Day 5 of #ProjectLead2025 with @nbccstopbc.bsky.social The preso I’ve been waiting for! TY Sara Hurvitz from @fredhutch.bsky.social for laying out the good/bad/ugly of clinical trial design. Sh*tty Surrogate Endpoints, I’m coming for you! #metastaticbc #breastcancer

Brief bsky pause to tie up loose ends in life! Today, a new chapter. Starting this AM with cell bio review next to open air fire and awaiting g start of #ProjectLEAD with @nbccstopbc.bsky.social 5 days of INTENSE science edu & advocacy. My idea of a good time! #mbc #breastcancer #OOTD deets in 🧵

I’ll be there! Join me at People’s Town Hall 7th CD with special guest Sen. Elissa Slotkin midems.controlshift.app/events/7th-c...

People’s Town Hall 7th CD with special guest Sen. Elissa Slotkin

Join us for the People’s Town Hall in Michigan’s 7th Congressional District with Senator Elissa Slotkin and Congresswoman Kristen McDonald Rivet on Friday, June 6th to tell your stories about how you ...

midems.controlshift.app

NEW: Fresh off announcing his departure for the University of Florida, outgoing University of Michigan President Santa Ono has had his name removed from the American Assoc of Colleges and Universities academic freedom letter he signed barely two weeks ago. talkingpointsmemo.com/edblog/outgo...

Outgoing UMich Prez Santa Ono Pulls His Name from Academic Freedom Letter

Over the weekend University of Michigan President Santa Ono announced that he...

talkingpointsmemo.com

We just learned that Congresswoman Kristen McDonald Rivet is a YES! On #HR2408 Metastatic Breast Cancer Access to Care Act. Thank you, Congresswoman McDonald Rivet, for caring about the lives of patients with MBC. #NBCCSummit #cansky #metastaticbc #breastcancer

@michigandems.bsky.social so proud to be represented by these powerful Congresswomen from Michigan. Thank you, @scholten.house.gov @reprashida.govpeeps.us @debbiedingell.house.gov @rephaleystevens.bsky.social for co-sponsoring #HR2408 #NBCCSummit

#OOTD hitting the Capitol to fight for passage of #HR2408 Metastatic Breast Cancer Access to Care Act, and preservation of Medicaid & cancer research $ with #NBCCSummit With research dollars evaporating with every Sharpie stroke, we’re fighting for our lives. #metastaticbc #breastcancer

Important #NBCCSummit session: With America at an inflection point, we’re discussing how advocates can push back on threats to science and healthcare. #NBCContheHill

Mitten Represent! A mighty team from across Michigan ready to rumble to end breast cancer #NBCCSummit

#OOTD at #NBCCSummit being interviewed by the amazing Rokia, who is the strategic brain behind @nbccstopbc.bsky.social. I LOVE that this org is spending resources gathering the voices and faces and lived experiences of BC patients, including me. Pantsuit: Trina Turk Scarf: vintage

Medicaid Warriors! Top tip from #NBCCSummit on responding to a Congressional reps who says: “I’ll not touch Medicaid” “Show me your math: how will you do it w/out decreasing enrollment, decreasing coverage, or decreasing reimbursement to Drs? How do YOU make the numbers work?” Then wait.

#NBCCSummit Amazing talk by Dr. Ian Tannock on asking critical questions about clinical trials. What jumps to me is the increase in using progression-free survival as a clinical outcome instead of overall survival. Tannock argues that PFS is very vulnerable to bias. Why? Follow🧵1/2)

AMAZING first day at #NBCCSummit. Deep dive on breast cancer mortality rates across 2 sessions drive home where research is heading—looking BOTH at genetic/biological factors as well as place-based factors to more effectively treat AND hopefully prevent BC. Thank you @nbccstopbc.bsky.social #OOTD

Dr. Melissa Davis's work on impact of ancestry at genetic level adds important level of complexity to the breast cancer disparity conversation between Black and White patients. Bottom line--its not ALL about SDH.Her team is looking at biological factors interacting with SD factors. #NBCCSummit 1/2🧵

Don't miss the next ECLC webinar by Christine Desmedt, PhD on Opportunities of post-mortem tissue donation programs to advance metastatic cancer research - May 19th, 2025 - USA: 11:00 AM EDT | Europe: 17:00 PM CEST | Australia: 01:00 AM AEST - Register here us02web.zoom.us/webinar/regi...

