It’s tuesday of the nobel week, so you know what that means: praying Murakami doesn’t get it 🤞🏻

Does anyone know an ME-competent doctor in the Brussels area? Asking for a friend, happy to dm if that’s better

Does anyone know an ME-competent doctor in the Brussels area? Asking for a friend, happy to dm if that’s better

watching football has taught me that it’s not just left/right that I don’t know, but also high/low when it’s relativised to a team. i’m an absolutist

Hey everyone. I have updated my starter pack of community leaders, advocates, researchers, clinicians, patients and carers from our #LongCOVID and #MyalgicEncephalomyelitis community. Please check it out and feel free to share. go.bsky.app/6R7bqc7

Cam’s first words to me this morning: “there are so many people out there who think you can walk to the bathroom when you tell them you can’t stand up”

Mechanisms of sudden cardiac arrest in children during the #COVID19 era. Pediatric #LongCOVID patients having cardiac arrest 😔 Why?

Very concerned about this happening in the chronic illness community. So many formerly left-leaning people steeping in Elon’s algorithm and now can’t stop talking about how much they hate the left.

Erin Reed@erininthemorning.com · 2w ago

The worst part about twitter is there are a number of people who think they have to be active there who are left-leaning but have had their brains absolutely cooked by the site. You can't inundate yourself in exposure to that stuff without it having an impact on you.

Joe Gallagher and Arianna Introna look at recent British state policy as targeted social murder, contextualising its eugenic function and clarifying the horizons of working-class resistance to this rising tide. prometheus-mag.com/2026/09/03/h...

What interests me here is not to rehearse this well-trodden ground on how the misogynistic construct of hysteria harms those it directly targets, namely bourgeois white women. Instead, I want to look at how it harms those it does not seem, on the epistemologyoftheclinic.blogspot.com/2024/10/a-bo...

A Bourgeois White Woman’s Disease

The person with myalgic encephalomyelitis (ME) is a woman. She is frail, weak, confused, and impressionable, and at the same time, she is un...

epistemologyoftheclinic.blogspot.com

People who don’t include disability liberation in their understanding of social justice will never make sense to me. Like what do you MEAN you oppose sexism, racism, and classism, but the minute the lived reality of that oppression starts showing up physically, all your energy just evaporates?

A Comment article in Nature Medicine argues that clinical research should recruit participants from LGBTQIA+ populations, which requires specific actions and policies to create affirming and welcoming environments. https://go.nature.com/3WILuQi 🧪

this is the logic of everyone supporting the assisted suicide / euthanasia bill: healthcare, social care and hospice care are indeed all abjectly bad—so let's force people who need them to die instead of improving care because £££

Daily Express@express.co.uk · 2y ago

Today's front page 👇 www.express.co.uk/news/uk/2...

First speaker of this session: Dr Paula Muhr on 'it's all in your head'. LC is not FND but often comflated with it. Fnd is still associated what Freud used to call 'hysteria' and all the stuff re: secondary gain also comes from Freud. So, fnd isn't in people's heads, and neither is LC.

Here's a thread of my coverage of the post viral ethics workshop hosted and organized by @vmatthiesboon.bsky.social at the Radboud.

What contributes to our invisibility? 1) the unwillingness to register. From 2020/3 there were signals about lc. It took the dutch government 1,5 years to mention it. (long sars1 was known from 2003). But they refused registration. No facts, no meaningful discussion, no numbers to make us visible.

Remember: ‘liking’ a post has no effect on its visibility here (unlike on Twitter). To help good or informative posts get seen by other people, you have you repost them. This feels like a big part of why it can often feel so quite here.

For our Colors of Long COVID series, supported by the Disability Visibility Project, Jenna Laila Bitar writes about being a Palestinian American with #LongCOVID during Israel’s horrific, ongoing genocide in Gaza. bit.ly/3CdQiWU

We can’t afford to put all our eggs in one basket re the causes of Long COVID. We need to investigate every evidence-backed hypothesis because nothing would be worse than pursuing just one (even if it’s the most plausible) and finding out decades down the line it was wrong

Since my episode with the wonderful @longcovidanswer has been released highlighting viral persistence as a major driver of some #LongCOVID pathology, I’ve been asked repeatedly, “what should we do about it?” - totally fair question. Here is my proposed roadmap: 1/

Apparently, yet another well-respected figure of Long COVID research has said that we should move past the use of questionnaires and start doing trials using only biomarkers, so here is yet another thread on why that’s confused and harmful to sick people. Buckle up!

Understanding the similarities and differences between HIV/AIDS and SARS-CoV-2, COVID-19, and Long COVID is vital for informed advocacy. bit.ly/429D9J8

This studied how many people went on to develop ME after COVID. 4.5% developed full-blown ME, incl. moderate to complete interference with ability to walk, climb stairs, carry groceries, or move a chair. 39.5% developed an ME-like illness. A thread on these alarming findings

These teenagers and young men — 95% of whom are Black, Latinx, or Filipino — earn between $2.20 and $4 per hour, plus an additional $1 an hour when they’re actively fighting fires, according to the DJJ. ⤵️

In California, Incarcerated Teenagers Help Fight Wildfires

"You’re put in danger every time you’re on the fire line.”

teenvogue.com

I hate being called a “patient” by anyone other than my doctor. I am his patient, yes, but no one else’s and not the vast majority of the time (that is part of the problem). I do not belong to the medical system and hate being described in relation to it. I am a person with Long COVID & ME

Liposomal glutathione helps with the poisoned feeling, and helps me gain some movement in my arms and legs. At the moment I cap myself at 500mg per day but this terrible crash is making me want to take more. Would that be safe? How much do you all take?

🧵 New US research: Impact of extended-course oral nirmatrelvir/ritonavir [Paxlovid] in established Long COVID: a case series www.nature.com/articles/s43... "Extended courses of nirmatrelvir/ritonavir may have meaningful benefits for some people with #LongCOVID but not others" 1/

So, you may ask, why do I get so angry about the new liberal spin on RFK Jr, as in, "he gets some things right, so let's collaborate on those" or "we have to work with him because he has a huge following we need to reach"? Because I've seen this movie before. 1/