I was asked to give a presentation to endocrinologists & other diabetes providers this week about exocrine pancreatic insufficiency in people with diabetes. It happens, and it’s not rare! If you’re curious, here is a written version of the presentation: diyps.org/2026/10/16/w...

Added some more improvements to BookPilot - you can run some of the key scripts (import csv, run the lookup, etc) from the webpage now. Plus, new features to make marking series as read and finding uncompleted series easier. bsky.app/profile/dana...

Dana M. Lewis@danamlewis.bsky.social · 8mo ago

BookPilot for those who want to use it to find other books by authors they have already read (or listened to): github.com/danamlewis/B...

If you have air conditioning or a box fan, use one of these enhanced filters with our #smoke coming in. Having some N95 respirator masks isn’t a bad idea too, if you’re sensitive or outdoors for long periods of time. #wawx #Seattle #Portland #orwx

I have a $30 stationary bike that I got at Goodwill and I have an old Android tablet stuck to it, but I don't have a Peloton membership. Nor do I have the interest to ride 80 miles to the beach. So I made PedalScape.com It's a local PWA, no backend at all, no tracking, just 4k bike rides.

PedalScape

Any bike. Any screen. Beautiful rides from home.

pedalscape.com

There’s a new good study on what dose of gluten exposure triggers an immune response in people with celiac. I wrote about that and how it helps me refine my ‘algorithm’ for deciding what to eat as a person with celiac: diyps.org/2026/06/04/a...

A heuristic approach to deciding what is safe to eat with celiac disease

When you’re diagnosed with celiac disease, it is nice in the sense that you have a known issue (consuming gluten causes an autoimmune reaction and damage to your body) and that the solution is known: ...

diyps.org

We heard the internet loves fan edits. Did we do it right? 🔥 It's important to be #SmokeReady during wildfire season, and making a clean air fan is a cheap and easy way to keep your indoor air clean. All you need is a box fan, furnace filter, and bungee cord!

PS -  if you’re curious about some of my perspective, you can read about it here: diyps.org/2026/04/16/t... (I’m hoping to provoke disagreement - see where you disagree! And then if you’re free on 4/28 come join the @ctti-trials.bsky.social discussion about it) 👇🏼

The data we are leaving behind in clinical trials, what it costs us, and why we should talk about it

I talk a lot about the data we leave behind. A lot of this time, this is in the context of clinical trial design. But more recently, it’s also about the data loss that drives bias in AI. And actually…...

diyps.org

Dana M. Lewis@danamlewis.bsky.social · 6mo ago

1/ What if the topic of AI use in clinical trials, and data re-use beyond the initial clinical trial, are two parts of the same conversation? (Spoiler: they are!) But I don’t see either talked about enough, which is why I appreciate @ctti-trials.bsky.social hosting a summit to discuss these:

1/ What if the topic of AI use in clinical trials, and data re-use beyond the initial clinical trial, are two parts of the same conversation? (Spoiler: they are!) But I don’t see either talked about enough, which is why I appreciate @ctti-trials.bsky.social hosting a summit to discuss these:

Researcher here who gets VERY excited when people email for paper access! Also, authors can usually post author copies to their own sites (even if journal site is paywalled!). I do - you’ll find links to all mine via DIYPS.org/research But you can also always email 🥰

Shepherd@neolithicsheep.bsky.social · 8mo ago

If you ever want to read a paper for free and can't find it otherwise, email the lead author and politely ask for a copy. You will not be bothering the person. You will in fact make their whole entire day. I have had scientists get so excited I asked they sent me everything they ever published.

PERT Pilot (iOS) update! It, too, now has the recipe builder feature and you can now send - or receive! - meals and recipes from either PERT Pilot and Carb Pilot. 🎉 PERT Pilot is designed for tracking pancreatic enzyme replacement therapy, for those of us with EPI (PEI).

Just pushed a new version of Carb Pilot 🎉 with a new feature: a recipe builder (which gives you the ability to adjust your estimates by each ingredient, plus designate portion sizes). Would love feedback if you try it out! (And share any other feature requests). Plus… 👇🏼

BookPilot for those who want to use it to find other books by authors they have already read (or listened to): github.com/danamlewis/B...

GitHub - danamlewis/BookPilot: BookPilot is a tool to help you analyze your Libby reading history and generate personalized book recommendations, based on authors you've already read.

BookPilot is a tool to help you analyze your Libby reading history and generate personalized book recommendations, based on authors you've already read. - danamlewis/BookPilot

github.com

Sharing some of how I use LLMs - which ones, how that has changed over time, and about a remote prompting tool I put together: diyps.org/2026/02/17/w...

Meta-thoughts about software-shaped feelings after solving for last week’s software-shaped feeling: diyps.org/2026/02/09/s...