Wheels up for #NBCCSummit and just discovered that another advocate, Sabrina, is directly behind me! Ready to learn, be inspired, and raise a little good trouble. Michigan is ARRIVING 🥰

Who else is too excited to sleep?! 15 hrs til @nbccstopbc.bsky.social Leadership Summit begins! 12 hr days of science, advocacy and activism—aka, what I live for! (Really). 👠👠 Unite to End BC Rally on 5/6. See you there 😘 MANY #OOTD pics coming bcz #cancersochic #cancersky #metastaticbc #mbc

www.greyhound.com/warrantless-...

@blackforager.bsky.social just finished a BRILLIANT talk that wove together racism, colonialism, the death of inherited knowledge re: the natural world, landscape snacks, and the inherent destructiveness of the #MAHA agenda in 90 min. AMAZING! Also, her #OOTD with the crop hoodie? 👌🏻 #artinbloom #CAM

The shoe for the job! Heading to DC in 10 days to join @nbccstopbc.bsky.social for the Unite to End BC Rally & lobbying. Bringing voices of #metastaticbc to Congress. Join me! Can’t come? What do you want me to tell our reps? #cansky #mbc #breastcancer #cancersochic #metavivor @fluevog.bsky.social

I mourn every dedicated public scientist who is forced make this career- and life-altering decision. And ready to fight like hell to keep as many people off the brick wall as possible.

Selene@selenemsc.bsky.social · last yr.

“I can no longer, in good conscience, be a part of or lend any kind of support to what I see as increasingly strenuous efforts to comply with each and every immoral and often illegal directive being sent to the National Institutes of Health from the Executive Office of the President.”

Stand up for breast cancer priorities! On our #LobbyDay, join NBCC advocates, members of Congress, and others to support science, research, health care, and policies to end breast cancer at the US Capitol Grounds on May 6, at 9am! nbcc.info/BreastCancer...

Chemo chair thoughts about cuts to the FDA @altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc 1/2 🧵

Chemo chair thoughts about cuts to the FDA @altfda.altgov.info @altcdc.altgov.info @altnih4science.bsky.social @um-ihpi.bsky.social @metavivor.bsky.social @nbccstopbc.bsky.social @cansky.bsky.social #breastcancer #metastaticbc 1/2 🧵

🫶🏳️‍🌈🏳️‍⚧️🤝 Underrepresented folks are often called upon to: 1) serve in positions to improve DEI 2) pursue DEI-related fellowships/awards These folks could have chosen not to heed our call. @umich.edu- How will we ensure that they remain employed and supported at UM? That their service is honored? 💙💛💔

Detroit Free Press@freep.com · 2y ago

BREAKING: The University of Michigan is closing its Office of Diversity, Equity and Inclusion, a major retreat for a school that has long championed its progressive values.

Chemo #OOTD. Major progress in bones so back on infusion Tx.2 things I’m calling/emailing while hooked up:1. MBCAC Act. Introduced 3/17 shorturl.at/d1xOR 2. Hands off SSDI/Medicare @nbccstopbc.bsky.social @metavivor.bsky.social #MBC #cancersochic #metastaticBC #cansky #stage4BC Deets in alt id.

Yesterday, @debbiedingell.house.gov & Gov. Whitmer convened a roundtable of experts on #Medicaid at the Univ. of Michigan's C.S. Mott Children's Hospital. Some of what they all said: www.mlive.com/politics/202... (Gift link to @mlive.com story)

Whitmer, Dingell sound alarm about potential Medicaid cuts, what it means for Michigan

“Too many people do not understand what the impact will be on our children, our seniors, our people with disabilities if they cut Medicaid,” said Dingell, D-Ann Arbor.

mlive.com

My #OOTD for a #groundswell2025 virtual meeting on behalf of @metavivor.bsky.social with @slotkin.senate.gov health legislative team. Thank you, Andrew and Savannah for investing time in the #metastaticbc community. The agenda: preserve fed research $; increase QoL for MBC folx. deets in alt text

Heya #breastcancer peeps--Let’s be bold and cause some good trouble together! Join me & other advocates uniting to end breast cancer at NBCC’s 2025 Advocate Leadership Summit and Lobby Day! Already planning my #OOTD looks for the halls of power 👠 nbcc.info/LeadershipSu... @nbccstopbc.bsky.social

2025 Advocate Leadership Summit - National Breast Cancer Coalition

Register to attend the National Breast Cancer Coalition's Annual Leadership Summit in Washington, DC in May 2025.

nbcc.info

James Baldwin's words ring in my ears: "“There is never time in the future in which we will work out our salvation. The challenge is in the moment. The time is always now.” Thank you, @sifill.bsky.social Last week: New scans, progression. Today: New treatment, meeting with @slotkin.senate.gov

Alt CDC (they/them)@altcdc.altgov.info · 2y ago

“Sometimes when the game is fixed, you have to overturn the tables.”