New book on #delirium for families - coming out in August 2025. #newbook

Listen to our latest Mini Series with Dr Anne Finucane and Dr David Gillanders and you'll find out more about their brilliant resource - mygriefmyway.co.uk - listen here or wherever you get your pods. rossmcintosh.co.uk/links/

The Royal Society of Medicine have launched their medical student essay competition - palliative care section. 2000 words by 25th sept. Title: “Difficult patients" or a difficult system? Reimagining palliative care for people with serious mental illness. www5.shocklogic.com/scripts/jmev...

Sharing the results of this important study at #EAPC2025: Mapping the #PalliativeCare #Research workforce in the UK 🗺️ - thoughts? Led by @annefinucane.bsky.social -with wide collaboration including @simonnoahetkind.bsky.social & @flissmurtagh.bsky.social Funded by @mariecurieeolc.bsky.social

Great to see over 100 posters on the management of psychological symptoms & needs at #eapc2025. Check out our poster on research required in this area. And feel free to join our network to exchange ideas on research and practice in this space: www.mainexchange.org.uk

My Grief My Way: delighted to present a poster on our bereavement support resource at #eapc2025. Our website content is free to use by all, with further material coming soon! mygriefmyway.co.uk Funded by @mariecurieuk.bsky.social

Myth: Sedatives (like benzos) are mostly helpful in calming delirium. Fact: Sedatives often worsen delirium. Non-drug approaches (reorientation, hydration, mobility) are first-line treatments.

Grant writing workshop - Edinburgh 08.05.25. 👉 Networking & brainstorming ideas for future grant applications on mental wellbeing towards end-of-life. 👉Bursaries available for 2 early career researchers 👉Info: www.mainexchange.org.uk/news/grant-w... Funded by @mariecurieeolc.bsky.social

New paper: Caregiving burden, receipt of palliative care, and the use of bereavement support: secondary analysis of population-based data bmcpalliatcare.biomedcentral.com/articles/10.... Congratulations Maja!

My Grief My Way: All welcome to our webinar on the development of an acceptance based bereavement support website to enhance coping and quality of life after bereavement. 10.06.25. With @davidgillanders.bsky.social Register: www.mainexchange.org.uk/webinars/ Funded by @mariecurieeolc.bsky.social

Our meta review out now on psychosocial interventions in #dementia #palliative care - critical gaps in evidence on care co-ordination, transitions, and carer support www.sciencedirect.com/science/arti...

A meta-review and synthesis of the effectiveness of psychosocial interventions for people living with dementia nearing the end of life and their family carers

Dementia, is a leading cause of death internationally, affecting 55 million people. A palliative approach, emphasizing holistic and psychosocial care,…

sciencedirect.com

Want to engage more with someone who has memory loss or dementia, but don't know where to start? With OU Connect, I've created a short guide to Reminiscence Therapy, using objects to unlock memories & connections. Interactive & free printout here - publuu.com/flip-book/46...

Reminiscence Therapy

Read all about Reminiscence Therapy and download and/or our print our easy-to-use guide on how to do it.

publuu.com

🔔 RECRUITMENT ALERT 🔔 Very excited to be recruiting to THREE new posts (Lecturer, G6/7 and G4) in my team at King’s College London to set up and grow a new Impact Centre for Palliative and End of Life Care. See next tweets for details. Impact Centre: www.kcl.ac.uk/research/the... Pls share

Invitation: Our next Mental health and wellbeing in Advanced Illness Network (MAIN) webinar is on 1 April @ 1pm. Topic: Identification of psychological distress in palliative care. With @lgrahamwisener.bsky.social & Dr Niall Galligan. Register here: events.teams.microsoft.com/event/a35af4...

Microsoft Virtual Events Powered by Teams

Microsoft Virtual Events Powered by Teams

events.teams.microsoft.com

*New paper*: As in other settings, the term 'delirium' is rarely used. Targeted training alongside timely advice from specialist palliative care teams is recommended. Led by: Liz Arnold. With Juliet Spiller. Funded by @mariecurieeolc.bsky.social bmcpalliatcare.biomedcentral.com/articles/10....

What are the experiences and support needs of district nurses caring for terminally ill people with delirium at home? A qualitative study - BMC Palliative Care

Background Delirium is a serious neuropsychiatric syndrome, which is common amongst terminally ill people in the community. District nurses have a key role in supporting terminally ill people to remai...

bmcpalliatcare.biomedcentral.com

This paper is a helpful reminder of importance of consistent and scheduled #writing! I've recently started to write everyday but the paper offers tips how to make it more structured and effective🤩 Thanks @johnmacartney.bsky.social and Rachel Perry! #academicsky nilq.qub.ac.uk/index.php/ni...

