What do we mean when we talk about Bridging the Gap? In our new blog we explore what our latest reports recommendation's mean within the current end-of-life policy landscape. You can read this here:

What do we mean when we talk about Bridging the Gap?

The last two years have felt like a critical moment for end of life care, with a surge of public and political attention towards investing in meaningful improvements that better support people at the ...

compassionindying.org.uk

Last week we published our new report amplifying the voices of the people our services support. Hear Elizabeth talk about her husband Alan’s experience of care at the end of life and how planning ahead supported Alan to ensure his decisions were respected.

“The challenge for those of us working to improve end-of-life care is how we address the clear gap between people’s wishes, policy intent and practice.”

Yesterday we published our new report - it lays bare how too many people are still dying in ways they explicitly said they did not want. Hear Usha, our Director of Partnerships and Influencing, explain why we began this work. compassionindying.org.uk/resource/bri...

What we do with this information is of the utmost importance. If we truly want to honour informed choice and patient-led care, we need to improve our systems as soon as possible. The recommendations form a solid approach to do this. #NHS #EndOfLifeCare #InformedChoice #ImportantConversations

This report should be a wake-up call for everyone working to improve experiences at the end-of-life

Compassion in Dying@compassionindying.bsky.social · 3w ago

Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...

Incredibly proud to be associated with Compassion in Dying who have produced another excellent report, exploring issues being faced by those who want to plan their end of life care The insights from conversations with health care professionals hit hard & I think many will empathise

Compassion in Dying@compassionindying.bsky.social · 3w ago

Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...

Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...

Bridging the gap

How to ensure people’s decisions are respected at the end of life

compassionindying.org.uk

It’s the last day of dying matters week, this year’s theme is about conversations, we are resharing a guest blog from Jill who talks passionately about why we need to start planning ahead conversations early. #dyingmatters #dyingmattersawarenessweek

Why is it important to start advance care planning conversations early and before crisis?

A guest post from Jill which asks healthcare professionals to have advance care planning conversations much earlier, before a crisis hits.

compassionindying.org.uk

On #PowerofAttorneyDay, we reflect on what the people we support tell us about LPAs. Attorneys speak to us about: 👉not being recognised as decision maker 👉 not being included in best interests meetings 👉losing confidence to speak up for their loved one compassionindying.org.uk/blog-post/im...

The important but challenging role of a health attorney

Our services are here for everyone, including attorneys who need support in their role. We hear from lots of attorneys who need answers, and don’t know where to turn.

compassionindying.org.uk

In our latest blog Sarah White, our new Clinical Lead, explores the complex realities of dying, and shares why honest conversations about the limits of palliative care are so important if we are to ensure people can make informed choices about what matters to them most at the end of life.

Rethinking palliative care: finding honesty in difficult conversations

Sarah White, our new clinical lead with 25 years of nursing experience shares some personal reflections on her experience of working in palliative care – why it matters so deeply, and why honest conve...

compassionindying.org.uk

This month we have published new user-led information on assisted dying for our website. Here’s why (a thread) ⬇️ compassionindying.org.uk/blog-post/ne...

New user-led content on assisted dying

Our research showed that people need clarity on what an assisted death is, and if it is currently legal in the UK.

compassionindying.org.uk

🚨 We're Hiring! 🚨 We're excited to announce we're expanding our clinical team. We're looking for two dedicated and motivated nurses who'll help provide clear and practical support to people to help them make informed decisions about the end of their life.

Work for us

compassionindying.org.uk

As 2025 draws to a close, here at Compassion in Dying we’ve been reflecting on a significant year for personalisation and patient power in end-of-life care. Our latest blog explores some of the activities and moments we are proud of from the last 12 months.

A Year of Impact: reflecting on Compassion in Dying in 2025

As 2025 draws to a close, here at Compassion in Dying we’ve been reflecting on a significant year for personalisation and patient power in end-of-life care.

compassionindying.org.uk

Dying people’s voices must be at the centre of design and delivery. Our latest blog responds to the government’s prioritisation and commitment to improve Palliative and End of Life Care through a new Modern Service Framework. compassionindying.org.uk/blog-post/tu...

A turning point for end of life care?

Our response to the announcement of a Palliative and End of Life Care Modern Service Framework.

compassionindying.org.uk

It’s been almost two years since the HSJ published our piece highlighting how dying people are being failed by the NHS’s approach to sharing information. Unfortunately, from what we hear through the people we support, not much has changed.

