiments.
Susannah Fox@susannahrfox.bsky.social · 12mo ago

There's precedent for patients demanding - and winning - access to a drug that saved them in a clinical trial: Gleevec. I hope patients win here, too.

The Sick Times@thesicktimes.org · last yr.

A group of 53 people with #LongCOVID joined a clinical trial for Vyvgart. For many of them, the treatment changed everything. Then, without warning, Argenx canceled the trial. Most of them have now relapsed. They're calling on the NIH and HHS to study the drug: bit.ly/48l1Qp5

A photo Nicole Barrick, a woman in a pink KN95 mask, receives an infusion of Vyvgart. The text reads, "The Sick Times. Vyvgart brought us back to life, but the Long COVID trial was canceled. We are calling on the NIH and HHS to study the drug. By Clare Banaszewski, Nicole Barrick, Mike Bilik, Addie Davis, Mia Delli Gatti, Ellie Hayes, Roman White."