Pleased to speak to @thefemalelead.bsky.social about my end of life doula work and what I wish people knew when their relative/friend is dying community.thefemalelead.com/p/working-as... #EndOfLifeDoula #DeathDoula @eoldoulauk.bsky.social

“Working as a death doula taught me how to live”

End of life doula Emma Clare talks to The Female Lead about the biggest regrets dying people have - and what it teaches us about life.

community.thefemalelead.com

Just had meeting with kiddo's school. She has been fully supported, treated with full equality & dignity for years. All of that changes from September. Full segregation & humiliation across the board. The school staff cried in the meeting. This will absolutely lead to children's deaths 1/2

People are always talking about the things we have today that our ancestors didn't, but nobody wants to look at the things our ancestors had that we've lost. Like community, and free time, and environmental sustainability, and a collective that cares whether we live or die

Looking forward to returning to #UniversityofDerby today for this! #NCx2026

I was delighted to be invited to speak about making advance care planning accessible for neurodivergent people at this year's Advance Care Planning Day, and overwhelmed by the positive feedback. Huge thanks to @clarefuller.bsky.social James Norris and Dani Ayre for the invite. #ACPDay2026

Advance Planning and Neurodivergence: Towards Accessible Approaches 😍 - Dr Emma Clare (@dremmaclare.bsky.social ) Free ACP Day 2026 conference tickets advancecareplanday.org/conference-2... 🆓 #ACPDay2026 #Neurodivergence #AdvanceCarePlanning

Your reminder that fairy tales are full of stepmothers because women once routinely died in childbirth, from postpartum sepsis, or from other infectious diseases and left behind housefuls of motherless children. Stable nuclear families are made possible by vaccines, antibiotics, and safe abortions.

Catherine Frieman@cjfrieman.bsky.social · 2mo ago

One reason i think everyone should take an archaeology class is to internalise with tangible examples that there is no pure, natural past utopia and that antibiotics and vaccines are what stand between us and a 50% child mortality rate and scores of women dying needlessly during pregn and birth

Very much looking forward to speaking at this year's #AdvanceCarePlanning day in Norwich on the topic of making ACP accessible for neurodivergent people (and even better, neuroaffirming) #ACPDay2026

Clare Fuller@clarefuller.bsky.social · 2mo ago

Advance Care Plan Day 2026 materials & info is now available on the website. Get involved with the UK's national #AdvanceCarePlanning day ➡️attend in person ➡️host a watch party ➡️make a pledge 📅 1st June (across the UK). The National Conference (Norfolk). advancecareplanday.org 😍 #ACPDay2026 #NHS

A great piece in Scotland today featuring Jayne Wilson 👏 www.thecourier.co.uk/fp/lifestyle... #EndOfLifeDoula #DeathDoula

Terrified of dying, traumatised by labour - why these two Angus pals became death and birth doulas

Auchmithie woman Jayne Wilson is an end-of-life doula; SariMay Rychtarova, from Arbroath, is a birth doula. They told The Courier why they're taking an alternative approach to life's "two biggest tran...

thecourier.co.uk

Thank you to Daisy Sanderson for a lovely interview and great Q&A with an end of life doula write up for Dead Curious Magazine #EndOfLifeDoula #DeathDoula deadcuriousmag.co.uk/2026/05/21/a...

Q&A with an end-of-life doula - Dead Curious

I spoke to end-of-life doula Dr Emma Clare about the conversations families avoid, the fears we misunderstand, and why one honest moment can transform the final chapter of someone’s life.

deadcuriousmag.co.uk

Very pleased to join @clarefuller.bsky.social 's brilliant podcast again, this time to talk about barriers to advance care planning faced by neurodivergent people #AdvancePlanning #NeuroAffirmingCare #EndOfLifeCare #EndOfLifeDoula

Clare Fuller@clarefuller.bsky.social · 3mo ago

Hear @dremmaclare.bsky.social explain why standard ACP often fails neurodivergent people – and how to build neuro‑affirming approaches instead. 🎧 speakforme.co.uk/podcast-epis... #AdvanceCarePlanning #Neurodiversity #EndOfLifeCare #EndOfLifeCare #DeathDoulas @drkathrynmannix.bsky.social

We were pleased to share evidence with the Independent Expert Panel’s new review of palliative and end of life care. The report highlights gaps in commissioning, workforce pressures, and persistent inequalities. We’ll continue championing the voices of those we support. #EOLDUK #PalliativeCare

Very pleased with this! 😊

End of Life Doula UK@eoldoulauk.bsky.social · 10mo ago

We’re thrilled to share Dr Emma Clare & Rita Ball are finalists in the 2025 Daffodil Standards Awards. Recognised for our NHS Sutton & Merton project tackling inequalities in end-of-life care. Huge thanks to @mariecurieuk & RCGP. #EoLDUK #DaffodilStandards #EndOfLifeCare

I’ve been writing about neurodivergence in end-of-life care and advance planning and hearing from people who want to do better but don’t know where to start. This work means a lot to me. I’ve gathered it all in one place - my new site is live: www.deathwireddifferently.co.uk #DeathWiredDifferently

Death Wired Differently | Death Doula & Inclusive End-of-Life Support

Compassionate, inclusive end-of-life care and death doula services across the UK. Dr. Emma Clare provides neurodivergent-friendly guidance, training, and resources to support individuals, families, an...

deathwireddifferently.co.uk

RFK Jr. is not a vaccine skeptic. He's a vaccine denier whose anti-science extremist views and actions are destroying one of humanity's greatest scientific achievements. He's going to kill a lot of people, and those deaths are on the 52 Republican senators who confirmed him and those enabling him.

