They're calling it for @abdulelsayed.bsky.social — this is a victory for Medicare for All, for every American who has ever needed care but couldn't afford it. We are one step closer to realizing health care as a human right in this country.
C.H. Romatowski
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
I guess while everyone is airing their pandemic grievances I’ll add that as a nurse, the most traumatic thing about the pandemic for me was the lack of appropriate PPE and the denial of airborne spread that STILL happens in healthcare
anyway, if you're looking for Matthew Cortland, you should sub to their patreon since they're a disabled lawyer evidently getting deplatformed from places.
Shouldn't Need to Be a Lawyer by Matthew Cortland — creating Shouldn't Need to Be a Lawyer
Get more from Shouldn't Need to Be a Lawyer by Matthew Cortland on Patreon. creating Shouldn't Need to Be a Lawyer. Support Shouldn't Need to Be a Lawyer by Matthew Cortland and get exclusive access t...
shouldntneedtobealawyer.com
When disabled people/many people who work on disability/health pointed to the dangers of this kind of framing since COVID, they were usually mocked ("oh you think everything is eugenics") or ignored. But normalising the idea that the deaths of disabled people are desirable/reassuring is dangerous.
The New York Times@nytimes.com · 2d agoBreaking News: Two deaths in Michigan have been linked to cyclospora. Both people who had the parasite also had underlying health issues.
Something to remember whatever the illness they’re telling you only the weak need worry about.
Max Kennerly@maxkennerly.bsky.social · 2d agoThey think they're being clever eugenicists by saying that people with "underlying health issues" don't matter, but >75% of U.S. adults have a chronic condition (including 60% of age 18–34). So what they're really saying is "nobody matters, it's okay if everybody dies from inadequate regulation."
Fuck you. Seriously, fuck you. Using this framing: "Two people died of a preventable infection. But don't worry, its just disabled/vulnerable people!" should automatically mean you are eligible for a fiery, pus-ridden, painful, endless and eternal toil in the depths of Tartarus
The New York Times@nytimes.com · 2d agoBreaking News: Two deaths in Michigan have been linked to cyclospora. Both people who had the parasite also had underlying health issues.
Senate Reaches CR Deal — The text would temporarily block the rule proposed by the Trump Regime's OMB Director, Russell Vought to give the White House direct, North Korean-style control over grant funded scientific research shouldntneedtobealawyer.com/posts/senate...
Senate Reaches CR Deal, Would Temporarily Block OMB Rule On Grants | Shouldn't Need to Be a Lawyer by Matthew Cortland
Senator Susan Collins (R-ME) is the Chair of U.S. Senate Committee on Appropriations, and Senator Patty Murray (D-WA), Appropriations Rankin
shouldntneedtobealawyer.com
If you think children or teens only suffered because of online learning, but not because their own health has been devastatingly compromised or because they lost family members to Covid, then I don’t know what to say to you.
1) 🇩🇪 There's more info about the trial on Aripiprazole (Abilify) that will take place in the Charité. It will enrol 138 PAIS patients using a crossover design so everyone will be on 1 mg of Abilify for a period of 8 weeks. Primary outcome is the Chalder Fatigue Scale.
As we recall the trauma caused by COVID in 2020, we should not forget COVID continues to harm. Many still suffer from Long COVID, people who mask are often harassed, and we haven’t scaled clean air infrastructure. If we truly acknowledge past harms, we should be working to create a better future.
1 in 4 people are disabled. Make it make sense 😭
Julia Métraux@juliametraux.bsky.social · 5d agoNot going to lie, the past year and a half has tested me. Right now, I'm arguably the singular person doing disability breaking news regularly at a national newsroom. And breaking news, the process of rushing to find sources, is hard on my disabilities.
PLRC is continuing our summer fundraiser to help sustain our work and fund new projects that will improve clinical trials and biomarkers! You can help us by donating, sharing our posts, & forwarding emails you receive to folks in your network 🧵 Donate: patientresearchcovid19.com/donate/
Home care is so much better than institutional care. It’s also cheaper, for people whose chief concern is financial.
Julia Métraux@juliametraux.bsky.social · last wk.RFK Jr. and Oz attacked California for its Medicaid home care, citing growth as proof of fraud. For @motherjones.com, I reported on how the growth isn't proof of fraud, and growth of participants is proof the program is more accessible than in other states. www.motherjones.com/politics/202...
