What are the characteristics and impacts of a patient-led conference? A qualitative study | BMJ Open bmjopen.bmj.com/content/16/6...

“Being a patient is a job - it’s like a full time job.” “It’s possible to be an insider and an outsider [if you’re a patient and a researcher].” - Zahra Sherwani #PxP25

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25

💜Thank you so much to Kwanele Asante for guiding our second day of PxP 2025 as the conference host, and to the incredible speakers for today’s sessions. 👏. Thank you for everything you shared – for your wisdom, honesty and practical examples for doing better research.

2/ Maalvika is also leading the first ever PxP India virtual session on August 30th 7:00 PM - 8:30 PM IST. More info and register: pxphub.org/event/pxp-in...

PxP India 2025 - PxP

We are grateful to the 2024 PxP Steering Committee for their guidance and expertise. All members of the Steering Committee identify as patient partners.

pxphub.org

PxP Steering Committee Member Maalvika Bhuvansunder shares a video on why PxP 2025 is meaningful to her and why you should join as well. Learn more about PxP 2025 here: pxphub.org/event/ #PxP25 #PatientEngagement #ForPatientsByPatients #PPI #PatientPartnership #HealthResearch

A steering committee entirely made up of patient partners and trainees has co-created the agenda for the Canadian Arthritis Summer School. Taking place virtually from June 3-5. Patient partners and trainees can learn more and apply here by April 28: bit.ly/CanadianArth...

Faculty Job: Delighted to share this call for Indigenous Applicants in Health, Sport, and/or Well-being bit.ly/4c8sbqh @hettymulhall.bsky.social

Making the case for clear language. Anna Samson @disabilitywithanna.bsky.social and I co-presented at a virtual symposium on the importance of clear/plain language. Our key points are beautifully summarised in this graphic recording by visual alchemist Candace Ramjohn.

⏰Free, virtual session on March 20th for all members of the #HealthResearch team. Learn about writing an effective narrative CV, how to apply #OpenScience principles, and frameworks to measure #ResearchImpact. Panelist biographies: cihr-irsc.gc.ca/e/54201.html ✅Register: zoom.us/webinar/regi...

📢 Weekend reading on power dynamics in #PatientEngagement in #Research. Preprint (that means not peer reviewed yet) from our team that includes #PatientPartners and research allies and is about 4 themes concerning power on #PPI teams - osf.io/preprints/os... A bit of a 🧵 for you .../1

⭐Webinar reminder! Join us tomorrow, February 5th. Find out how our panelists have navigated working as part of a research team, including what supports and facilitators they have asked for or created for themselves. #PatientEngagement #PatientPartners #PPI #PxP25

PxP (For Patients, By Patients)@pxphub.bsky.social · 2y ago

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research. 📅Date: February 5, 2025 ⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC 🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration #PatientEngagement #PxP

*Everyone* involved in health research can learn something important from this awesome panel on Feb 5th. Speaker biographies are available here: pxphub.org/event/webina...

PxP (For Patients, By Patients)@pxphub.bsky.social · 2y ago

Sign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research. 📅Date: February 5, 2025 ⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC 🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration #PatientEngagement #PxP

Stay tuned over the next couple days. Will be putting out some information on a webinar we’ll be putting on in late January called, “Defining the Scope: Developing Mindful Lived Experience Partnerships for Health Research Ecosystems in an Era of Misinformation” #PatientEngagement

New Blog by Oluwafemi Ajayi available on the PxP Resource Hub. Oluwafemi discusses the importance of patient engagement in African health research, sharing her personal experience with sickle cell disease. 🔗 pxphub.org/a-clarion-ca... #PxP #PatientEngagement #HealthResearch

One of my ongoing projects with more to come in 2025!

SPORAlliance@sporalliance.bsky.social · 2y ago

This week, we are highlighting the patient-driven project, Biologics and Biosimilars for People with Rheumatoid Arthritis (RA). This review will summarize the evidence regarding the efficacy of biologic and biosimilar therapies for RA. Learn more here: sporevidencealliance.ca/projects/bio...

Compensating patient partners on #PatientEngagement teams is about equity. @kwaneleasante.bsky.social wrote this powerful piece about renumeration of African patient partners being about health justice www.bmj.com/content/387/.... Pls take a few mins to learn from this global patient leader

Remuneration of African patient partners is an important tool for health justice

Consistent and fair remuneration is essential to empower African patient partners to contribute to health decisions and policies that affect them, writes Kwanele Asante Global calls for patient part...

bmj.com