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Binita Kane

@binitakane.bsky.social

Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25 Website: https://thelongcovidclinic.co.uk Linktree: https://linktr.ee/binitakane

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Kit Yates@kityates.bsky.social · last mo.

You Don't Know What You're M ss ng is out. It's about how the information we use to understand the world contains gaps and how those gaps are important. If you've enjoyed reading my stuff on this site, do me a favour and get yourself a copy:

You Don't Know What You're Missing: The science of what’s lost, and how to find it : Yates, Kit: Amazon.co.uk: Books

You Don't Know What You're Missing: The science of what’s lost, and how to find it : Yates, Kit: Amazon.co.uk: Books

amazon.co.uk

Long Covid Kids@longcovidkids.bsky.social · 2mo ago

👀 ‘You're not imagining it.' 🗓️ Wednesday 22nd July 2026 We are pleased to support this hopeful and practical online conversation hosted by Asma Yunus, with Dr @binitakane.bsky.social & Dr Sanjay Gupta, as part of #SouthAsianHeritageMonth @sahm-uk.bsky.social www.eventbrite.co.uk/e/youre-not-...

You're Not Imagining It — Long COVID, ME & other invisible illnesses

Free online event bringing leading clinicians for a practical and hopeful conversation about Long COVID and other invisible illnesses

eventbrite.co.uk

Binita Kane@binitakane.bsky.social · 3mo ago

It was a pleasure to meet with Tracey Williams at the Welsh Government offices in Cardiff to discuss the possibility of all-Wales service for ME. With her background in nursing, Tracey truly ‘gets it’ and the conversation was refreshingly honest.

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sarah boothby@swastrosarah.bsky.social · 3mo ago

#MEAwarenessMonth 🧵 by email this morning, "On Friday 1 May our lawyers issued our second letter before claim. Our challenge is in direct response to the Government's announcement on 24 March that it would not begin to consider NHS provision for severe/very severe ME before April 2027. 1🪡7

Binita Kane@binitakane.bsky.social · 3mo ago

Our new paper out today in Nature Comms, led by the amazing @profmarkfaghy.bsky.social Current status and future perspectives on the mechanistic And pathophysiological understanding of Long Covid www.nature.com/articles/s43...

Current status and future perspectives on the mechanistic and pathophysiological understanding of long COVID - Communications Medicine

Faghy et al., review the current literature on Long COVID pathophysiology, linking immune dysregulation, viral persistence, and vascular injury to enduring symptoms. They highlight evidence to guide f...

nature.com

Patient-Led Research Collaborative@patientled.bsky.social · 5mo ago

Op-ed out today in @thesicktimes.org from PLRC co-lead @leticiasaurus.bsky.social and @jencurtinmd.bsky.social on the #LongCovid Treatment Guide! “Too often, people with Long COVID hear… not much can be done for them at this point. We… believe it is a fallacy that hinders access to care”

A new aid in the doctor’s office: Introducing the Long COVID Treatment Guide - The Sick Times

Too often, people with Long COVID hear that since clinical research is still underway, not much can be done for them at this point. We at the Patient-Led Research Collaborative and RTHM Clinic reject ...

thesicktimes.org

@jencurtinmd.bsky.social · 5mo ago

So excited the #LongCOVID Treatment Guide is live! This has been over a year in the making working with the incredible team at @patientled.bsky.social! Thanks to everyone who reviewed & gave feedback on the guide! We really hope it helps the #IACC community!

