Emily Suess

@emilysuess.com

It's probably not about you. Writer Blogger Certified Zentangle Teacher (CZT) Doing stuff despite brain cancer and generalized anxiety disorder. she/her emilysuess.com/blog

Today and everyday is for Emily Suess who not only speaks in the rock opera, but wrote some of the words. She is just entering hospice as you read this. It doesn’t mean the end is here for her, but it isn’t good and my heart is broken.

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Day 9 of brain tumor awareness month (US) is for Josh Martin. Not only is he featured in the rock opera, he’s got some GREAT MUSIC you can find on BandCamp under Thought Trials. You should check it out and support his efforts. Visit Episode18.com for more info

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What I want is for him to acknowledge the damage he did, but I know he will never do that. That's what makes this hard but I've seen this movie before and I know how it goes.

Day 7 of brain tumor awareness month (US) and it’s a voice straight from heaven! It’s my eldest, Eliana Blue Fischmann! Not only did she contribute to the rock opera, she and her sister are big reasons why I’m still alive. Visit Episode18.com to listen and donate.

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A quick one for anyone wondering how this all works. Bottom line: just reach out to me with any questions from links to where to send stuff to you. Sorry for the crappy video… I’m running on fumes here. MRI next Monday and starting a new anxiety drug tonight so that’s fun!

I know it’s later in the day but May 6 was always Adam’s favorite day of brain tumor awareness month (US). I think? Anyway, our burgeoning friendship was cut short by GBM, but your spirit is all over this rock opera thing.

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Have you ever wanted to listen to a podcast about a rock opera and then be moved to donate to a teen cancer charity? Well… you’re in luck! A podcast all about MY TEEN CANCER ROCK OPERA and some of the folks involved is out NOW on the podcast app of your choice. Just look for Discograffiti.

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Day 5 and Byron King is still alive… at least in my mind. I think of him and his slow decline nearly every day. But more than that, he was a great friend who was there for me even while he was in his last days. He’s one of the people I miss most. Stupid brain cancer.

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This 4th of May is for Zoe Noble who passed as she was about to submit a contribution to the rock opera. She died at 28 of the exact same weird diagnosis and location as me, but in the UK. She had just gotten engaged and gone back to work. So yeah, I took her passing extra personally.

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On the levothyroxine front I would just like to say that I nailed it when I changed my dose myself. Nurse practitioner is putting in my next refill at my new dosage. Something else went right! The shit I can do when I'm panicked. I'm a wonder!