We were so delighted to have the opportunity to share our new tool, the Progressive Aphasia Communication Toolkit through the ASHA Stream! @ashajournals.bsky.social @uwdeptmedicine.bsky.social stream.asha.org/breaking-dow...

I'm delighted to share that the Progressive Aphasia Communication Toolkit (PACT) is out now: alz-journals.onlinelibrary.wiley.com/doi/10.1002/... This work was made possible by the 95 clinicians, researchers, people living with PPA, and partners who dedicated their time, wisdom, and resources.

The Progressive Aphasia Communication Toolkit (PACT): a strengths‐based approach to multidomain evaluation for intervention

INTRODUCTION Assessments of communication for people living with primary progressive aphasia (PwPPA) remain limited. This work describes the development of a strengths-based, ecologically valid inst...

alz-journals.onlinelibrary.wiley.com

📢 We’ve extended the deadline for the @icppa.bsky.social conference call for papers to *22nd January*! 🥳 Looking forward reading all your wonderful submissions! ✍️ Submit your abstract here: www.speechtherapyppa.com/icppa-confer... @jgallee.bsky.social @fernerodgers.bsky.social @rtslt.bsky.social

Only 15 days to get that abstract submitted for the 1st ever International Conference on Primary Progressive Aphasia @icppa.bsky.social Did you know Prof Gorno-Tempini is our keynote speaker? With Dr Chris Hardy & Dr Cathy Taylor-Rubin as invited speakers! www.speechtherapyppa.com/icppa-confer...

Delighted to share that our preprint on the Progressive Aphasia Communication Toolkit (PACT) is available now!! The PACT has integrated feedback from 95 clinicians, researchers, PwPPA, and care partners worldwide. More to come!! www.medrxiv.org/content/10.6...

The Progressive Aphasia Communication Toolkit (PACT): A Strengths-Based Approach to Multidomain Evaluation for Intervention

INTRODUCTION: Tools to document communicative ability in people living with primary progressive aphasia (PwPPA) are limited. This work describes the development of a strengths-based and ecologically-v...

medrxiv.org

Honored to be this year’s recipient of the National Aphasia Association Outdrive Aphasia PPA Grant! Even better to receive it alongside my (Bluesky-less) grad school partner-in-crime 😀! aphasia.org/naa-research...

International Conference on PPA Updates: The meeting will now be July 16-17th, just after #AAIC in London, UK. The Call for Papers is ready! Abstract submissions are due 1/15/2026. tinyurl.com/ICPPACall #ICPPA2026 #PPAResearch @annavolkmer.bsky.social @icppa.bsky.social

Goodall transcribes field notes by lamplight in Tanzania’s Gombe Stream National Park c.1960

“The report’s main point is surprisingly simple: people living with #dementia can still set goals, learn strategies, and adapt their lives with the right support … #rehabilitation is about focusing on what a person can still do and helping them do it for as long as possible.” #slpeeps #cog-comm

Dementia Who!@dementiawho.bsky.social · 12mo ago

Today World Alzheimer’s Day 2025 is about #askboutdementia, so I wanted to share my thoughts on the new World Alzheimer Report 2025 about Rehabilitation. Why it matters for caregivers & the questions we should be asking. #dementia #caregivers

Very proud to share my first investigation of components of verbal expression in early-onset and late-onset Alzheimer’s disease dementia, with important clinical implications for communication care in these popularions alz-journals.onlinelibrary.wiley.com/doi/10.1002/...

Facets of language performance in early‐onset and late‐onset Alzheimer's disease dementia

INTRODUCTION Early-onset Alzheimer's disease dementia (EOAD) is characterized by more pronounced cognitive decline than late-onset AD dementia (LOAD). Characteristic performance in spoken language r...

alz-journals.onlinelibrary.wiley.com

There’s still time to register! Join us on 9/25 for The Lived Experience with FTD: The Road to an FTD Diagnosis & hear stories from our community about the challenges, resilience, & lessons found on the journey to an FTD diagnosis. 💻 Save your spot: https://bit.ly/3JLiqUL Sponsored by AviadoBio

I am so honored to have received the Distinguished Scholar Award from the Tavistock Trust for Aphasia. Thank you to my team and colleagues for making it possible!! mednews.uw.edu/news/Gall%C3...

What an amazing day! Webinars in UK, USA, France, Greece, Italy & Canada to celebrate the 1st PPA awareness day Thank u to all contributors! @mayalhenry.bsky.social @jgallee.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social @ppaphasiaawareness.bsky.social

Today is the first ever Primary Progressive Aphasia (PPA) awareness day! Tune in live for the US-based webinar here: aphasia.org/event/intern... Recorded versions here: speechtherapyppa.com/ppa-awarenes... #PPAawareness @mayalhenry.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social

#PPAawareness day is here! 🙌🏻 motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @annavolkmer@bsky.social & @dyscoveraphasia

The inaugural international PPA Awareness Day is coming up!! We are so excited to share our webinar with you and are grateful for the National Aphasia Association’s support.

Maya Henry@mayalhenry.bsky.social · last yr.

The inaugural International PPA Awareness Day is this Friday April 4th! Join a webinar hosted by the National Aphasia Association. aphasia.org/event/intern... @ppaphasiaawareness.bsky.social

2-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... This wk we are sharing another podcast, this time created with student speech & language therapists abt the UCL PPA clinic: podcasts.apple.com/gb/podcast/e... #PPAawareness @ppaphasiaawareness.bsky.social

4-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Why is speech and language therapy important for people living with PPA? We asked people with PPA, families and professionals. Watch our video abt it! #PPAawareness @ppaphasiaawareness.bsky.social

PPA awareness

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5-weeks till PPA awareness day 4 April! Webinar link: speechtherapyppa.com/ppa-awarenes... Book launch at UCL for the 2nd Ed of our book - 16 international co-authors writing about PPA! 15% off J&R Press NOW at: www.jr-press.co.uk/product/asse... #PPAawareness @ppaphasiaawareness.bsky.social

Collaborative work led by Dr. Anna Volkmer - An international core outcome set for primary progressive aphasia (COS‐PPA): Consensus‐based recommendations for communication interventions across research and clinical settings alz-journals.onlinelibrary.wiley.com/doi/10.1002/...

An international core outcome set for primary progressive aphasia (COS‐PPA): Consensus‐based recommendations for communication interventions across research and clinical settings

INTRODUCTION Interventions to treat speech-language difficulties in primary progressive aphasia (PPA) often use word accuracy as a highly comparable outcome. However, there are more constructs of im...

alz-journals.onlinelibrary.wiley.com

A tremendous endeavor: sign up today! I am very much looking forward to being in the virtual audience!

Primary Progressive Aphasia Awareness@ppaphasiaawareness.bsky.social · 2y ago

Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025! Webinar sign up: speechtherapyppa.com/ppa-awarenes... Follow for updates: @ppaphasiaawareness.bsky.social @annavolkmer.bsky.social @rosemary-townsend.bsky.social #PPAawareness