Patient-Led Research Collaborative@patientled.bsky.social · 5mo ago

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

Tom Kindlon@tomkindlon.bsky.social · 5mo ago

HLTH Chat Podcast Episode 8: Treating ME and Long Covid with Dr Binita Kane @binitakane.bsky.social m.youtube.com/watch?v=pk00... Screenshot from Science for ME weekly update #LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

UK HLTH Chat Podcast Episode 8: Treating ME and Long Covid with Dr Binita Kane “In this episode of HLTH Chat, we talk to Dr. Binita Kane, a consultant respiratory physician and founder of The Long Covid Clinic, about the immense challenges of treating chronic post-viral illnesses and the realities of establishing a specialist independent service.” “We explore why so many patients with Long Covid and ME/CFS feel abandoned by the current healthcare system, and how Dr. Kane’s personal experience with her daughter’s illness drove her to leave a 25-year NHS career to fill a critical gap in care.” “and why international research investment is a vital beacon of hope for millions.” Video | Thread
Tom Kindlon@tomkindlon.bsky.social · 5mo ago

I haven't watched this myself so far but have been generally impressed with media interviews Dr. Binita Kane @binitakane.bsky.social has done www.youtube.com/watch?v=pk00... #LongCovid #MEcfs

Binita KaneBinita Kane • 1stVerified • 1st Consultant Respiratory Physician | Special interest in Long COVID and ME | Founder of The Long COVID Clinic | Co-Founder of South Asian Heritage Month | Diversity Power list 2024/25 | Member of Independent SAGEConsultant Respiratory Physician | Special interest in Long COVID and ME | Founder of The Long COVID Clinic | Co-Founder of South Asian Heritage Month | Diversity Power list 2024/25 | Member of Independent SAGE 2h • 2 hours ago • Visible to anyone on or off LinkedIn Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe Long COVID and Myalgic Encephalomyelitis (ME). Despite hundreds of thousands affected, to this day, there are no commissioned NHS services for those at the severe end of the spectrum - though patient advocates, charities and some MPs are working hard to change this. The transition to the independent sector was never in my life plan - it happened organically. I am very grateful to HLTH Compliance for inviting me onto their podcast to share my journey and experiences of setting up the clinic, which emulates a tertiary level specialist interdisciplinary service - with one important difference - my patients are all over the country and so are my team. My most severe patients are bedbound, tube-fed, have 24/7 full-time care and no regular NHS support outside of their GP (+ possibly a dietician). Here I talk about how it happened, my road to getting independent CQC registration, as well as the broader challenges of treating Long COVID and ME. Long Covid Kids Long Covid Support Karen Hargrave Action for ME Solve ME/CFS Initiative ME Association ME Research UK https://lnkd.in/esKihrD6 Episode 8: "Treating ME and Long Covid with Dr. Binita Kane" | HLTH Chat Podcast
Adam@abrokenbattery.bsky.social · 5mo ago

Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

Adam@abrokenbattery.bsky.social · 5mo ago

Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness. The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.

Adam@abrokenbattery.bsky.social · 5mo ago

Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness. The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.

Laura@laurajerramp.bsky.social · 5mo ago

Dr Benita Kane’s video series ‘Long Covid,What you can do’ on YouTube is fantastic for #MECFS too. Great combination of interviews with top international scientists with ideas, tips, support for patients. #longcovid youtube.com/@lccwycd?si=... Click on the ‘live’ header for the full video series:

The Long Covid Clinic: What You CAN Do

The Long Covid Clinic is a channel focused on what you can do if you have the condition. Presented by Dr. Binita Kane and Helen Oakleigh and with occasional guests.

youtube.com

Binita Kane@binitakane.bsky.social · 5mo ago

Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe #LongCOVID and Myalgic Encephalomyelitis (#ME). 🧵 youtu.be/pk00btt7CVs?...

Tessa Munt MP 🔶@tessamunt.bsky.social · 6mo ago

Savannah Victora-May has been in hospital for 11 months with severe ME; a dearth of specialist treatment has contributed to her situation. The Govt’s Final Delivery Plan committed to exploring a specialised service for very severe ME. *What* is happening to prevent more cases such as Savannah’s?