Trying to increase my cycle of doing/building and sharing it out, even if it’s not “done” or perfect to my standards. Not every custom software I like needs to be used by someone else, but it’s worth sharing in case there is a(nother) need for it. It might spur other ideas or others to build, too!

The intersection between “what should I read next?” and being someone who reads a lot means it would be nice to have something to recommend new books that takes into account what I have already read. …and now I have that! I called it “BookPilot”: diyps.org/2026/01/18/b...

BookPilot: What Should I Read Next?

Book hangovers are the worst. By book hangover, I mean that feeling you get at the end of a book when you come up for air and don’t know what you’re going to read next. In general, or because you have...

diyps.org

‘Tis the season…don’t forget you can consider situational masking, even if you don’t choose to mask in everyday life / lower risk situations. Planes, trains, shared automobiles, conferences and conference rooms… 👇🏼 here’s some data for informed choices: diyps.org/2023/06/07/a...

Air Quality, CO2 monitoring, and Situational Masking

I do a lot of things most people don’t want to do themselves - and I get that. (For example, recording macronutrients while running? Running for up to 16 or 25 hours? Let alone other choices like buil...

diyps.org

‘Tis the season…don’t forget you can consider situational masking, even if you don’t choose to mask in everyday life / lower risk situations. Planes, trains, shared automobiles, conferences and conference rooms… 👇🏼 here’s some data for informed choices: diyps.org/2023/06/07/a...

Air Quality, CO2 monitoring, and Situational Masking

I do a lot of things most people don’t want to do themselves - and I get that. (For example, recording macronutrients while running? Running for up to 16 or 25 hours? Let alone other choices like buil...

diyps.org

3. If you haven't got a #flu shot yet, now's the time. You may have heard that there's likely a mismatch this year — the #H3N2 virus mutated after the vaccine strains were picked. More on that in a bit. But that's not a reason to skip getting a shot this year. www.statnews.com/2025/11/20/f...

Is a bad flu season on the way? Experts see reason to be anxious

There are early indications that this flu season could be a bad one.

statnews.com

Sometimes when people ask me why I’m wearing a mask I say I’m traveling or have some important thing soon and can’t afford to get sick and miss it and that’s pretty much always true but I think it would be nice if it were more normalized to just say “I don’t want to get sick” and leave it at that

We've just launched the first large, site-less (home, direct to participant) randomized trial for treatment of #LongCovid, testing tirzepatide (a GLP-1 drug) vs placebo. Please help spread the word www.scripps.edu/news-and-eve...

Scripps Research scientists launch new digital clinical trial to test repurposed drug for long COVID symptom relief

scripps.edu

If we want preprints to really catalyze faster, more open science, then leading infrastructure needs to reduce this friction. Authors should know when feedback exists — otherwise we’re shouting into the void.

If the smoke in the air is bothering you: Reminder that an n95 mask can help (and you can wear one outside to reduce exposure). For inside, if you don’t have an air purifier, a furnace filter taped onto a box fan can help clean your indoor air.

Given the current wildfire growth across the PNW and the forecast winds over the next week, we could see a situation where smoke becomes persistent across much of the PNW by next week. Time to get those air filters / N95s / etc if you haven't already.

Traveling soon? Stay protected during the COVID-19 surge by wearing a high-quality mask in crowded or indoor spaces like an N95, KN95 or KF94. Learn more: www.cdph.ca.gov/Programs/CID...

If you are accommodating someone with dietary restrictions, please refrain from having feelings about whether/how much they eat. "I got them this special thing, why didn't they eat as much as I want them to?" Could be they're full, they don't like that food, they decided it's not actually safe.

As an interesting data point, 4 of 5 women I told about this on the same day also experience significant pain from IUD insertion / replacement procedures and have (also) never been offered pain management options. (The fifth didn’t comment.) We need to change this. Pass it on 👆🏼 to your friends.

This is one of the things we have to talk about (real world clinical practice is translating very slowly on the basis of new evidence). If you have an IUD or are considering getting one, read about paracervical blocks & ask your provider about it. diyps.org/2025/05/29/i...

IUD insertion or IUD replacement is more manageable with a paracervical block

If you’re someone who is considering an IUD (intrauterine device) or has an IUD and is considering a replacement or the removal process, this post is for you. You should know about this! Feel free to ...

diyps.org

You can read the full research paper here: doi.org/10.3390/epid... Or, read my summary and highlights from the paper here: bit.ly/3J8yBLL Let me know what questions you have! (6/6)

New open-access research on a new symptom score for exocrine pancreatic insufficiency - the EPI/PEI-SS. An n=324 study analyzed this symptom score in people with EPI and in the general population (without EPI). Read the open access paper here (doi.org/10.3390/epid...), or skim this summary below 👇🏼