Who is listening? Charity Saiwala, Peer Support worker for @georgehousetrust.bsky.social in Liverpool, shares how she supports communities and helps support people from different countries and ensure they are heard. @ukcab.bsky.social #BHIVABASHH26
UK-CAB
@ukcab.bsky.social
HIV treatment advocates network: Supporting advocates in the UK | Providing expert training on treatment | Ensuring PLWHIV represented at all levels of our care
Gatekeeping, accessibility and silencing in healthcare Bothwell Chikomba leads this important session from @ukcab.bsky.social. Are we really listening? Let’s understand the challenges to those who are seen as invisible. #BHIVABASHH26
If you are attending to #BHIVABASHH26 in Liverpool, come and visit us in the exhibition hall! @positivelyuk.bsky.social @angelinanamiba.bsky.social @haruntulunay.bsky.social @nat.org.uk @bhiva.bsky.social @bashhuk.bsky.social
This Trans Day of Visibility, and every day, we stand firmly by all trans people, living with or without #HIV. In a year that has demonstrated increasing hostility and transphobia, it has never been more vital to stand up for everybody's fundamental rights 🏳️⚧️
We offer solidarity with our trans followers this #TransgenderDayOfVisibility as we revisit last year’s Lancet #HIV article: #Transgender people accessing #hormones are more likely to stay #undetectable and less likely to become #HIVpositive. i-base.info/htb/50802 #GAHT #HIVsky #GUMsky #TDOV
Study of #4CMenB #vaccine in #Australia fails to protect gay men against #gonorrhoea: i-base.info/htb/53465 Will other study results be more positive or do we need a better vaccine? #CROI2026 #GUMsky #IDsky #STI #SexualHealth #gonorrhea #GonorrhoeaVaccine #LoveGUM #STIprevention #STIawareness
US #HIV activist @peterstaley.bsky.social opens #CROI2026, saying we must all be activists until the next US administration: i-base.info/htb/53352 He offers much-needed encouragement to look to the lessons of the past as we rebuild for the future. Watch his speech via our link. #SaveHIVfunding
New paper in @bmj.com shows GLP-1 receptor agonists can tackle #SubstanceUseDisorder: i-base.info/htb/53421 Could they also help to break #chemsex addiction? #HIVsky #GUMsky #HIV #PLWH #PWH #HIVpositive #GLP1s #GLP1ReceptorAgonists #Ozempic #Wegovy #Mounjaro #semaglutide #tirzepatide #addiction
youtu.be/WtovnFlFM54 Wheres Wes?@rthonwesstreeting.bsky.social #ACTUP outside NHS England fighting for treatment, fighting for lives! When Dr‘s have run out of options we gathered community to ask: Why is there a delay? @bhiva.bsky.social @ukcab.bsky.social @aidshealthcare.bsky.social
DELAY=DEATH #ACTUP Protest to Release Lenacapavir Now! @england.nhs.uk ‘Without access to unique life-saving treatment, a small number of people living with HIV may die unnecessarily’ @nat.org.uk @bhiva.bsky.social @actuplondon.bsky.social @ukcab.bsky.social @appghiv.bsky.social
Have you completed the Ask Us Europe survey? For the first time, it asks about neurodiversity-and we need more autistic/ADHD voices to understand how HIV treatment is being discussed across Europe. If you’re autistic and/or have ADHD and living with HIV, please take part. bit.ly/4m5ktRm
Neurodiversity & HIV: Your Experience Can Change Treatment | Ask Us Europe
YouTube video by Harun Tulunay
youtu.be
The HIV Action Plan has promise — but real progress needs action and accountability. Prisons, women, trans people + marginalised groups must not be left behind. You can read our public statement regarding to new HIV Action Plan below.
Recent claims linking autism to Tylenol or vaccines are not supported by science. We stand firmly against misinformation that fuels stigma, fear, and distrust in healthcare. Our community values evidence-based information, respect for lived experience, and the right to safe, informed care.
WHO@who.int · 11mo agoWHO statement on autism-related issues The World Health Organization (WHO) emphasizes that there is currently no conclusive scientific evidence confirming a possible link between #autism and use of acetaminophen (also known as paracetamol) during pregnancy Full statement bit.ly/47YsgwI
We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices. Visit the page & complete the survey below
Prof Chloe Orkin@profchloeorkin.bsky.social · last yr.Our latest study to understand the perspective of people living with HIV in Europe is now live! We created it together with an amazing steering group of community members from 17 countries. Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏
UK HIV care for #transgender and non-binary people: comment on #EHRC guidelines by 30th June. i-base.info/htb/51331 This is a really important opportunity to tell the EHRC why their guidance is unworkable. Find guidance from @transactualuk.bsky.social and others via our link to help you respond.
🚨 Gilead’s lenacapavir could be a game-changer for #HIV — but at $28K/year, it’s priced out of reach for most. Generics could cost <$50. We’re calling on Gilead to make it affordable for all, not just the privileged few. Please find UK-CAB public response below.
📢 #NHSEngland has updated the TAF prescribing policy – mainly to clarify eligibility & introduce a simple approval form (Blueteq). ✅ No changes to patient access. 📄 Clinicians just need to submit a tick-box form. More updates on ART prescription coming soon – we will keep you posted. #HIV
UK #lenacapavir Early Access Programme closed to new referrals as @england.nhs.uk and #Gilead fail to agree a price after more than two years: i-base.info/htb/50940 NHS England took responsibility for approving access to this life-saving drug – this delay and result is unacceptable. #HIVsky #MDR
🚨 The Lenacapavir Early Access Programme has closed to new patients. This life-saving #HIV treatment is now out of reach for those who need it most. We urge NHS England & Gilead to act now. Access to Lenacapavir must be restored. Urgently. Community organisations: speak up. Silence costs lives.
Thanks to @janeshep.bsky.social for producing this beautiful riso print to raise funds for HIV i-Base: i-base.info/htb/51064 It celebrates #TheDenverPrinciples, an essential #HIVactivist document that all people living with #HIV should know about. Purchase at the link to support us. #HIVsky
Our next UK-CAB members meeting will be on 20th of June 2025. You can visit UK-CAB forum for the details and registration form. We will announce the programme on the forum once it is ready. Looking forward to seeing many of our members in June!
UK-CAB deeply concerned about GSK/ViiV diversity policy implications globally, despite UK/EU assurances. Erosion anywhere sets a dangerous precedent. Our community is alarmed by US policy shifts & PEPFAR threats. Please read our statement below. #HIV #Diversity #GlobalHealth #UKCAB
New @abpi.bsky.social guidance risks excluding #HIV advocates from conferences — suggesting we’re too “impressionable” to hear about treatments. We reject this. People with HIV are informed, critical partners in progress. You can read our response below. #NothingAboutUsWithoutUs #HIVAdvocacy
The UK Community Advisory Board (UK-CAB) is now on BlueSky! Follow and share with your networks. #HIV #HIVAdvocacy #Advocate #HIVtreatment