It’s the last day to complete Raquel Meseguer’s survey on Crip wisdom - I’ve just completed it and really enjoyed the question it took me about 10 minutes and you can answer in video, audio or text - complete it here: touretteshero.typeform.com/crip-proverbs Closes today!

A few days left to apply to be Touretteshero’s Senior Producer (Deadline 22/06) make glorious things happen across our creative, solidarity & research strands. If you care about Disability Culture & connecting people with ideas & each other apply now: www.touretteshero.com/2026/05/20/a...

A New Producer - Touretteshero

After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...

touretteshero.com

We’re really excited to share the first cohort of Knowledge Builders projects - an amazing range of interesting & important projects covering varied themes and experiences find out more in this guest blog by our Knowledge for Change manager Chloe www.touretteshero.com/2026/06/09/k...

Knowledge Builders The First Cohort - Touretteshero

When I joined the Touretteshero team in January 2025 as the Knowledge for Change Manager, I couldn’t wait to get stuck into planning for Knowledge for Change (aka KFC!) This radical research programme...

touretteshero.com

We’re looking for a new Senior Producer to join our small, disabled-led team 4 days a wk, could this be you or someone you know? The role involves making things happen across our creative, solidarity & research programmes, help us find someone great: www.touretteshero.com/2026/05/20/a...

A New Producer - Touretteshero

After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...

touretteshero.com

New online! We spoke to @touretteshero.bsky.social about the furore around the film "I Swear" and why the condition she lives with is so misunderstood

The truth about Tourette’s

Tourette’s activist Jess Thom on the furore around the film I Swear and why the condition she lives with is so misunderstood

newhumanist.org.uk

A week until the Touretteshero group for children & young people with tics, their siblings & families. Free, creative, playful, social for any family navigating tics, involuntary noise or movement (no diagnoses required) more info & booking here: www.touretteshero.com/2026/05/02/l...

London Calling – Community, Connection and Creativity  - Touretteshero

I was diagnosed with Tourettes when I was 25 and one of the first things my friends encouraged me to do was meet other people who had it too. I was a bit nervous to start with, but it was one of the b...

touretteshero.com

Could you be Touretteshero’s new producer? Or do you know someone who’d be great? We’re looking for a Senior Producer who can help make exciting things happen across our Creative, Solidarity & Research strands, find out more & spread the word: www.touretteshero.com/2026/05/20/a...

A New Producer - Touretteshero

After two brilliant years with the company, our Senior Producer Nisha is moving on to pursue some new ventures of her own. We’ve loved working with her on all sorts of different projects including Val...

touretteshero.com

Happy #Tourettes month, if you’re raising a child or young person with tics we’d love your family to join us on Saturday 30th May at an amazing adventure playground in Oval, London for a free day of friendship, food & freedom to tic. www.touretteshero.com/events/toure... #BookNow #ShareWidely

Touretteshero London Group  - Touretteshero

Touretteshero London group is for children and young people, aged 6 – 16, who have lived-experience of involuntary noise and movement, including tics, Tourettes, and associated conditions - no diagnos...

touretteshero.com

New London group for young people (6–16) with lived-experience of involuntary noise & movement, tics, Tourettes, & associated conditions -10-3pm, Kennington -30th May Family & siblings welcome. Please share #Tourettes #London @touretteshero.bsky.social www.touretteshero.com/2026/05/02/l...

London Calling – Community, Connection and Creativity  - Touretteshero

I was diagnosed with Tourettes when I was 25 and one of the first things my friends encouraged me to do was meet other people who had it too. I was a bit nervous to start with, but it was one of the b...

touretteshero.com

It's been a long time coming so I'm really excited to announce the first official Touretteshero London Group for young people with tics & their families: free, creative, playful Saturday 30th May 2026: www.touretteshero.com/events/toure... No diagnosis required, relaxed & wheelchair accessible

Touretteshero London Group  - Touretteshero

Touretteshero London group is for children and young people, aged 6 – 16, who have lived-experience of involuntary noise and movement, including tics, Tourettes, and associated conditions - no diagnos...

touretteshero.com

Just another bovine blog post: www.touretteshero.com/2026/04/06/i...

