Today and everyday is for Emily Suess who not only speaks in the rock opera, but wrote some of the words. She is just entering hospice as you read this. It doesn’t mean the end is here for her, but it isn’t good and my heart is broken.
Emily Suess
@emilysuess.com
It's probably not about you. Writer Blogger Certified Zentangle Teacher (CZT) Doing stuff despite brain cancer and generalized anxiety disorder. she/her emilysuess.com/blog
@emilysuess.com The store had Oreo-themed dog toys on sale, so I bought one for Ozzie and told him it was from you. 💙
Please, send Emily words of support and hold her close. Thanks.
I'm entering hospice.
Make a donation if you are so inclined
Today and everyday is for Emily Suess who not only speaks in the rock opera, but wrote some of the words. She is just entering hospice as you read this. It doesn’t mean the end is here for her, but it isn’t good and my heart is broken.
Day 10 of brain tumor awareness month (US) is for one of my earliest brainfölken friends, Molly Marco! We ain’t afraid to do things a lil’ different. Visit Episode18.com for more info.
Note to self: Just because you're wrong doesn't mean you deserve harm.
Day 9 of brain tumor awareness month (US) is for Josh Martin. Not only is he featured in the rock opera, he’s got some GREAT MUSIC you can find on BandCamp under Thought Trials. You should check it out and support his efforts. Visit Episode18.com for more info
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New Noshing with Nashies Recipe Video is Up! Let's Make Candied Lemons 🍋😋 Please Like, Comment, Share, Subscribe, and Hype 🌠 to support a Disabled Creator for Free 😺💜 #foodsky #recipe youtu.be/GYbwZjUV8iQ
I think what I need is for someone to acknowledge that I don't give up.
Just in case you haven’t heard about this rock opera thing that’s raising funds for teen cancer stuff. Oh and it THIRTEEN NATIONS. P
What I want is for him to acknowledge the damage he did, but I know he will never do that. That's what makes this hard but I've seen this movie before and I know how it goes.
Even though ex has been blocked everywhere now, I still hear his BS in my head.
Send me a good messages please. I need to hear them this morning.
Day 7 of brain tumor awareness month (US) and it’s a voice straight from heaven! It’s my eldest, Eliana Blue Fischmann! Not only did she contribute to the rock opera, she and her sister are big reasons why I’m still alive. Visit Episode18.com to listen and donate.
A quick one for anyone wondering how this all works. Bottom line: just reach out to me with any questions from links to where to send stuff to you. Sorry for the crappy video… I’m running on fumes here. MRI next Monday and starting a new anxiety drug tonight so that’s fun!
I know it’s later in the day but May 6 was always Adam’s favorite day of brain tumor awareness month (US). I think? Anyway, our burgeoning friendship was cut short by GBM, but your spirit is all over this rock opera thing.
Have you ever wanted to listen to a podcast about a rock opera and then be moved to donate to a teen cancer charity? Well… you’re in luck! A podcast all about MY TEEN CANCER ROCK OPERA and some of the folks involved is out NOW on the podcast app of your choice. Just look for Discograffiti.
Day 5 and Byron King is still alive… at least in my mind. I think of him and his slow decline nearly every day. But more than that, he was a great friend who was there for me even while he was in his last days. He’s one of the people I miss most. Stupid brain cancer.
, cleaners and home health nurse have been here. Nothing I have to do for the rest of the day. Yay!
This 4th of May is for Zoe Noble who passed as she was about to submit a contribution to the rock opera. She died at 28 of the exact same weird diagnosis and location as me, but in the UK. She had just gotten engaged and gone back to work. So yeah, I took her passing extra personally.
Slightly diminish a book The Two Musketeers
Slightly diminish a book Ann of Green Gables (You might need to have read this one to get it.)
Slightly diminish a book Ann of Green Gables (You might need to have read this one to get it.)
Slightly diminish a book Wuthering Midlands
On the levothyroxine front I would just like to say that I nailed it when I changed my dose myself. Nurse practitioner is putting in my next refill at my new dosage. Something else went right! The shit I can do when I'm panicked. I'm a wonder!
Pharmacist told my mom's antibiotic might cause dizziness. That's in affirmative.