We were trending on Twitter/X earlier! Thanks everyone for supporting the #WhereIsIt campaign! Some pics of the van below! #LongCovid
A 😎 Long Covid and MECFS Billboards (DM for free merch!)
@aaronca11.bsky.social
Billboard campaign/fundraiser here https://www.notrecovereduk.org
An incredible group of people I met today! Everyone was so nice and even though the public weren’t the most receptive to the leaflets (to be fair I think any leaflet campaign is tough) none of the volunteers complained! Hope to meet everyone again! ❤️❤️
Inclusive New Normal@inclusivenew.bsky.social · 2y ago@lcmebillboards.bsky.social Edinburgh leafletting action today, to raise awareness of the lives & livelihoods still being destroyed by Long Covid & ME/CFS, unforgivable lack of action by Government & failure to inform the public of continuing real risks to health. #LongCovidAwarenessDay2025
We handed out leaflets for @longcovidkids.bsky.social and a clean air petition as well as testimonials of those with #LongCovid too!
Thanks to our amazing @LongCovidSOS volunteer @sarahbarleymc.bsky.social as well as peerless #LongCovid advocates @aaronca11.bsky.social & Margaret O’Hara for sharing their stories and calling for change in this excellent article for #LongCovidAwarenessDay 👏 🩵🩶🖤
#LongCovid PLEASE SHARE @DeniseColliver (Twitter) will be holding up a banner and placards this Saturday for #LongCovidAwarenessDay and anyone who can go along and show support and solidarity would be appreciated! Details next post -
Final graphic of the four leaflet drops for #LongCovid awareness! Volunteers welcomed! EDINBURGG WARWICKSHIRE CHISWICK LONDON CENTRAL LONDON
VOLUNTEERS NEEDED IN CHISWICK AND KENILWORTH UK!!
Thank you @BFWoodburn for making this for us! If anyone wants to share this graphic across social media (if someone could post on Reddit it would be amazing) or if they want to print it out and leave in a doctors office, hospital waiting area, library etc then feel free!
LONDON VOLUNTEERS NEEDED Due to the demand for home delivered leaflets and the number of responses to our Edinburgh campaign we have decided to run another leaflet campaign in London!
A new phase II RCT for #LongCOVID / #PostCOVID in the US by the company BioVie with their drug Bezisterim. clinicaltrials.gov/study/NCT068... Bezisterim is currently also being studied in Alzheimer’s and Parkinson’s. This is what it says on BioVie’s website about their LC trial.
Excellent article encompassing individual stories, input from Dr Heightman @uclh with insights from their #LongCovid clinic & Stimulate-ICP research, @LaylaMoran speaking up for #pwLC & health workers, the lack of treatment & support, & #LongCovidKids www.theguardian.com/society/2025...
‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten
Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic neve...
theguardian.com
Paul Garner and his #LongCovid story being quoted for the 50th time in mainstream media. The same Paul Garner who attended a panel in October where the subject was researchers being ‘silenced’ by the media. www.theguardian.com/society/2025...
Long Covid SOS@longcovidsos.bsky.social · 2y agoToday we wrote to new minister Ashley Dalton MP, urging the government to “recognise the urgent need to prioritise the millions affected by Long Covid” as the condition continues to affect lives, add to the pressures on the NHS and impacts the economy. Longcovidsos.org/post/letter-to-ashley-dalton
The Lightning Process is back! ‘This study suggests that the lightning process is a promising and safe intervention for symptoms of long COVID’ journals.lww.com/jfmpc/fullte...
a kermit the frog is sitting on a ledge with his arms outstretched
Alt: kermit jumping from a building
media.tenor.com
Keep the photos/stories coming. #LongCovid #MECFS March 15th main leaflet distribution in London and Edinburgh. You can also order leaflets for free if you want to do your own handout in your local town/city. Let us know! More to come from @lcmebillboards.bsky.social regarding a Digivan too
The Ship Builders at Port Glasgow will be lighting up on March 15th for Long Covid Awareness Day too. Thank you @vickuk2000vicky on Twitter for this!
Hey guys, Could you please let me know if you would be happy to have your photo printed out on a basic A4 piece of paper with a short summary of your life with #LongCovid or #MECFS and a plea to the public to help? I can staple them to leaflets and hand them out next month.
Hey guys Is there anyone who would like to come along to a #LongCovid leaflet handout on March 15th at Waverly Station in Edinburgh? We can provide hundreds of leaflets and are trying to get merch to represent the LC charities while we’re there too.
Twitter Space with Dr Rae Duncan discussing all things #LongCovid NOW x.com/aaronca11/st...
A 😎 Long Covid + MECFS Billboards on X: "https://t.co/FYZSVelV6S" / X
https://t.co/FYZSVelV6S
x.com
📣 We’re coming together on #LongCovidAwareness Day to reflect on progress and shape what’s next. We’d love you to join us - in person or online! When: 15th March 2025, 2pm GMT Where: Lyric Theatre, Hammersmith, W6 0QL Sign up now! Link below ⬇️ #LongCovid
New #ThereForME blog out today highlighting some of the community campaigning work going on for #ME and #LongCovid - from #FundThePlan to Long Covid Awareness Day. Read more and learn how you can get involved 👇 www.thereforme.uk/p/campaign-u...