Aced the handgrip part of my physical today, so that’s something. Listen I will take the small wins lol.
Since we're talking COVID: Masks work, ivermectin does not. Vaccines massively protect you and help against long-term stuff, but you need to keep up with boosters. You need to keep masking; COVID isn't over because WE DIDN'T STOP THE TRANSMISSIONS in 2020-2021. Also many are still at high risk
Hi! For a @motherjones.com piece, I'm looking to connect with disabled and aging people in the Bay Area who are transit dependent re upcoming ballot measures to fund transit. Please reach out at jmetraux@motherjones.com.
i have been at this on my own for a year now. and some days i feel like BREAKING. it is so unbelievably difficult to be this disabled alone. No family around. No significant other. every day is SO hard. and i dont talk about that a lot on here. but some days i just break down from crying.
Healthcare workers: “We care for people.” Me: “Then you'll wear a mask?” HCW: “We don't care that much.” STUDY: “Hospital-acquired COVID-19 infections remain significant (and) associated with higher mortality rates than non-hospital-acquired infection.” www.sciencedirect.com/science/arti...
Epidemiology and mortality among hospital-acquired cases of COVID-19 in the pre-Omicron and Omicron periods: A data-linkage study in Victoria, Australia
The aim of this study was to compare the epidemiology and mortality of hospital-acquired versus non-hospital-acquired COVID-19 infections among hospit…
sciencedirect.com
“A study in the journal Pediatrics estimated as many as 5.8 million children were affected in the U.S. as of early 2024 — already outpacing the 4.9 million children with asthma, formerly the most common pediatric health condition.” thesicktimes.org/2026/07/24/t...
The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times
We must help students by addressing Long COVID and advocating for clean air in schools.
thesicktimes.org
💯💯 We’ve got to rid chronic illness conversation, in particular, of the tendency to invoke chatbots this way. It’s seriously deleterious to our shared understanding of reliable sources of medical information.
Linda Holmes@lindaholmes.bsky.social · last wk.I am amazed that people walk into discussions among knowledgeable human experts and say “ChatGPT says…” It’s very insulting to do that, and it makes you look ridiculous. Everybody has seen LLMs spit out wrong information about *extremely* simple things. Don’t make a fool of yourself!
In my latest for @thesicktimes.org I covered the recent Dysautonomia International conference, which was held just outside Houston. It was three days of learning about all of the latest in research and clinical care.
Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick Times
The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.
thesicktimes.org
New remote trial recruiting now (US only) #MECFS youtube.com/watch?v=RmEH...
087 - Another Remote Clinical Trial for ME/CFS!
YouTube video by Jarred Younger, PhD
youtube.com
The survey has 100+ unique emergency room narrative responses already! But we're aiming for 150 before we close. If you have a diagnosis of #MECFS or #LongCOVID and have been to the emergency room in the past 10 yrs for your symptoms, I hope you'll take the survey. And if you don't, please share!
#MEAction Network@meactnet.bsky.social · 2w agoAre you someone with myalgic encephalomyelitis/chronic fatigue syndrome #MECFS or #LongCOVID who’s been to the emergency room at least once over the past 10 years for your symptoms? Clinical care needs your voice! Take the Emergency Department research survey: surveys.mayoclinic.org/jfe/form/SV_...
Join Dr. David Putrino, Dr. Lucinda Bateman, Dr. Jennifer Curtin, & moderator Charlie McCone for a discussion on how to best manage and treat post-exertional malaise. Learn about the different types of PEM, how to navigate a crash, and interventions for reducing PEM. Sign up here: ow.ly/nAvg50ZtEb8
The story of rapid recruitment for our tirzepatide trial is now published in Lancet ID: www.thelancet.com/journals/lan... "Although the large-scale interest in LoCITT-T met my expectations, I had not anticipated the influx of kind words about the trial from the [Long COVID] patient community." ❤️
Rapid recruitment for a remote long COVID clinical trial
There have been few long COVID clinical trials relative to the burden of disease,1 and even fewer have been accessible to people with more severe illness.2 As a person who has had moderate-to-severe l...
thelancet.com