In Fact… A Cow - Touretteshero

I’ve just got back from a lovely holiday in Cornwall with my family. Where ever I go, my tics go with me, and for the last few months that’s included one about bovine intimacy, “I fucked a cow in a ho...

touretteshero.com

A month ago Touretteshero welcomed disabled & non-disabled children and adults to Whitechapel Gallery to play freely, joyfully and rebelliously check out our new video sharing this glorious celebration of play, creativity and imagination: youtu.be/ri03tkRZmRg?...

Rebel Play - Return of the Rebels February 2026

YouTube video by Touretteshero

youtu.be

New stories out now! One aim is to balance the negative headlines with some good stuff, so we look at how creativity can make a difference in people's lives. @georgejulian.bsky.social @maryohara1.bsky.social @touretteshero.bsky.social @oskabright.bsky.social communitylivingmagazine.com

Community Living

The campaigning magazine on equality, inclusion and living life: learning disabilities, care, health, welfare, housing, arts and more

communitylivingmagazine.com

I’m very excited to announce that the new Touretteshero website has landed. The old site saw us brilliantly through our first 15 years. The new site is a better reflection of the organisation we are now and will hopefully see us into the future: www.touretteshero.com/2026/04/01/a...

A New Era - Touretteshero

Fear not friends, this isn’t an elaborate April Fools hoax, it’s actually our brand new website! We’ve been working on it for the last couple of years - building a site is a long process – but we’re r...

touretteshero.com

*NEW* stories in April, including positive stories to balance the bad times. Articles with and by: @touretteshero.bsky.social @oskabright.bsky.social @maryohara1.bsky.social @georgejulian.bsky.social @sabasalman.com and many more. communitylivingmagazine.com

On Friday 27th March we’re holding an event at Graeae in East London (& online) to talk about our experiences of what’s happening with Access to Work & to help us all think about collective action & resistance. More info about the event here: www.touretteshero.com/2026/03/20/1...

1000 Cuts - How Do We Protect Our Access to Work?

This time next week we’re going to be hosting a Knowledge Exchange event at Graeae in East London (and online). It will start at 10.00am and finish at 1.00pm. Big changes are coming to Access to Wo...

touretteshero.com

An important guest post from Jamie Beddard reminding us of the battles that have gone before & sharing a powerful and moving piece of art reflecting on disabled people's right to take up space. Read the post, watch the film, share the message! www.touretteshero.com/safe/2026/03...

Take Up Space – Jamie Beddard

I’m currently going through the process of renewing my Access to Work support. This is particularly daunting because last year’s renewal went very badly and the vital support I need to do my job was c...

touretteshero.com

Access to Work says Jenny Sealey of Graeae Theatre can only have 10 hours a week BSL interpretation to cover her 47 work week. @touretteshero.bsky.social had a similar cut in support - her blog encouraging everyone affected to send evidence to the Public Accounts Committee: bsky.app/profile/tour...

The Canary@thecanaryuk.bsky.social · 6mo ago

Despite their bullshit efforts to "support" disabled people to work, the DWP cut the Access to Work support of a disabled theatre director By @rachelcdailey.bsky.social

Read my post on the fall out of last nights BAFTA's here. This is an opportunity to increase understanding of oppositional tics and acknowledge the complex realities and impacts of the condition: www.touretteshero.com/safe/2026/02...

BAFTA Fallout

I want to start this post with a significant caveat – attempting to talk about complex, emotive and highly charged issues within the constraints of the frenzied news cycle is difficult and unpredictab...

touretteshero.com

Resharing this on oppositional tics, the element of #Tourettes that involves saying or doing the opposite of what you should/would want to. A complex, distressing part of TS that’s hard to manage practically, emotionally & intellectually: www.touretteshero.com/2020/02/01/o...

Oppositional Me

This is a post I need to write but you might not need to read – I’m going to discuss some of the complicated, distressing parts of having Tourettes, and if reading it feels too much at any point pleas...

touretteshero.com

While tourettes is in the news can I recommend seeing @touretteshero.bsky.social perform whenever you get the chance. Saw her performance at glastonbury (biscuits!) in 2008? 2009? on a tiny stage and it was utterly fabulous. She's done great work since on and off stage since too.

I’ve just submitted my evidence for the Public Accounts Committee inquiry into #AccessToWork. It’s becoming increasingly clear that huge, devastating changes are planned & the future of many working disabled people & those they employ, hangs in the balance www.touretteshero.com/safe/2026/02...