Good to see VSS being covered, this is very similar to my own experience www.theguardian.com/lifeandstyle... #VisualSnowSyndrome #Neuroaffirming

Experience: I see the world through a layer of snow

My condition has a name – visual snow syndrome – and it could be with me for the rest of my life

theguardian.com

Special interest grief is a disenfranchised grief. When a special interest becomes inaccessible it can feel like losing part of yourself. For many neurodivergent ppl these aren’t hobbies they’re ways of making sense of the world,regulating overwhelm,finding joy,expressing identity.It's valid & real.

I’ve been screaming from the rooftops that life under authoritarianism feels mostly normal most of the time for most people. Rights get stripped away and minorities get targeted and most people keep going to work and dealing with the minutia of life. It’s hard to know how to fight or when to flee.

Charlotte Clymer@charlotteclymer.bsky.social · 12mo ago

If you've ever wondered what life would have been like or what you would have done had you been living in Germany in the early 1930s, wonder no longer. Every day that passes now is an answer.

I've got another #buyastrangerabook day offer to tell you about! @raytom81.bsky.social will buy someone the book of their choice, up to £20. That's any book at all. So, if you have something in mind, let us know what it is. UK only

Tom Ray@raytom81.bsky.social · 12mo ago

Hiya 👋 I'd love the percival Everett if available and to repay with any book of someone's choice up to £20 x

More #buyastrangerabook (Sunday Special) magic! @sarahalba.bsky.social is offering to buy one lucky person the book of their choice, up to £15! So, if there's a particular book you're after, get in touch. UK only.

Sarah@sarahalba.bsky.social · 12mo ago

I can buy a stranger a book up to £15 @biggreenbooks.bsky.social

If anyone is interested in 50 minutes of me talking about end of life doulas, death, dying, and grief (as usual) you can watch/listen to the latest DACI podcast episode below. Pleased to include two @drkathrynmannix.bsky.social mentions youtu.be/jUhy2J5qZKA?... #EndofLifeDoula #DeathDoula

The Truth About Life & Death From a Death Doula (Dr Emma Clare)

YouTube video by DACI

youtu.be

My brilliant EoL doula colleague Rachel Hawthorn is hosting an online screening of The Luddenden Shroud – a 30-min film about a hand-felted shroud, nature, grief, and place. Followed by a Q&A. All welcome. Book here: www.eventbrite.com/e/the-ludden...

Leeds became the first city in the UK to commission end-of-life doula support through the NHS in May 2022. Explore the learnings to date from this pilot project ⤵️ #EndOfLife #PersonCentredCare

Dr Emma Clare@dremmaclare.bsky.social · last yr.

Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊 eol-doula.uk/leeds-nhs-co...

Interested in how #EndofLifeDoulas can collaborate with and complement NHS services? Our evaluation report for our Leeds EoL Doula Pilot Project is now available to read/download here 😊 eol-doula.uk/leeds-nhs-co...

Leeds NHS Commissioned Project - End of Life Doula UK

Our Leeds NHS pilot project concluded in September 2024. You can download and read our full service evaluation report here. In a pioneering step for end of life care, Leeds became the first city in th...

eol-doula.uk

Sharing this on the eve of tomorrow's vote. I am a palliative care doctor who is not opposed to AD. But enshrining in law a state-funded right to die, while not enshrine a similar right to the palliative care that might make life worth living, is so very wrong. www.theguardian.com/commentisfre...

MPs have personal beliefs, but also solemn duties: that’s why they must reject the assisted dying bill this week | Gordon Brown

Our obligations to each other are ill served if laws focus unduly on those who want assisted dying. The priority should be the best palliative care, says former prime minister Gordon Brown

theguardian.com

So important to see RCP make this statement about the preventable deaths and diseases poor air quality causes. We know it worsens infections , allergy,asthma and COPD severity too 🧪

UK air pollution killing more than 500 people a week, doctors say

Royal College of Physicians also says poor air quality costs country more than £500m a week

theguardian.com

Good morning! A friendly wee reminder that The Algorithms + Miscarriage Project is now seeking participants for interview. See poster for details... @tommyscharity.bsky.social @cendeathsociety.bsky.social @asdsdeath.bsky.social @bsatheory.bsky.social #miscarriage #algorithms #onlinesafety

Very pleased to be announcing this! A huge amount of work and real team effort. Excited to see what is next! 😊🥳 #EndofLifeDoula

End of Life Doula UK@eoldoulauk.bsky.social · last yr.

Big news: we’re now a registered charity! This opens doors to new funding, partnerships & growth; helping us strengthen our work & support even more people in our community. Thank you to everyone who’s helped us on the journey so far! #eolduk #eol #charity

RFK Jr. has just removed every member of the Advisory Committee on Immunization Practices (ACIP). These members review vaccine data and make approval recommendations. This is completely horrifying and will likely delay vaccine approvals. RFK Jr. must be removed from office IMMEDIATELY.