We’re proud to share that last month we passed the AMRC Expert Review Audit. Meeting AMRC's six principles of expert review confirms that we use robust and rigorous research funding processes; helping us to fund the best research and improve lives for everyone with CF. ➡️ https://ow.ly/JEEX50Zwt38

Rob entered the raffle last year because his three-year-old granddaughter, Sienna, lives with cystic fibrosis. He wanted to help fund the research and support that’s transforming the lives of families like his. Buy your ticket today! ➡️ cysticfibrosis.org.uk/summerraffle #cysticfibrosis #cftrust

We have developed a new research funding partnership with Guts Charity UK to boost pancreatitis research that benefits people with #cysticfibrosis with #pancreatitis. ➡️ https://ow.ly/Bj9l50Zq4yn

We take a look at several clinical studies currently underway hoping to improve how we detect and treat infections – and how you could get involved. This includes the Precision P3 study – looking at new ways to test for lung infections without using sputum samples. ➡️ https://ow.ly/NvH950Znbsl

Last week concluded the last of our recent visits to the four Innovation Hubs that make up our CF Lung Health Network, co-funded by the Trust and LifeArc. Swipe for a recap of the four programmes and click the link to find out more. https://ow.ly/qPMi50Zl7B4 #cysticfibrosis

On today's episode of our podcast #CForYourself, we're talking all about managing finances and CF. Our host Lucy is joined by Rachel, who shares some practical ways to reduce household bills, top tips for budgeting, and what can help you navigate money-stress. ➡️ https://ow.ly/oquM50ZkAHa

We visited researchers from the Precision-CF team – part of our Translational Innovation Hub Network for CF Lung Health and Infection funded by the Trust and LifeArc. Visit our website to find out more. ➡️ https://ow.ly/L1nX50Zja84 #cysticfibrosis #cftrust #researchwednesday

Today, the Government announced that health assessments for disability and sickness benefits will be audio recorded as standard to improve transparency in the benefit system. Click the link to read the full statement. ➡️ https://ow.ly/xI1T50ZijSX #cysticfibrosis #DisabilityBenefits #cftrust #PIP

Today is #WorldMicrobiomeDay! We spoke to early career researchers Heritage and Lillie to find out more about the LUNG microbiome and why they’re studying it to improve treatments for CF lung infections. ➡️ https://ow.ly/nBox50ZhuyN #PrecisionCF LifeArc #cysticfibrosis #cftrust

We’re recruiting for a Head of Registry Operations. We're looking for someone to lead the operations of the UK CF Registry, driving the quality, integrity and impact of world-leading #cysticfibrosis data. 🗓️ Closes 11.59pm on Monday 20 July. ➡️ https://ow.ly/1iVx50YEQuo

At the beginning of June, around 2,000 people working in CF gathered at the European CF Conference to hear updates, exchange ideas and make new partnerships. Read our blog of some of our highlights from the meeting. ➡️ https://ow.ly/XMpZ50Zg9Vw #ResearchWednesday #cysticfibrosis #cftrust #ECFS

An new study linking UK CF Registry data with a cancer registry for the first time will help determine the best approaches to cancer screening, testing, and treatment for people with cystic fibrosis. ➡️ https://ow.ly/E7te50ZfNoz #cysticfibrosis #cftrust #CancerResearch #CancerScreening

Join us for the next CF LIVE about cystic fibrosis in South Asian communities, where Dr Maya Desai will explore “Is CF different in South Asian families?” 🗓️ Wednesday 15 July, 7.00 pm. https://ow.ly/NyfY50ZfycF #cysticfibrosis #cftrust #OurStoriesMatter #UnityinDiversity #SouthAsianHeritageMonth

We’re proud to be one of 89 charities awarded a share of NIHR's £37m investment, supporting 800+ early-career researchers. This will help our researchers at a crucial stage of their careers, empowering them to drive future breakthroughs that save and improve lives. ➡️ https://ow.ly/jH1350ZccCN

From supporting the CF researchers of the future, to funding research that can make a difference for everyone with CF, find out how we are making progress thanks to your donations. ➡️https://ow.ly/WpK350ZbPI5 #ResearchWednesday #CFtrust #cysticfibrosis