Access To Work Inquiry – Submit Your Evidence Now

I’ve spent the last few days gathering evidence for the Public Accounts Committee inquiry into Access to Work. It’s becoming increasingly clear that huge, devastating changes are planned by the Govern...

touretteshero.com

As my shock at the death of my long-term creative collaborator & 1/3rd of the Tourettes Bipolar Alliance, Christopher ‘Captain Hotknives’ Smith starts turning into grief, now feels like the right moment to write in celebration of my favourite Captain: www.touretteshero.com/2026/02/10/f...

For the Love of Hotknives

Content Warning: Description of death I don’t know exactly where to start with this, so I’m going to get the devastating news out the way first. Then I can focus all my attention on paying tribute t...

touretteshero.com

Applications are open for our 3rd volume of The Department for Wonder & Play zine, the 2026 theme is: Shadows in the Light. A supportive, low pressure opportunity for disabled, neurodivergent or chronically ill 14-26 yr olds. More here: www.touretteshero.com/2026/02/09/t...

The Department for Wonder and Play – Shadows in the Light

Can you believe it’s been nearly three years since we launched our brilliant Zine, The Department for Wonder and Play? Now that we’ve got two volumes and two launch events under our collective belt, i...

touretteshero.com

We were here. Easily the highlight of the festival for us, the wonderful anarchic joy of @touretteshero.bsky.social & Captain Hotknives. Also saw him in beautiful freeflowing form in late 2019 on the cusp of the world changing forever. Well it's a different time now alright... rest in peace Captain.

(1/2) Tourettes Hero and Captain Hotknives - Glade Stage - Glastonbury Festival 2016

YouTube video by HyperboreanUK

youtube.com

Our new programme Knowledge Builders launches today. Supporting disabled thinkers to undertake their own research. You don’t have to have done research before. If you’re a disabled person over 16 with a question you'd like to explore this could be for you: www.touretteshero.com/2026/01/26/i...

Introducing Knowledge Builders – Our New Research Programme

Supporting disabled-led thinking has been an important part of Touretteshero from the beginning, and over the last few years our research programmes have grown under the care of our Director of Resear...

touretteshero.com

Disabled people are facing an existential threat as #AccessToWork seems to be being gutted from the inside. We know it’s being reformed but not what this will look like or the timeline. We need leaders to engage now or risk undoing decades of investment www.touretteshero.com/2026/01/19/a...

Access Anxiety

Often when I write these posts I’m doing it with a wide audience in mind, but this one is slightly different. While everyone’s welcome to read it, it’s particularly aimed at funding bodies, grant admi...

touretteshero.com

Save the date! 14th Feb, the day of love & if you love creative, disabled-led play then this is for you. Touretteshero’s Rebel Play is back & we’ve teamed up with @_TheWhitechapel & incredible new artists for Return Of The Rebels more info in the new year: www.whitechapelgallery.org/events/toure...

Touretteshero: Return of the Rebels - Whitechapel Gallery

Join Touretteshero for Return of the Rebels – a day of rebellious and inclusive fun for all ages. Expect multi-sensory play, creativity and connection, inviting you to explore what rebellious, inclusi...

whitechapelgallery.org

We'd like to highlight a podcast episode for Disability History Month from @disabilityarts.bsky.social featuring Cathy Waller and @touretteshero.bsky.social speaking about Access to Work. 

Content warning, this podcast contains strong language and references of a sexual nature. tinyurl.com/yj9tzup3

Interview - Podcast ep.73 Disability and… Access to Work

In this episode of Disability and... choreographer and artistic director of Cathy Waller Company, Cathy Waller chats with writer, artist and activist Jess Thom about her recent experience of claiming ...

tinyurl.com

Ten Years ago today Live From Television Centre was broadcast on BBC4 you can still watch the grand finale, orchestrated by my tics and made possible by many incredible people here: www.bbc.co.uk/programmes/p... #BringOnTheBiscuits #ILove

BBC Four - On Stage: Live from Television Centre, Broadcast from Biscuitland: The Finale

A surreal and comic musical finale featuring a choir, a brass band and dancing biscuits.

bbc.co.uk