In #EDAW understanding GLP-1 use in those with eating disorders is one of the most pressing clinical considerations over the past couple of years. If you are over 16, based in UK, have expereince of an ED and using or attempted to obtain GLP-1 please do take part! Survey and then optional interview!

Edinburgh University Eating Disorders Research Group@edresearch.bsky.social · 10mo ago

We are currently recruiting adults age 16 or over based in the UK with a clinical or self diagnosed eating disorder who have experience of using, or attempting to obtain, GLP-1 weight loss injections. Please do complete the survey here edinburgh.eu.qualtrics.com/jfe/form/SV_...

Myself and @drhelensharpe.bsky.social have combined 2 0.4WTE postdocs to make 0.8 for 1 person or two 0.4 posts thanks to @medresfdn.bsky.social funding. Will be working across developing resources for food insecurity in EDs and adaptations to FT-AN for autistic young people at Edinburgh uni.

[2/2] A huge congratulations to: 🟩 @fionaduffy.bsky.social from The University of Edinburgh 🟩 @nicolabyrom.bsky.social from King's College London 🟩 @drhelensharpe.bsky.social from the University of Edinburgh 🟩 @dashanicholls.bsky.social from Imperial College London 👉 Read more: shorturl.at/GbQQk

Medical Research Foundation | Transforming eating disorder care…

shorturl.at

Meet the recipients of our new Eating Disorders Research Changing Policy and Practice Awards! ✨ These exceptional researchers are working to share their findings with healthcare professionals & policymakers, to improve support for those affected by life-threatening eating disorders. [1/2]

🔍 Researchers from the Eating Disorders and Autism Collaborative (#EDAC) have used an innovative 'photo voice' technique to empower Autistic people with eating disorders to shape the direction of future research. #MedSky 📄 read paper: lnkd.in/dAWSUVyT 🖼️ view virtual exhibition: lnkd.in/dnBHnAh5

We are recruiting Autistic adults (formal diagnosis or self identified), over 16years and fluent in English, who have experienced CBT-E for anorexia, bulimia or binge eating disorder in the past 3 years for a survey and an optional follow up interviews. edinburgh.eu.qualtrics.com/jfe/form/SV_...

Our @edaceatingautism.bsky.social postdoc @emynimbley.bsky.social has made this amazing clip of a recent ESRC Impact Acceleration event supporting lived experience, clinicians and researchers to come together to share understanding of autism and eating disorders, narrated by one of our collaborators

We are recruiting UK based clinicians in eating disorder services to think about barriers & enablers for implementing autism affirming care, for example PEACE pathway. If you would be willing to be interviewed over TEAMS there is more information here! edinburgh.eu.qualtrics.com/jfe/form/SV_...

In-person ECR event for eating disorder researchers in UK on 8th May, focusing on funding applications and co-production. An optional second day networking event with 4 UKRI-funded ED research. ✍️Register interest here: qualtricsxm8tn52zk86.qualtrics.com/jfe/form/SV_...

Day 4 of #EDAW updates from Edinburgh University. @fionaduffy.bsky.social, @eatsleeplaugh.bsky.social and @drhelensharpe.bsky.social are working on an NIHR project led by Dr Tom Jewell on the impact of the introduction of calories on menus in England on individuals with eating disorders

🧠 Eating disorders often co-exist with autism, yet research in this area remains limited. Foundation-funded Dr Fiona Duffy & Dr Karri Gillespie-Smith are working to change that. Through @edaceatingautism.bsky.social, they’ve shared best-practice research guidelines. Read more: bit.ly/4k8JN8W #EDAW

Medical Research Foundation | Eating disorders and autism -…

medicalresearchfoundation.org.uk

Day 3 of #EDAW updates! We are delighted to highlight EDIFY today which is co-led by @drhelensharpe.bsky.social . @edifyresearch.bsky.social is a 4 year programme of research focused on how we understand and treat eating disorders in young people. Www.edifyresearch.co.uk

For Day 2 of our daily #EDAW updates, we are delighted that Michelle Carroll is studying with us extending our research groups work on social media, body image and eating behaviours. Michelle is looking to recruit online personal trainers who use social media to promote their business.

