Janis McCulloch
@justjanis1.bsky.social
Head of Campaigns at Myeloma UK. Mum, volunteer, new to running, always busy.
This week is #Myelomaawareness Myeloma is often slower to diagnose due to vague symptoms. This tool from Myeloma UK can help talk about symptoms. Share it with colleagues too to help raise awareness. www.myeloma.org.uk/wp-content/u... #myelomasware @ukons.bsky.social @myelomauk.bsky.social
I had constant chest infections. They’d clear up for a little while then return."⚠️ Carly's symptoms of constant infections and fatigue were shrugged off repeatedly. Share this to raise awareness of the myeloma warning signs. ⚠️ #MyelomaAwarenessWeek #MyelomaWarningSigns youtu.be/Zqhb019gR9Y?...
Carly's story | Myeloma Awareness Week 2025
YouTube video by Myeloma UK
youtu.be
Many people living with myeloma experience symptoms for months or even years before receiving a diagnosis. Fatigue that won’t go away, recurring infections and unexplained pain are just a few of the warning signs that are often overlooked. ⚠️ #MyelomaWarningSigns www.youtube.com/watch?v=wV8y...
Myeloma Awareness Week 2025 - Why it's so important to know the warning signs of myeloma
YouTube video by Myeloma UK
youtube.com
Incredible news this morning that people with myeloma in England will be able to get this treatment. www.bbc.co.uk/news/article...
Cancer: World-first 'Trojan horse' therapy to be given on NHS
It sneaks toxic drugs inside cancer cells to hit them hard while minimising side-effects.
bbc.co.uk
This graphic... wow
Science Magazine@science.org · last yr.In a new Science study, cryo–electron tomography captures the in-cell architecture of the mitochondrial respiratory chain, illuminating how the coordinated action of molecular machines drives life’s fundamental energy conversion. Learn more in this week's issue: scim.ag/3FA3Ygq
So proud to launch this video today that talks about the incredible work of @myelomauk.bsky.social and why we do what we do. Please do share. #myeloma youtu.be/1z5kc6PQndY?...
We Are Myeloma UK
YouTube video by Myeloma UK
youtu.be
Access to life-changing treatments should never be about the ability to pay. That's why @myelomauk.bsky.social have joined forces with our supporter Jason to call for CAR-T cell treatments to be available on the NHS for people with myeloma. www.bbc.co.uk/news/article...
Call for blood cancer treatment to be available on NHS
Clinical trial patient Jason Johnson is calling for a treatment that worked on him to be made available.
bbc.co.uk
Prof Martin Kaiser (@mymkaiser.bsky.social) who led the study, says: “We would like all myeloma patients to be able to access the newer diagnostic tests which enable clinicians to group individual patients based on their risk profile and provide treatment that is tailored to their needs.”
Today Myeloma UK joined 50+ cancer charities as #OneCancerVoice, calling on the UK Government to fully fund the National Cancer Plan and improve care for those affected by cancer. #myeloma
Going for a blood test, waiting for results and then trying to make sense of the results can be extremely worrying. Our latest Ask The Nurse blog looks at some of the questions we get about blood tests. #myeloma #myelomasky www.myeloma.org.uk/library/ask-...
Ask the Nurse: Blood tests in myeloma
myeloma.org.uk
At the Oxford Myeloma Workshop last week, Karthik Ramasamy provided insight into the RADAR trial investigating risk & response-adapted therapy following autoSCT in transplant-eligible pts with newly diagnosed #MultipleMyeloma. Watch here: 👉 https://buff.ly/40OgEHv #MMSM #Myeloma #BMTsm #CTSM
Myeloma UK was at #ASH2024 here's some of the things we learned and how it will impact our work going forward. www.myeloma.org.uk/news/ash2024... #myelomasky #myeloma #MGUS #SmoulderingMyeloma
ASH2024 reflections: Advancing myeloma research
myeloma.org.uk
At Myeloma UK we're often asked about treatments and clinical trials for new drugs in the UK. A drug called selinexor (Nexpovio®) is one of the latest treatments to be approved. In this month's blog, we tell you more about selinexor and how it works. #myeloma www.myeloma.org.uk/library/ask-...
