"As we stand at the cusp of AI’s broader societal integration, we must remember that people are AI’s designers, users, investors, and inventors, and we can also be its governors," @palfrey.org writes. time.com/article/2026...

Agency in the Age of AI

"People are wrestling with questions about what AI will mean for their jobs, education, and personal well-being," writes John Palfrey.

time.com

I am so grateful for the chance yet again this year to present work at Biolawlapalooza at Stanford Law. Thank you to Hank Greely for hosting! Now I just need to get this paper written up!

Celebrating my husband @1kdne.bsky.social, who shared his spare! This photo of us was taken a mere 48 hours after he donated his kidney at Temple Health!

Immigration policies can have dramatic impacts on biomedical research. I appreciate Turna Ray at GenomeWeb shining a light on this issue. www.genomeweb.com/policy-legis...

ICE Detention of Gene Therapy Research Volunteer With Rare Skin Condition 'Undermines' US Biotech

The US government's arrest of a Libyan asylee who helped advance precision medicine casts a dark shadow on rare disease research, which requires access to a global population, experts say.

genomeweb.com

Who's looking for a post-doc? Consider the possibility of Penn State, where Dr. Laura Cabrera and I are collaborating on an NIH-funded project and could use another bright mind to help! (Learn about Dr. Cabrera's Lab at sites.psu.edu/lcabrera/) psu.wd1.myworkdayjobs.com/PSU_Academic...

Postdoctoral Scholar Position in Neuroethics or Techethics, Dept. of Engineering Science & Mechanics

APPLICATION INSTRUCTIONS: CURRENT PENN STATE EMPLOYEE (faculty, staff, technical service, or student), please login to Workday to complete the internal application process. Please do not apply here, a...

psu.wd1.myworkdayjobs.com

I'm happy to share another publication from my team out today! Gratitude and congratulations to Abdulai Rashid, Nicole Rincon, and Nathan Rihani for this collaboration. www.cell.com/ajhg/fulltex...

Competition in human genetic technologies: The current US legal landscape

Here, we offer a perspective on the US legal landscape regarding the promotion of competition, with specific attention given to the human genetics and genomics industry. We highlight current policy on...

cell.com

Happy to have had the opportunity to collaborate on this piece with the great @saragerke.bsky.social & Jacob Balamut! www.sciencedirect.com/science/arti...

The FDA’s plan to phase out animal testing

Replacing animal testing through ‘New Approach Methodologies’ holds promise for developing cheaper and safer drugs without animal suffering. However, …

sciencedirect.com

I'm excited to share these companion articles published w/ student Caitlin Maloney & collaborators Nina Claessens & Peter Claes! We hope they'll spark important tech & ethical discussions on AI-enabled facial genetics research! doi.org/10.1002/ggn2.202500056 & doi.org/10.1002/advs.202513207

Motivated ELSI scholars, are you looking for a post-doc position for a Spring 2026 start? Come to #PennState to work with Dr. Laura Cabrera and me on ethical, legal, and social issues involving multimodal brain and behavioral data! psu.wd1.myworkdayjobs.com/PSU_Academic...

Postdoctoral Scholar Position in Neuroethics or Techethics, Dept. of Engineering Science & Mechanics

APPLICATION INSTRUCTIONS: CURRENT PENN STATE EMPLOYEE (faculty, staff, technical service, or student), please login to Workday to complete the internal application process. Please do not apply here, a...

psu.wd1.myworkdayjobs.com

ICYMI the FDA issued three draft guidance documents for gene therapies (expedited programs for serious conditions; postapproval methods to capture safety & efficacy data; and innovative clinical trial designs for small populations). Public comment period ends 11/24/25. www.fda.gov/vaccines-blo...

Cellular and Gene Therapy Guidances

This page contains a listing of cellular and gene therapy guidances.

fda.gov

I am sad to see that I already have a conflict that will prevent me from going to the 7th ELSI Congress back at UNC next year! 😭 Shouldn’t the organizers consult UNC alumni before scheduling that? JK.

Who is going to ASHG next week? Send me a note so we can connect!

I'm not sure when exactly this bright red scary banner went up, but it does seem quite ominous for NHGRI. I realize it was up much of the summer (as it's arrival was noted in this warning about the Human Genome Project archives www.statnews.com/2025/06/05/n...), but it still makes me furious.

Always a few bad actors that ruin it for the rest of us - Fearful of AI-generated grant proposals, NIH limits scientists to six applications per year www.science.org/content/arti... #grants #science #research #NIH

I'm pleased to share this Viewpoint coauthored with Anjali Deshmukh. FDA draft guidelines for AI could be important baby steps toward the realization of digital twins for pediatrics care, but more consideration of ethical issues is needed! jamanetwork.com/journals/jam...