Day 1 #EDAW25 updates from us is that we are delighted to host the eating disorders and autism collaborative (EDAC) for updates you can find them here @edaceatingautism.bsky.social and www.edacresearch.co.uk where they have open access publications, interviews with researchers and opportunities

Real world evaluation of email peer support for young people with eating disorders, including exploration of outcomes for befrienders. A partnership between NHS Lothian CAMHS and Beat, thanks to initial development funding from Scotland www.tandfonline.com/doi/full/10....

An evaluation of lived experience email peer support for young people with eating disorders

Peer support is where individuals with the same shared experience provide mutual support. Using a non-controlled repeated measure design, this study evaluates initial efficacy of one-to-one email p...

tandfonline.com

EDAC is proud to host an exhibition of photographs, drawings and digital art on the experience and research priorities of autistic people with eating disorders . inspace.ed.ac.uk/youre-not-al.... 1st to 8th march (closed Sunday Tuesday and Thursday, free drop in 10-5 quiet hour on sat.

We hope to add to this evidence base with our work. We’re actively recruiting for studies in England. Please see the links below if you are interested or know someone who might be: 1. Interview study (tinyurl.com/c6td45ra) 2. Online survey (tinyurl.com/yt6xjzx5)

So what does this mean? Nutritional labels are being introduced and/or considered by governments globally as a public health policy. But in making that decision it’s vital to understand how this policy impacts people with eating disorders to adequately balance risk and benefit.

We just published a systematic review on the impact of the out-of-home nutritional labels (i.e., restaurants, cafes) on people with eating disorders. Key points and next steps below 👇 bmjpublichealth.bmj.com/content/3/1/...

Impact of out-of-home nutrition labelling on people with eating disorders: a systematic review and meta-synthesis

Objectives Mandatory nutrition labels for out-of-home food consumption have been introduced in several countries to curb rising obesity levels. However, concerns have been raised about the potential n...

bmjpublichealth.bmj.com

New publication! systematic review exploring the impact if calories on menus with people with ED's from @drhelensharpe.bsky.social @fionaduffy.bsky.social @eatsleeplaugh.bsky.social and Imogen Peebles, led by @ntrompeter.bsky.social and @tomjewell.bsky.social bmjpublichealth.bmj.com/content/3/1/...

Impact of out-of-home nutrition labelling on people with eating disorders: a systematic review and meta-synthesis

Objectives Mandatory nutrition labels for out-of-home food consumption have been introduced in several countries to curb rising obesity levels. However, concerns have been raised about the potential n...

bmjpublichealth.bmj.com

New publication with @edaceatingautism.bsky.social, @eatsleeplaugh.bsky.social @emynimbley.bsky.social and others, qualitative study of clinicians experience of eating disorder focused family therapy (FBT or FT-AN) with Autistic young people and their families onlinelibrary.wiley.com/doi/10.1002/...

Clinicians' Experiences of Eating Disorder Focused Family Therapy With Autistic Young People

Objective Eating disorder focused family therapy (FT-ED) is the leading outpatient intervention for adolescents with Anorexia Nervosa. Autistic people report poorer eating disorder treatment experie...

onlinelibrary.wiley.com

Calorie labels encourage people to eat less by only a single crisp, study says www.theguardian.com/society/2025...

Calorie labels encourage people to eat less by only a single crisp, study says

Review of labelling’s effectiveness finds average reduction is equivalent of 11 calories in a typical 600-calorie meal

theguardian.com

Hot off the press! New paper by a range of co-authors including our own @drhelensharpe.bsky.social on key domains that may be relevant to the characterisation of individuals with FED to support personalisation of care👏👏👏👏 onlinelibrary.wiley.com/doi/full/10....

