Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)

D4I TDR

The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

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You can find the documents D4I created to facilitate decisions of data governance, guide the build of the data portal, and templates for Tribal Nations/communities to use in data management on our website d4itdr.org/resources (1/2)

The D4I TDR has curated list of resources for those interested in Indigenous Data Sovereignty and the intersections with the many areas of public health. Visit our new resource database d4itdr.org/seeds/ #IndigenousDataSovereignty #ResourceDatabase #Indigenous #publichealth #IDsov #datagarden

As part of the D4I's mission to educate the community about data governance, we thought it would be an excellent opportunity to offer a glimpse into the work we've done for the Tribal Data Repository. (1/2)

D4I Mini-Interviews - A glimpse into the work with Dana Howard

YouTube video by D4I TDR

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We're excited to release the presentation our team gave at the AISES conference on our Tribal Data Repository Work in MN! This technical work was brought to life through a garden analogy where it helped attendees connect deeply w/ the principles & work of Indigenous Data Sovereignty (IDSov)! (1/2)

D4I Presents the Tribal Data Repository at AISES 2025

YouTube video by D4I TDR

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A garden flourishes when maintained by caring gardeners who monitor the plants throughout the entire lifecycle. Our gardeners are the D4I team, being data stewards who monitor the data throughout its lifecycle. #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden

Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...

Happy Halloween from D4I! What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.

Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!

Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM

Another classic from D4I!

Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty

Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty

Any bioethicists at #ASHG This year? I’m a newbie to the conference! come to our D4I session and lets connect.

@d4itdr.bsky.social · 10mo ago

Check out our D4I session tomorrow at ASHG! #DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025

Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!

Check out our D4I session tomorrow at ASHG! #DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025

Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC www.nature.com/articles/s41...

Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov

A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics

We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...

nature.com

For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!

Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)

A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics

We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...

nature.com

Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A conference.aises.org/agenda #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES

Them: You look so happy! Us: Thanks! We're upholding Indigenous Data Sovereignty! #DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

Ever wonder what IDSov and related topics could look like as a music album?

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci... @d4itdr.bsky.social

Professor creates 'a safe harbor' for Indigenous data | ASU News

Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

news.asu.edu

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org #DataSovereignty #Indigenous #IDSov #Tribal #Data

What is a Common Data Element (CDE)? And why do we care about them? CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)