Ask the Nurse: Selinexor
Find out more about a new anti-myeloma drug called selinexor from our Myeloma Information Specialists in this month's Ask The Nurse blog.
myeloma.org.uk
Our session on cancer evolution is chaired by Dr Elise Rees and Prof @ciccarellilab.bsky.social. @kanefos.bsky.social has presented his work on the blood-cancer immunity cycle: learning from multiple-myeloma disease evolution.
Absolutely lovely first day back in the office chatting to @drscottarthurmp.bsky.social about his Private Members Bill for rarer cancers and all things early diagnosis and access to treatments. #myeloma
🎅 The Saughton santa? Every year, prison officer Colin O’Flaherty ensures the children of inmates at HMP Edinburgh have a present to open at Christmas: www.scotsman.com/news/scottis...
The big-hearted 'Saughton Santa' prison officer who collects Christmas gifts for inmates' kids
Colin O’Flaherty has been running the scheme for more than two decades
scotsman.com
Officially out of office until 2025. Bring on the wrapping, running and festive feels. I love this time of year so much.
a man in a green elf costume is standing in a hallway with his mouth open and screaming .
Alt: a man in a green elf costume is standing in a hallway with his mouth open and screaming .
media.tenor.com
I will never understand the LinkedIn algorithm. Why are you showing me updates from 3 weeks ago
dory from the movie finding nemo is standing in the water and looking at the camera .
ALT: dory from the movie finding nemo is standing in the water and looking at the camera .
media.tenor.com
Is there a starter pack floating around with journalists/ news outlets.
Trying to take a pretty bridge picture in winter means a lovely reflection from the glass 🤣
In the last six months, our network provided 1.4 MILLION food parcels. This shouldn't be happening. Everyone should be able to afford essentials like food, toiletries and heating.
Joseph Rowntree Foundation@jrf-uk.bsky.social · 2y agoLatest research from Oct finds around 7 million low-income households are still going without essentials. 📢 This number has barely moved for three years. 5.4 million low-income households said they were unable to afford enough food in the past 30 days. www.jrf.org.uk/cost-of-livi...
The absolute frustration of trying to rearrange appointments.
Sharon Brennan@sharonbrennan.bsky.social · 2y agoAt National Voices we talk a lot about patient admin and many people ask what we mean and why patients who don't cancel appointments shouldn't be charged, so here's a thread on my attempt to cancel an appointment. I was offered an appointment for 30 December - I am away so can't make it. so.... 1/4
So pleased to see the Royal Sussex County Hospital receive recognition for their dedication. John McEvoy who is living with #myeloma said "If not for my team and my wife I would not be here." www.bbc.co.uk/news/article...
Brighton: Royal Sussex County Hospital awarded for myeloma care
Staff at the Royal Sussex County Hospital
bbc.co.uk
Welcome to this OncoAlert Session Round Up during #ASH24 Todays Round up is on Multiple Myeloma focusing on Advancing Minimal Residual Disease or MRD, on detection, impact on prognosis and treatment decisions Transcript found on YouTube link
OncoAlert Session Round Up at #ASH24 in Multiple Myeloma: Advancing Minimal Residual Disease (MRD)
Welcome to this OncoAlert Session Round Up during ASH24Todays ROund up is on Multiple Myeloma focusing on Advancing Minimal Residual Disease or MRD, on detec...
buff.ly
Dr Charlotte Pawlyn shares some of the abstracts she's looking forward to at #ASH24 #Myeloma hcp.myeloma.org.uk/community-ex...
What I’m most looking forward to at ASH 2024
hcp.myeloma.org.uk
So #ASH24 starts this week And instead of making slides for my presentation Friday morning I’m making friendship bracelets. Obviously. If I throw them to the audience maybe that’ll pass for a presentation?