The current clinical approach to feeding and eating disorders aimed to increase personalization of management

Feeding and eating disorders (FEDs) are a heterogeneous grouping of disorders at the mind-body interface, with typical onset from childhood into emerging adulthood. They occur along a spectrum of dis...

onlinelibrary.wiley.com

New paper led by Michelle Sader highlighting some of the ethical dilemmas in MRI and open access framework in autism research, based on EDACs first workstream thinking about co-production of research in Autistic individuals with eating disorders www.liebertpub.com/doi/10.1089/...

Ethical Complexities and Concerns Surrounding Magnetic Resonance Imaging and the Open-Access Scientific Framework in Autism Research | Autism in Adulthood

There is an increasing demand for publicly funded research datasets to be made available for the research community. However, there are multiple issues associated with the use of accessible data, particularly in the Autistic community, where individuals have understandable reservations as to who is accessing these data, what the associated objectives are regarding the use of these data, and why there is insufficient follow-up to individuals who have offered their time to provide their data. These issues particularly extend toward brain imaging research, in which Autistic individuals have expressed long-standing ethical concerns as to how and why this research is performed. This perspective piece aims to outline concerns from the Autistic community in relation to both magnetic resonance imaging (MRI) and the functionality of the open-access scientific framework, utilizing these approaches as examples to outline discipline-wide concerns and barriers to ethical research. This work will also address a bias in research regarding who can reasonably tolerate an MRI scan as an Autistic person and whether certain Autistic characteristics are being disproportionally highlighted and/or suppressed through these research practices. Lastly, this perspective piece will focus on methods with which MRI, open-science philosophy, and general research disciplines can improve practice to conduct ethical autism research.

liebertpub.com

An early Xmas pressie! Delighted that our best practice guidelines for conducting co-produced research with autistic indivudals with an eating disorder have now been published. Many thanks to all our co-authors! www.tandfonline.com/doi/full/10....

Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines

There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this...

tandfonline.com

New publication by EDACs amazing post doc Michelle Sader on the Co-occurrence of autism and avoidant restrictive food intake disorder-meta analysis of prevalence rates ... onlinelibrary.wiley.com/doi/full/10.... @karri-g-smith.bsky.social @drhelensharpe.bsky.social @fionaduffy.bsky.social

The Co‐Occurrence of Autism and Avoidant/Restrictive Food Intake Disorder (ARFID): A Prevalence‐Based Meta‐Analysis

Objective Avoidant/restrictive food intake disorder (ARFID) is a feeding and eating disorder characterized by extensive avoidance and/or restriction of food. Existing research demonstrates that ARFI.....

onlinelibrary.wiley.com

Mandatory calorie labelling in England made "no observed changes in customer purchasing or consumption". When, on balance of potential harm for vulnerable groups including ED's, is there a need to review policy rather than focus on extending consumer education on calories and enforced compliance 🤔

Eric Topol@erictopol.bsky.social · 2y ago

Does calorie labeling change food/energy consumption? Not in this new open-access report www.nature.com/articles/s41... @naturehumbehav.bsky.social

Amazing today so see over 100 ED Scottish clinicians and policy makers coming together to listen to the amazing Kate tchantuira on PEACE pathway today and reflecting on implementation 👏👏👏👏 thanks to the Scottish National Eating Disorder Network for hosting us!

a man and a woman are jumping in the air while a man holds their hands up in the air .

ALT: a man and a woman are jumping in the air while a man holds their hands up in the air .

media.tenor.com

Sharing this with new connections on here 👀 We are looking for UK-based #ActuallyAutistic folks to take part in a one-to-one interview to help us explore how they feel about their body and certain eating styles If interested, why not send me (an autistic researcher) an email at PL428@pgr.aru.ac.uk

Review published today led by Rachel McDonnell Murray exploring the experience of individuals on very low calories diets for Managing Type 2 diabetes, super important we move beyond weight loss as a sole "marker" of effectiveness for these interventions journals.sagepub.com/doi/10.1177/...

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