Trailfinder CF Hub members wearing yellow in support of the annual Cystic Fibrosis Trust annual event. @cysticfibrosis.org.uk @lifearc.bsky.social @alderheycharity.org

💛 HAPPY WEAR YELLOW DAY! 💛 Wear some yellow today and post with #CFweek, it would mean the world :) Our fundraiser - THANK YOU for your support! tilt.fyi/vJQhbflJpe www.cysticfibrosis.org.uk WONDER DRUG: A Comedy about Cystic Fibrosis: youtu.be/RtgnO2cvvFE?... @cysticfibrosis.org.uk 💛

Today is #CFWeek and the Whelan lab are in yellow for #WearYellowDay to raise awareness and funds for the life-limiting genetic condition Cystic Fibrosis (CF). CF is without a cure and dominates thousands of lives everyday. Explore @cysticfibrosis.org.uk's great resources to learn more 💛🧬

BIG shoutout to the @cysticfibrosis.org.uk for sending me some cool gear for #CFWeek!

We’re proud to see the NIHR invest £37m across 89 medical research charities, supporting more than 800 early-career researchers. This investment recognises the vital role charities play in igniting research careers, building capacity and sustaining the talent pipeline. Read more: bit.ly/4aft801

Enjoyed presenting a poster for my PhD project at #ECFS in Lisbon today! Will be around for the rest of today and tomorrow for any further discussions :) @pulse-cf.bsky.social @cysticfibrosis.org.uk @lifearc.bsky.social

🆕 | Co-deputy Head of @uofgsii.bsky.social Professor Robert Gray will share in £1.3m of investment from @cysticfibrosis.org.uk. His £800k DEFINE-CF project will use cutting-edge spatial mapping technology to better understand lung inflammation in cystic fibrosis and drive future treatment. 🧵 1/2

It’s a big week for CF researchers, doctors and CF teams around Europe this week, as the #ECFS conference is taking place! It’s a time to discuss the latest advances in CF research, meet colleagues to set up new studies together and ensure that we’re supporting everyone with CF across Europe.

Highly effective modulator therapies have transformed life for many people with CF. But they don't work for everyone. That’s why finding new treatments that work for everyone with cystic fibrosis is vital and remains one of our top research priorities. ➡️ https://ow.ly/L1o450Z67Se

In the latest episode of our CForYourself podcast, we're talking all about CF diabetes. Our host Lucy chats to Joseph about his experience of managing the condition day to day, and to Professor Vicky Salem about her research into a potential new way to treat CF diabetes. ➡️ https://ow.ly/yTBo50Z2Kc3

We’re announcing over £1.3 million investment in cutting edge research into CF. 📣 Three research awards have been made to scientists based at Glasgow, Leicester, and Bristol Universities, each addressing the research priorities of people with CF in different ways. ➡️ https://ow.ly/5p3o50Z2zBn

Cystic Fibrosis Trust invests over £1.3m towards achieving our research goals

Today we've announcing over £1.3 million investment in cutting edge research into cystic fibrosis.

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Last week, the Association of the British Pharmaceutical Industry (ABPI) published a new report about medicine shortages in the UK. The report explains why shortages happen, how supply chains can be made stronger, and how patients can be better protected #cysticfibrosis ➡️ https://ow.ly/1E0750Z0519

Tilly and Joseph, who both live with CF diabetes, spoke to Dr Ildem Akerman and Prof Victoria Salem about their Trust-funded research project investigating a novel type of treatment for CF diabetes. ➡️ https://www.cysticfibrosis.org.uk/news/putting-cf-diabetes-research-in-the-spotlight

Join us for a free webinar on 21 May to hear from Dr Robert Sandler, Jocelyn Choyce and Bill Morgan, about key recommendations for CF care from Robert’s PhD research, and tips on how to implement these in practice. Find out more and register ➡️ https://ow.ly/26oA50YRbry

Last week, the biggest changes to how clinical studies are regulated in more than 20 years came into effect. The new regulations are designed to make study set-up quicker and ensure people’s lived experience plays a bigger role in shaping research. (continued 1/4) #cysticfibrosis #cftrust