FDA Draft Guidelines for AI and the Need for Ethical Frameworks

This Viewpoint discusses the US Food and Drug Administration (FDA) guidance on the role of artificial intelligence (AI) in the drug and biological product life cycle, including the consideration of qu...

jamanetwork.com

+1 on this message, as someone born and raised in rural PA.

Jess Piper@piperformissouri.bsky.social · last yr.

As an experienced rural organizer, these are the three things I would talk about on repeat in rural communities: Medicaid and schools and jobs. open.substack.com/pub/jesspipe...

I had such a stimulating time in Belgium this past week presenting at the 3rd International Facial Genetics Symposium and attending the OriGENE lecture by Joanna Wysocka at KU Leuven! Thank you Peter Claes, Benedikt Hallgrimsson, Hannah Long, & Manfred Kayser for organizing!

It’s a beautiful day at Stanford! And I am back on social media simply to express appreciation to @hankgreely.bsky.social for hosting another Biolawlapalooza! It’s been no secret that this is my favorite meeting year after year!

People have been asking me offline, so here you go... www.wired.com/story/how-to...

How to Delete Your Data From 23andMe

DNA-testing company 23andMe has filed for bankruptcy, which means the future of the company’s vast trove of customer data is unknown. Here’s what that means for your genetic data.

wired.com

Let's call this what it is: This is censorship of scientific research. www.nature.com/articles/d41...

Exclusive: NIH to terminate hundreds of active research grants

Studies that touch on LGBT+ health, gender identity and DEI in the biomedical workforce could be terminated, according to documents obtained by Nature.

nature.com

Today is International Day of Women & Girls in Science. I don’t feel like celebrating when all signs show me this admin prefers to “protect us” from scientific facts, research, & innovations. To my sisters in science (esp at gov agencies), I see you, appreciate you, & am with you in solidarity.

Take my — — from my cold dead HANDS.

Parker Molloy@parkermolloy.com · 2y ago

Just saw a post where someone said that use of em dashes (—) was a giveaway that you're using AI for writing. Uh, no. It could just mean you like to use em dashes.

About 8 years ago I jokingly asked which would implode first, the healthcare system or higher ed. Joke is on me. They are taking them both out in one shot… and fwiw, no, I don’t think the actions being taken to achieve this are lawful, but wtf does that matter these days.

Research universities are often the largest employers in their region. They are often the primary health care providers to communities. This funding shift will not only reduce US research leadership, it will put working people out of work and reduce healthcare access.

Alondra Nelson@alondra.bsky.social · 2y ago

Excellent 🧵 on this evening's NIH announcement of a dramatic reduction in indirect rates for research institutions, which amounts to a generational restructuring of the US research and development ecosystem. These cuts are effective immediately, not just for new grants but for existing ones.

Giving access to SSNs, other data on government employees to non-employees like Musk is a violation of 5 USC 552a, and carries with it a penalty of $1000 per person whose data was accessed. We are building a case. Govt employees who want to participate should contact me directly

Everyone concerned about data loss right now should learn about the End of Term Web Archive, which I believe has been working on preserving federal websites for the past 8 months. The dataset you fear has been lost may well be here Just an incredible project. Thank you to everyone involved

EOT End Of Term Web Archive@eotarchive.org · 2y ago

How to Access the EOT Web Archives Visit web.archive.org Scroll to 🔎Collection Search section Select "End Of Term (US Gov 2024)" from the menu Type in your query term and click search Or download bulk WARC files from eotarchive.org/data/ #EOT2024 #EOTArchive

repeat after me: an AI system does NOT and CANNOT seek power. it CANNOT seek, want, & desire anything more than your toaster can. people in positions of power use AI to seek, assert, consolidate, and centralise power

Caitlin Maloney (my PhD student at @psuanthro.bsky.social) & I were interviewed by @elsihub.bsky.social), which was checking in w/ us ~3 yrs after being matched in its Trainee Connect Mentor program. You can read our comments on mentorship. elsihub.org/news/trainee...

Trainee Connect Mentor - Mentee Relationship Continues

The CERA TraineeHub program supports the research and career goals of trainees and early career scholars of all disciplines with an interest in the ethical, legal, and social implications of genetics ...

elsihub.org

American science and medicine has been thrown into chaos and uncertainty over the past week. Here are some stories to get up to speed. 1/12

In the midst of so much chaos and the unmistakeable scorched earth strategy unleashed in the US since Jan 20, it seems like a bad time to wish y’all a happy Data Privacy Day. Yet here I am doing it anyway.