Dying people are being failed by the NHS's approach to sharing information

Usha Grieve explains how in the realm of digital health data, the spotlight on the Federated Data Platform overshadows the sluggish progress in enhancing electronic end-of-life records, hindering meaningful patient-centric change and necessitating urgent action

hsj.co.uk

** New blog post - 90-year-old woman and her advance decision to refuse treatment openjusticecourtofprotection.org/2025/11/05/p...

P’s Advance Decision to Refuse Treatment is not valid, not applicable, and not a reflection of her past or present wishes

It seems to me that the judge was entitled to make the decision that P’s ADRT was invalid. That causes me concern because of what it means not just for P but for everyone else with ADRTs.  Do our A…

openjusticecourtofprotection.org

We're delighted to be at the @helplinesuk.bsky.social Annual Conference & Helpline Awards today. We're thrilled to be nominated for Helpline of the Year 2025 alongside AgeUK Nacoa UK Safeline UK Self Injury Support SWGfL.

At @compassionindying.bsky.social we decided to FOI NHS Trusts to see their advance decision / MCA policies. Here's our thinking about why that might help us diagnose some problems and help the people we support when they have trouble at hospitals.

Why (and how) we decided to submit an freedom of information request to NHS Trusts・Some thoughts

In May this year I went along to observe a hearing at the Court of Protection. It’s something we at Compassion in Dying do sometimes as the

zachmoss.co.uk

Thank you to the @nursingstandard.bsky.social for having me to write this piece. Happy to connect with any fellow nurses thinking about transitioning to work within the charity sector.

Compassion in Dying@compassionindying.bsky.social · 10mo ago

“We provide a human connection in a disconnected system” In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care. rcni.com/nursing-stan...

“We provide a human connection in a disconnected system” In this latest article from RCNi, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care. rcni.com/nursing-stan...

Helpline nursing: could you make the shift to a phone support role?

Helpline nursing may not involve direct patient care, but upholds the Nursing and Midwifery Council code by providing compassionate support, helping people navigate complex healthcare systems and clarifying confusing information about treatment options. A former NHS nurse and midwife who works as a helpline specialist nurse at the charity Compassion in Dying explains the difference between her former and new roles, and what nurses can expect in helpline roles, from crucial skills and the experience required to pay and work-life balance. She sees her role as ‘providing connection in a disconnected system’, helping people maintain dignity and control, even in a healthcare system under pressure. Includes practical tips for nurses who want to pursue a career in helpline nursing.

rcni.com

Last month @nationalvoices.bsky.social published a blog where we explored what information and support people need in order to understand assisted dying laws that are currently being considered across the British Isles. compassionindying.org.uk/blog-post/as...

Assisted dying: how do we meet people’s needs and why the third sector should lead the way

As assisted dying laws are being debated in Parliaments across the British Isles, we asked the people we support what information and support they need to understand the law and have conversations wit...

compassionindying.org.uk

Thanks @nationalvoices.bsky.social As assisted dying laws are being considered across the British Isles, our latest blog explores what information and support people need to understand the law and have conversations with healthcare professionals about assisted dying.

National Voices@nationalvoices.bsky.social · 12mo ago

🚀 New to the blog! Over 2300 people told @compassionindying.bsky.social what they need to make informed choices about assisted dying. Jemma Woodley shares their findings, and why the third sector must lead the way with clear information and supportive conversations. 👉 tinyurl.com/yhum8eyn

A very happy birthday to the Open Justice Project team 🎉🎉🎉 An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!

Open Justice Court of Protection Project@openjusticecop.bsky.social · last yr.

It's our birthday - 5 years old today! Who are we and what have we achieved in the last five years? And what's next? #openjustice #notsecretcourt openjusticecourtofprotection.org/2025/06/15/o...

These conversation will continue and we will be reaching out to all webinar attendees so we can capture their insight as we move forward with the idea of a public health campaign to help people make the end-of-life decisions that are right for them. Thanks for joining us today.

Mandy reflects on changes she has made to her clinical practice, informed by the experience of her mother's death. These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.

Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.

Q. What support do people in communicates need to make this work and is there a risk this process is an "anglophone" one?

Tom: Clinicians are often worried about bringing up the subject. So they need tools to support that conversation ; to ask questions and be ready to listen .

A key theme for theme from the questions: that people record their wishes do not always trust that they will prevail. What can we do to ensure they are?