Ian
@ipilko.bsky.social
Disability rights activist, talking hard to hear truth to power & holding them accountable. Warm polite nag, better w/caffeine. Vale octogenarian 4ever stubborn
I’ll be quiet here for a bit. Had something happen in the past week. Seeking professional support assistance. I put myself out there as a Justice of the Peace (JP) for a number of communities. I’m human and it’s not without significant personal impact on me.
I'm human, I volunteer as a justice of the peace (JP), something happened this morning, and I'm hoping the council I was volunteering for has a volunteer equivalent EAP.
Struggling to manage my pain, utter complete exhaustion layered with extreme fatigue. Well beyond tears on the pain scale. This is a multi day flare up.
Looking like I need to move here from The bad place, gosh it REALLY has become a cesspool especially in the last few hours/days. “Freedom of speech” if views aline with platform owner….
on my soapbox again, "Before sending this feedback, I have read your Community Engagement Plan 2025/26 and remind you of your action plan item of inclusion."
Well well well! I’ve been asked if I’m media trained….. well now I actually am! (Apparently i presented in a recent interview as media trained, until today i wasn’t formerly!!!) Watch this space…
So I've finally been able to download my first ever #NDIS forplan from myndisportal. The plan has been written and funded as per the meeting. I am lost of words, that and I can't see from the tears of relief streaming downn my face. Absolutely life changingg.
I have a complicated few days ahead. I’m already having unhelpful trauma/ptsd flash backs. Critical (crunch point) is Saturday afternoon/night. I may or may not post/share, focused on pure survival…
Heading home in tears from the absolute disaster of an evening. Worst accessibility cumulative personal experience anywhere in the world.
You know you've online shopped hard, when Startrack send you a truck with a powered tailgate and the truck reverses in!
Only ever had HFC/FTTN @NBN_Australia until a few days ago when I upgraded to "full fibre" #FTTP the low latency of fibre is amazing, the additional speed to handy, but the responsiveness of #EVERYTHING# is impressive. Finally giving my full @Ubiquiti #UNIFI #UDMPRO a solid workout!
Massive day ahead tomorrow going to “suit up” with a neck tie,‘I’ve narrowed it down to these….
"Desserts, Sewing, Business, Management" Did you set this up @liangrhea.bsky.social spotted in @rundlemall #Adelaide #Library #CityOfAdelaide
Got myself stuck in a shopping centre/area I’m not familiar with. Managed to get some over the counter support from a pharmacy but yikes…
Had someone recently mention in relation to personal energy/capacity “I’m running on fumes” my only thought of what comes next? I’m not running on fumes I’m looonnnggggg past that!
Took a decent tumble in the early hours of yesterday morning, I've got to find a better way of falling if that's what I'm going to keep doing. I can't sit right now due to pain, it's a pain in the arse! (literally!)
#movinghouse Starting to understand why I'm so mentally and physically beyond exhausted. Month to date, I've driven 1324.7km, not including taxis, plus the two hire-by-the-hour larger vehicles I've used. Ultimate juggling act with chronic health issues, which are made worse by "overdoing it" 1/
Anyone else a Desky fan? I’ve ordered a few samples to physically help me work out what to order. The far left is “Finish: Pheasant” the rest should be fairly clear. The decision fatigue is real, big few weeks ahead!
Very close to literally signing a miracle opportunity. Look forward to sharing the update when it’s actually real.
This seems quite ironically poetic, Would have been even more so had the wheels fallen off!
Don’t begin to think I’m immune to having IT issues. Bought a new label printer for the move and went a bit fancy and started off backfiring. Machine “auto detects” what labels you put in it, until it doesn’t.
