On Sun 9 August, the FRONTIER team will be taking part in #City2Surf to raise funds for the Australian Frontotemporal Dementia Association (AFTDA). If you're able to support our team, we'd greatly appreciate it: city2surf26.grassrootz.com/australian-f... #endFTD @brainandmindcentre.bsky.social

A huge thank you to Charlie Stowe for helping raise awareness and critical research funds for #FTD. Wishing Charlie all the very best as he sets off on his 300km walk tomorrow. www.instagram.com/reel/DakYECv... If you'd like to support Charlie, please consider making a donation: bit.ly/4eV6ltr

Madison Scott on Instagram: "19-year-old Charlie Stowe is hiking 300km from Sydney to Newcastle to raise money for research into Frontotemporal Dementia - a cause close to his heart. You can donate in...

66 likes, 1 comments - madisonscott_9news on July 9, 2026: "19-year-old Charlie Stowe is hiking 300km from Sydney to Newcastle to raise money for research into Frontotemporal Dementia - a cause close ...

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You do not need a diagnosis to join. Anyone with an interest in FTD research can be part of the Registry: www.FTDRegistry.org #FTDResearch #FrontotemporalDegeneration #endFTD

The International Conference on PPA is one week away! If you can't join us in London, tune in for the virtual meeting and hear the latest on interdisciplinary research and care for PPA. www.speechtherapyppa.com/icppa-confer... @annavolkmer.bsky.social @icppa.bsky.social

The Penn FTD Center is delighted to be working with ISFTD to host Caregivers Day, a one-day conference for family members and professional caregivers to learn more about advances in research and approaches to care. Use the link in our bio to get more information and register today!

📣 Sydney Aphssia Social Group event - join us for a afternoon designed for people with #aphasia and their supporters to connect! 📅 Thursday, 16 July 2026 ⏰ 11 AM - 1:30 PM 🏫 Pastizzi Cafe - North King Street 📍 109 King St, Newtown NSW 2042 👉 Register here: events.humanitix.com/sydney-aphas...

FTD can affect behaviour, personality, empathy and relationships. Dr Carmela Tartaglia explains why brain changes can change how someone connects with the people around them. Watch the full @istaart.bsky.social Relay Live show now - youtube.com/live/2-dZUuO...

New preprint: Utility of a Subdomain-Based ACE-III Online Dementia Screening Tool We developed and externally validated a probability-based dementia screening approach using ACE-III subdomain profiles rather than total scores. sydney-informatics-hub.github.io/ace3tool/ doi.org/10.31234/osf...

ACE-III online dementia screening tool | FRONTIER Research

This tool is designed to assist clinicians in screening patients for dementia. The tool was developed by the FRONTIER Research Group at the University of Sydney, and implemented by the Sydney Informat...

sydney-informatics-hub.github.io

New preprint from @samuelwarren.bsky.social , @lee-faylow.bsky.social , @profyun-heejeon.bsky.social , @muireannirish.bsky.social and colleagues introducing the MotDem, an age-appropriate measure of motivation. doi.org/10.64898/202... @brainandmindcentre.bsky.social

This is a great explanation of dementia by Dr Ananthan Ambikairajah. Worth a watch! www.youtube.com/watch?v=Y4es...

Dementia starts earlier than you think – here’s what you can do about it

YouTube video by UC Explains

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While there is currently no cure for FTD, treatment can help manage symptoms and improve quality of life. Swipe through to learn more about treatment approaches and support options for people living with FTD. 🔗 Learn more about treating FTD: https://bit.ly/4uxiwB8

A very worthy watch: the Australian Dementia Research Forum (ADRF) 2026 community lecture. www.youtube.com/watch?v=bS9E...

FREE COMMUNITY LECTURE ADRF2026 - "Act Now for Dementia and Healthy Brains'

YouTube video by Australian Dementia Network

youtube.com

Curious about what FRONTIER does? This new video breaks it down. Hear from Prof Olivier Piguet on how our clinic and research programs come together to advance the field. www.youtube.com/watch?v=JRYA...

The FRONTIER Frontotemporal Dementia Research Group

YouTube video by FRONTIER FTD Research Group

youtube.com

⭐ Welcome to our new Co-Director Professor Ben Colagiuri ⭐ We sat down to talk to Ben about his new role and what he's looking forward to at Brain and Mind Centre Read our 'In Conversation with Ben' here -> bit.ly/InConversati...

Start your year by revisiting one of our older episodes 🎙️ Dr. Muireann Irish shares how dementia changes memory, imagination, and joy. Listen here: open.spotify.com/episode/0iuX...

Have you or someone you know been diagnosed with young onset dementia (onset < age 65)? We’re conducting a research study on Australian's experiences accessing care and support (e.g. the NDIS) after diagnosis. Learn more or take part: redcap.sydney.edu.au/surveys/?s=Y... @fionakumfor.bsky.social

Primary Progressive Aphasia Awareness Day Australia 2026 Free webinar: Friday 10 April, 12:00–1:30pm AEST (Zoom) Hear from specialist clinicians on how early intervention supports people with PPA, including younger‑onset, to keep living well and doing what matters. Register: bit.ly/PPAAwareness...

