I am heartbroken to report that my sweet son James Strazza left us on May 4, 2026. His third book, Lowcountry: For the Eyes of the World, will be published in time for Severe ME week in August. I will post excerpts from it until then.

Poor #MEcfs care in Sweden contributes to patients committing suicide At least 10,000 Swedish people with ME are bedridden and unable to leave their homes. There are many who are so sick that they see no other option but to take their own lives. www.altinget.se/artikel/sver...

Sveriges usla ME-vård bidrar till att patienter begår självmord

Minst 10 000 ME-sjuka svenskar är sängbundna och kan inte lämna sina hem. Det finns många som är så sjuka att de inte ser någon annan utväg än att ta sitt liv. Det skriver Jenny Lundgren, förbundsordf...

altinget.se

Beautifully written by @drjogreer.bsky.social a Mum caring for a daughter with severe ME.

'The Red Tree' and M.E. - One leaf at a time

Images used with kind permission from Shaun Tan

theredtreeandme.substack.com

Excerpt from my forthcoming memoir about severe ME: meglobalchronicle.wordpress.com/2024/12/06/t...

The Dark and Silent Abyss

How do you care for someone when light and sound cause pain? This week’s post comes from Galen Warden, whose adult son, James, has Very Severe ME. Like many with ME, he suffers from hypersensitivit…

meglobalchronicle.wordpress.com

In case you’re wondering whether you have ME, or whether your long COVID has progressed to become ME, here is a fantastic short explanation from the Bateman Horne Center. #mecfs #longcovid #myalgicencephalomyelitis How to diagnose ME youtu.be/8LXIXx7woCo

The Basics: Diagnosing ME/CFS

YouTube video by Bateman Horne Center

youtu.be

Newsweek: 'Map Shows US States With Highest Levels Of Long COVID' 'Around 400 million people worldwide are believed to have long COVID, and 17.8 million of those are in the U.S., according to medical journal JAMA.' www.newsweek.com/map-shows-us...

Map shows US states with highest levels of Long COVID

Worldwide, the condition is estimated to have an annual economic impact of approximately $1 trillion, around 1 percent of the global economy.

newsweek.com

The History of ME. How a serious physical disease was hijacked by powerful influential psychiatrists leading to neglect and abuse of an entire patient population. Deaths. Collusion with government. A story that urgently needs telling. #ME #MECFS #LongCovid #journalists medium.com/@abrokenbatt...

ME/CFS Scandal Explainer

https://youtu.be/e0FNw0z3PVw

medium.com

Encephalogirl has published a chapter from my forthcoming book to educate about Severe Myalgic Encephalomyelitis. #myalgicencephalomyelitis #severeme #severemecfs open.substack.com/pub/encephal...

Galen & James, a life of very severe ME

Caregiver and advocate, Galen's upcoming book shares it all

open.substack.com

My son James with #verysevereME is doing poorly. We’ve begun communicating with hand signals assigned to just a handful of his needs. My little sister is visiting me now, which gives me an emotional lift. Here we are walking my dog and cat in Sunday.

Learning Bluesky. My first video post.

Is there a group here of people with Severe or Very Severe ME? I’d like to follow it, if so.