Northern Ireland Legal Quarterly

The Northern Ireland Legal Quarterly is a legal research journal published quarterly by the School of Law at Queen's University Belfast.

nilq.qub.ac.uk

We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.

You can also now download and read our report, "'To Know Dying' Identifying research areas in palliative and end of life care for the social sciences and humanities" healthopenresearch.org/documents/7-1 @ericaborgstrom.bsky.social @brionyhudson.bsky.social @marigreenfield.bsky.social

John MacArtney@johnmacartney.bsky.social · last yr.

Join @ericaborgstrom.bsky.social and myself tomorrow afternoon (4:05pm) to hear about the important role social sciences and humanities have to play in the future of research into dying, palliative and end of life care. The conference is online and free 👇

Looking forward to the next MAIN webinar, TODAY at 12:30 with @paedpallcare.bsky.social & @victoriaefisher.bsky.social On the health and wellbeing of parents and children with life-limiting conditions. Still time to register here!: www.mainexchange.org.uk/webinars/upc...

Anne Finucane@annefinucane.bsky.social · 2y ago

If you interested in research on mental health and wellbeing for people impacted by advanced illness, please check out our MAIN website and resources. Free to join. All welcome. Next webinar is 17.01.25. Funded by @mariecurieuk.bsky.social www.mainexchange.org.uk

REALLY IMPORTANT SURVEY for all those in the UK researching dying and palliative care. The results will help shape research funding - so have your say, *especially* if you are have a social science or humanities background!

Anne Finucane@annefinucane.bsky.social · 2y ago

Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

Invitation - open until Sunday 12th: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25:

If you interested in research on mental health and wellbeing for people impacted by advanced illness, please check out our MAIN website and resources. Free to join. All welcome. Next webinar is 17.01.25. Funded by @mariecurieuk.bsky.social www.mainexchange.org.uk

Invitation: If you are a UK-based researcher, or clinician conducting palliative care research, please complete our brief survey to help funders understand what is needed to sustain and grow palliative care research in the UK. Now open until 12.1.25: app.onlinesurveys.jisc.ac.uk/s/edinburgh/...

Wrap the Tree in a bow 🌲 🎁 🧑‍🎄 I wrote #TheTreeThatBends to help people excel & feel well. Highlights include: 🌟 Developing a Flexible Mind by being Anchored, Willing & Empowered 🌟 Navigating our ‘Get’, ‘Threat’ & ‘Reset’ modes to reduce the risk of burnout. Order: amzn.eu/d/1AWTjM8 #booksky

Sharing our delirium resources for healthcare professionals caring for people approaching end-of-life. Includes advice on using the 4AT to identify delirium. youtu.be/e6PXbWvWCTI?...

Caring for someone with delirium – for healthcare professionals

YouTube video by Marie Curie

youtu.be

Care for spiritual distress (existential crisis) has been added to the Scottish Palliative Care Guidelines. tinyurl.com/y4k67ja5

Mark Hazelwood@palliativescot.bsky.social · 2y ago

Two new additions to the fantastic Scottish Palliative Care Guidelines. Mouthcare: tinyurl.com/5n6v38st Spiritual Distress: tinyurl.com/y4k67ja5

BLUESKY MEGA-THREAD Altmetric is thrilled and also LITERALLY RELIEVED to officially announce: We are now tracking research attention as it happens on Bluesky! We have been picking up posts on the site since late Oct. Our team is on Bluesky all day answering questions. Let's get into it!

Loving this new paper on complexity in medicine, using pediatrics as the worked example. Too many medical authors (and the MRC) run fast and loose with the terms 'complexity' and 'complex interventions'. They should read this paper. #medsky #academicsky #philsci 🧪 www.nature.com/articles/s41...

If things were simple, word would have gotten around. Can complexity science help us improve pediatric research? - Pediatric Research

Pediatric Research - If things were simple, word would have gotten around. Can complexity science help us improve pediatric research?

nature.com

Dear @rthonwesstreeting.bsky.social You said that part of the reason you couldn’t vote for the AD bill was the lack of adequate palliative care in the UK. You are the health secretary. Will you now pledge publicly & immediately to fix that? Or are dying people not enough of a priority?