Tessa Munt MP 🔶@tessamunt.bsky.social · 6mo ago

We desperately need good data to make the case for ME to government. The Big Survey - designed with #pwME for #pwME will be a great help. If you've got ME or ME-like symptoms as part of long Covid, do consider taking part. But, remember that the Big Survey closes tomorrow, Tuesday. 👍🏾

Action for ME@actionforme.bsky.social · 6mo ago

⌛ The Big Survey closes tomorrow! Your responses directly shape our work and help us to illustrate the impact of ME. If you're thinking about taking part, please do. 🔗 Take part today: www.actionforme.org.uk/research-cam...

Karen Hargrave@karenlhargrave.bsky.social · 7mo ago

Today James turns 39 🎈 It’s a hard day for us both, but also a time to think about how, despite the challenges, I’m so lucky to have had this wonderful man in my life for the past 12 years. In lieu of gifts we’ve been raising money for Edinburgh University’s ME research 👨‍🔬

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Clean Air Classrooms #CleanAirForLife@cleanairclassrm.bsky.social · 8mo ago

FLU is in the AIR 🇬🇧 schools " We haven't done anything different. ...wash hands" 🤔 What lessons need learning from the pandemic? Give every child Every teacher Family Healthcare Workers #CleanAirIndoors #Ventilation #AirFiltration Wear a respirator youtu.be/WxEssOeEsVk?...

Indoor air systems crucial to curbing spread of viruses, aerosol researchers say | 60 Minutes

YouTube video by 60 Minutes

youtu.be

Clean Air Classrooms #CleanAirForLife@cleanairclassrm.bsky.social · 8mo ago

#FluIsAirborne It's in the AIR @channel4news.bsky.social #CleanAirClassrooms #CleanAirHealthcare youtu.be/G__ch0-PdV0?...

David Osborn@safedavid3.bsky.social · 8mo ago

Brilliant article by Rebecca Thomas (the Independent): tinyurl.com/yksjxj5b and Victoria Macdonald (Channel 4 News): tinyurl.com/3dn8mwx5 They've covered the 'formalin scandal' brilliantly. #1/21 @channel4news.bsky.social @the-independent.com @vsmacdonald.bsky.social @rebeccasmt.bsky.social

Excellent report by Rebecca Thomas which exposes the scandal of continued use of formalin in healthcare, lax regulation by the HSE and widespread breach of the COSHH Regulations IMHO.
Channel 4 News@channel4news.bsky.social · 8mo ago

Former NHS and other lab workers have been left disabled or forced to quit their jobs after they were exposed to levels of formaldehyde far exceeding accepted safe levels. Read our latest InDepth newsletter:

Harriet Carroll: Long Covid Scientific Consultancy@angryhacademic.bsky.social · 8mo ago

The final main thing @binitakane.bsky.social and I discussed in our YouTube chat 👇 was appetite. We were running out of time so we whizzed through a couple of points, but in this latest blog, I provide some more info: Appetite: lc-sc.co.uk/bodily-syste... 🧵

Appetite

Many systems are (potentially) affected in long COVID and the same symptoms can be explained by dysfunction in any one of them. This blog is about appetite.

lc-sc.co.uk

Long Covid Support@longcovidsupport.bsky.social · 9mo ago

Ep26 | Long COVID Clinic Fireside Chat with @binitakane.bsky.social & @helenoakleigh.bsky.social Hydration, Appetite & Blood Sugar in POTS 🗓️ Wed 5 Nov 18:00 GMT | 📺 YouTube Dr Binita Kane & @angryhacademic.bsky.social unpack low blood volume, thirst, “low blood sugar” sensations & hunger in POTS.

Promotional graphic for a YouTube livestream titled “Hydration, Appetite, and Blood Sugar in POTS.” On the left is Dr. Kane, and on the right is Dr. Harriet Carroll. Text below reads: “Dr. Kane talks with Dr. Harriet Carroll. LIVE: Wednesday 5th November 2025 18:00 (GMT).” Logos for The Long Covid Clinic and Long Covid Support appear in the center. Bottom banner reads: “The Long Covid Clinic – What You Can Do. YouTube @LCCWYCD.”