YOD‑SIG is hosting its first 2026 webinar on 12 March, 12:30–1:30pm AEDT. Let us Grow explores how creative and inclusive activities can support people with young onset dementia to live meaningful, connected lives. Register: events.humanitix.com/let-us-grow-... #YOD #dementia

Let us Grow: Life, Creativity and Connection

Attend this free webinar for insights from people who have living experience with young onset dementia and how they challenge themselves to live their best life

events.humanitix.com

We’re pleased to share the personal story of Siân Jarrett. Her generous philanthropy has been instrumental in supporting the provision of speech therapy to so many through FRONTIER’s Speech Pathology Clinic, the PPA Communication Project. go.sydney.edu.au/aenRtO @brainandmindcentre.bsky.social

Finding Voice Through Loss: how a gift is empowering dementia care

A widow’s gift to the Brain and Mind Centre is supporting vital communication therapy for people with Primary Progressive Aphasia, transforming personal loss into lasting impact for dementia care and ...

go.sydney.edu.au

Some behaviors related to FTD can lead to unexpected interactions with the criminal justice system. This month’s Quick Question asks whether you or your loved one have experienced this. Share your voice: ftdregistry.org/quick-questi... #endFTD

Professor Eneida Mioshi and her team at @uniofeastanglia.bsky.social (UK) are developing a free, online intervention designed to support family carers of people living with #frontotemporaldementia (FTD). To participate or learn more about the program, visit ftdtoolkit.org #endFTD

📣 The ABI Communication Lab is excited to invite you to our next Sydney Aphasia Social Group event! 💬 🗓 Tuesday, 24 February 2026 ⏰ 11:00 AM – 1:00 PM 📍 Level 4, Susan Wakil Health Building, The University of Sydney 👉 Register here: events.humanitix.com/sydney-aphas...

Congratulations to Jane Dean on being named the 2026 Snowy Valleys Citizen Achievement Award! Jane, Stephen, and their family have made an extraordinary contribution to raising awareness and funds for #FTD research within the Tumut community. #endFTD www.snowyvalleys.nsw.gov.au/News-Media/S...

Snowy Valleys Council 2026 Australia Day Awards Announced

The 2026 Snowy Valleys Council Australia Day Award recipients were announced at a special dinner ceremony held on Saturday 24 January, with invited finalist nominees joining Councillors and dignitarie...

snowyvalleys.nsw.gov.au

New paper by @samuelwarren.bsky.social and colleagues, Modeling contributions of cognition and apathy to functional impairment in younger-onset dementia doi.org/10.1002/dad2... @alzdemjournals.bsky.social @muireannirish.bsky.social @brainandmindcentre.bsky.social @sydney.edu.au #endFTD

Modeling contributions of cognition and apathy to functional impairment in younger‐onset dementia

INTRODUCTION Overlaps in symptom presentation limits the capacity to predict functional impairment and future care needs in younger-onset dementia syndromes. METHODS A general additive model (GAM)...

doi.org

New paper by @lauradewitte.bsky.social & Candy Cheung Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach doi.org/10.1080/1360... @muireannirish.bsky.social @tandfresearch.bsky.social @brainandmindcentre.bsky.social @sydney.edu.au

Understanding the multifaceted nature of quality of life in dementia using a transdiagnostic network analysis approach

Efforts to improve quality of life (QOL) in dementia depend on its accurate conceptualization and assessment. We employed a data-driven network approach to examine the structure of relationships be...

doi.org

GemVax & KAEL report positive safety and tolerability data for its Phase 2 trial for GV1001 in people with #PSP. The trial also showed some potential efficacy for the drug to slow disease progression. ➡️ Click here to learn more: https://bit.ly/44qUxcM

Our 2025 group photo. Big smiles, big plans for the year ahead. #frontotemporaldementia #primaryprogressiveaphasia #ftd #ftld #ppa #endFTD @brainandmindcentre.bsky.social @sydney.edu.au

The #UniversityofSydney SPEECH Clinic is now taking on clients interested in the 10-week convers-ABI-lity program! The SPEECH Clinic will be taking on new adult clients and will be offering assessment and treatment sessions. If interested, please reach out to petra.avramovic@sydney.edu.au

The Nature Partner Journals Dementia are looking for essays from clinicians and researchers who have experience with all forms of Dementia. The essays will be collated together to create "The Human Connection". Learn more here: ow.ly/9yrK50XAyH1 #researchers #journal #essays #personalexperiences

We’re deeply grateful to #DementiaSupportAustralia and #AFTDA for creating Carer Conversations, a lifeline for people across Australia who are supporting someone living with #frontotemporaldementia. www.dementia.com.au/resource-hub... #endFTD

Irene and Lottie find the right support at a challenging time

Irene and Lottie find essential support and resources through Carer Conversations to navigate the challenges of caring for a loved one with Frontotemporal Dementia.

dementia.com.au