At last an advert with a more realistic portrayal of cancer patients, thank you @breastcancernow.bsky.social Yes, we do feel awful, stressed, scared, anxious. Yes we might pretend we are okay, but we're not. #CanSky #OncoSky #MakeCancerLessShitty
Make Cancer Less Shitty
@cancersuckless.bsky.social
Advocate-led initiative highlighting the need to improve supportive care therapies, resources, and access. Powered by love and Napo Pharmaceuticals. #MakeCancerLessShitty
"Cancer is more than just the physical part, it is the emotional and mental part too." ~ @jj5145.bsky.social on his ambassador efforts to raise awareness on the realities of cancer treatment and cancer survivorship. #makecancerlessshitty #CanSky makecancerlessshitty.com vimeo.com/1077286057/5...
JJ Singleton: Why I Became an MCLS Ambassador
This is "JJ Singleton: Why I Became an MCLS Ambassador" by Peter Hodge on Vimeo, the home for high quality videos and the people who love them.
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Loved meeting patient advocates and sharing shirts at the @cancercaremascc.bsky.social annual meeting last month in Seattle! Excited to learn from others on ways we can collectively #MakeCancerLessShitty @gitteilc.bsky.social @tingtingzhang.bsky.social #MASCC25
THIS! Oral mucositis is often overlooked and definitely under-addressed. Education about WHAT it is and HOW to alleviate would definitely help to #MakeCancerLessShitty
Oral mucositis - Inflammation of the mouth & throat caused by a variety of cancer treatments (thanks, lenvatinib). It hurts to eat almost everything.
#MakeCancerLessShitty #Survivorship #ThanksCancer
After treatment ends: ✅ The fear can linger ✅ The exhaustion can return ✅ The “new normal” feels confusing ✅ The world assumes you’re fine Survivorship isn’t simple. We need more honest space for what comes after remission. #YouBeatCancerNowWhat #LifeAfterCancer #Survivorship #HealingJourney #cansky
👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social
Excited that our team will be presenting at #MASCC25 Let’s make supportive care smarter, stronger, and more human 🧬 💪 💚 @coffeemommy.bsky.social @jj5145.bsky.social @cancersuckless.bsky.social @cancercaremascc.bsky.social #OralMucositis #MakeCancerLessShitty #PatientVoice #SuppOnc #SurvOnc
We ♥️ meeting new people who are doing amazing things to #MakeCancerLessShitty & we met plenty of fabulous humans at #ONS25 last week! We shared stories, chatted about impacts of side effects & discussed the need to improve access to quality supportive care! Looking forward to #AACR25 & #ASCO25 too!
Sure I’m happy and thankful. But cancer causes you to lose trust in your body. It takes that away from you, and you spend so much time getting it back. #Cansky
Today is Oral Mucositis (OM) Awareness Day. OM is an often unseen but painful side effect of cancer treatment where large patches of sores appear all over the mouth & sometimes throat. Current #SuppOnc often fails to meet patient needs We need to #MakeCancerLessShitty #MoreThanASore #OMAD25 #CanSky
Cancer treatment effects continue to kick my arse 15 years later ☹️. #PelvicRadiationDisease #damncancer
Side effects and long-term effects of cancer treatment have long been minimized for those surviving cancer! The phrase "manageable & tolerable" is misleading. Just because a side effect doesn't land us in the hospital doesn't mean it's tolerable. #MakeCancerLessShitty #SurvOnc #SuppOnc #PallOnc
Cancer treatment effects continue to kick my arse 15 years later ☹️. #PelvicRadiationDisease #damncancer
THIS. There are the side effects that happen during treatment and then there are the side effects that "just keep on giving" 😑 We need to #MakeCancerLessShitty by improving the access to supportive care during treatment AND post-treatment survivorship support. #SuppOnc #SurvOnc #CanSky #OncSky
I’m on a new steroid to hopefully reduce swelling in my chest. Most people wouldn’t expect cancer/chemo side effects to still be kicking my ass nearly six months later, but they are. #cansky
In order to #MakeCancerLessShitty, we need to support cancer research, not slash it. #CanSky #OncSky
Managing 13 pills daily, plus as-needed meds, can be overwhelming. I number each bottle’s lid and mark as-needed ones with a ring for clarity! How do you manage your meds? Share your tips! 💊✨ #makecancerlessshitty #ChronicIllnessLife #PillBoxOrganization
Happy 4 Year Cancerversary to me! Cancer has taken a lot, but it’s also given me: 🏄 Surfing 🏔️ Hiking the Dolomites ⛵ Sailing in Santorini 🎤 Meeting Shania Twain (!!) Grateful for every moment. Let’s keep making cancer less shitty. 🤍 #MakeCancerLessShitty
@cancersuckless.bsky.social helps us acknowledge the reality of treatment an cancer care together we and others can help put a focus on mental health especially PTSD that comes with cancer and treatments and living with cancer so that nobody has to think living with PTSD from cancer is acceptable
Cancer treatments get approved on the basis of lengthening life but the QUALITY of that life is important. We need to #MakeCancerLessShitty with improved access to effective supportive care, personalized dosing, and affordable access to quality care. #CanSky #OncSky #OncoSky #hpm #SuppOnc
My tx was cancelled today and we are changing my tx schedule to every other week instead of 2 on 1 off. I am ok with this. My body doesn’t tolerate this chemo as well as the last. My QOL will be better. I will be able to enjoy more time spent with my 10 yo instead of gritting my teeth. #cansky
Oh my - we think this just needs to be shared, Tom Cancer anxiety, the gift that keeps on giving 😑#MakeCancerLessShitty
Just figured out my Fitbit thinks my anxiety attacks are cardio workouts 💪 🥴 #cansky
Lost 15lbs in a day—who needs a gym when you’ve got gut-wrenching constipation and a toilet marathon? 💩 Shoutout to my iron meds for the extra challenge! #toiletgains #keepinitreal #makecancerlessshitty
The slowing or stopping of cancer research will NOT #MakeCancerLessShitty for anyone 🤬 We've seen tremendous progress with treatment efficacy & we are eager to focus on improving access to supportive care - let's not go backwards #CanSky #OncSky #OncoSky #SuppOnc #PallOnc #hpm
As someone actively fighting #ovariancancer, I'm both horrified and terrified. This could literally seal my fate when chemo and Parp Inhibitors stop being effective, as they do often do for this #cancer. #cancersky #cansky #oncsky #medsky
#MakeCancerLessShitty "Life altering" for all and not just limited to an "event" for many. Sharing the true reality of impacts, including those that persist long after treatment highlights that, as we prolong life, we need more attention to the QUALITY of life! #CanSky #OncoSky
@thankscancer.bsky.social To all my fellow carcinomies: keep talking and keep sharing your experiences. Cancer is a life altering "event" that must never be silenced. Here's to 2025🥂 #Cansky #Oncsky