Katie Lazell-Fairman
@klazell.bsky.social
Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
1) Independent researcher Paolo Maccalini published an impressive paper implicating synaptic function in specific brain regions in the pathology of ME/CFS. It’s based on three major genetic studies, including DecodeME. The most replicated signal was for glutamatergic synapses.
The Pentagon is building National Guard “quick reaction forces” for U.S. cities — troops “trained for civil unrest and rapid deployment.” The timeline most people missed: They’re expected to be operational by April 2026. A few weeks from now.
We’re sharing madeleines and earl grey tea for #BlueSunday #TeaPartyforME! Madeleines are relatively easy to make for feeling so fancy and we’re happy to have been able to make them again.
Whom up late thinking about how today might be the last day they were anything close to prosperous
It’s been five years since John Prine died of COVID-19. If you’re so inclined (and able — it’s long), here’s an essay I wrote about how his songs helped me accept a life with the debilitating, deeply marginalized chronic illness ME/CFS. 1/3
How Singer-Songwriter John Prine Helped Me Accept A Life of Illness
It’s been a year since Prine died of COVID-19. His death made me reflect on what it means to be sick and how his songs helped me learn to…
m-lazell-fairman.medium.com
When scholars of authoritarianism and fascism leave U.S. universities because of the deteriorating political situation here, we should really worry.
🚨 🚨 🚨 Really important action for #LongCOVID community and allies! Call or email your federal legislators to let them know #NoLongCOVIDcuts! This condition impacts millions of Americans, many of whom are severely disabled with NO treatments!
Long COVID Campaign | www.longcovidcampaign.org@lccampaign.bsky.social · 2y ago📣 #LongCOVID Community: With recent news, we're now hearing NIH RECOVER-TLC research & AHRQ Long COVID clinic funding could also be at risk. So LCC is launching a rapid-response campaign NOW to make it easier to call Congress & ask for #NoLongCOVIDCuts 1/x bit.ly/NoLongCOVIDCutsCall
Tucson, Arizona today. Original projected attendance was 3,000 people. 23,000 showed up.
Martial law could happen in 30 days. Sound nuts? Look at what's already happening. www.the-sentinel-intelligence.com/p/should-i-s...
Should I Stay or Should I Go Now? 30 Days Until Martial Law...?
It could happen.
the-sentinel-intelligence.com
Want to make a difference? Consider being a control in a clinical trial. Your participation can contribute to the future of science and medicine! Email CoreResearch@mountsinai.org if you're interested.
🏠 Without PIP, 700,000 more disabled households could be pushed into poverty. Cutting this or other disability benefits would increase hardship for some of the poorest in society - something morally indefensible. Read the letter in full here: www.scope.org.uk/campaigns/op... 3/3
The cost of cuts to disability benefits: Our open letter to the Chancellor | Disability charity Scope UK
Right now, the government is considering changes to disability benefits. But for millions of disabled people, these benefits are a lifeline. They are the difference between surviving and being pushed ...
scope.org.uk
The media won't tell you that people are still suffering from & becoming disabled by Long Covid. Each infection increases risk, even a mild case & even if you think you did fine previously. Getting repeatedly infected is not sustainable & public health is worse than ever. Protect yourself & others.
Started the day crying, seeing everyone sharing all their #LongCovidAwarenessDay stories. How many more will become disabled? Ignoring the problem won’t make it go away. We need real investments in research on sophisticated therapeutics. (Note the irony in the chart’s title)
My friend & colleague Heather Stone has worked tirelessly to fight for treatment for people with rare & incurable diseases, including #LongCOVID. This well-written article follows her work at FDA & the coinciding quest to cure a fatal infection: Balamuthia. 🧪 www.washingtonpost.com/opinions/int...
Opinion | The free-living bureaucrat
Michael Lewis on Heather Stone of the Food and Drug Administration.
washingtonpost.com
This. If masking everywhere is too much, start with hospitals, doctor’s offices, and elder care facilities. It’s a small thing to help make these places safer for immunocompromised people like me.
Reina ($0/$200 for self-defense lessons 📌)@thatcovidinggirl.bsky.social · 2y agoFriendly reminder that it's never too late to start masking up again. And if you only mask some of the time, it's never too late to mask more often. If either statements apply to you, there's no better time to mask up again than today.
For this #InternationalWomensDay I’m sharing one of my symptomatology embroideries, paresthesia (face) (2016). Paresthesias are tingling sensations. Mine are caused by #MECFS, a disease affecting mostly women, and the symptoms are often ignored or not taken seriously because of medical misogyny. 🧶
My fellow Americans, we officially hit a new low today. Thanks to felon Trump’s all out assault on democracy, we are now on a civil rights loss warning list with the Democratic Republic of Congo, Italy, Pakistan & Serbia. Nonviolent civil resistance is a must! www.theguardian.com/us-news/2025...
US added to international watchlist for rapid decline in civic freedoms
Civicus, an international non-profit, puts country alongside Democratic Republic of Congo, Italy, Pakistan and Serbia
theguardian.com
Cutting disability benefits doesn't 'incentivise work'. But it does penalise and humiliate the disabled, and that's the real point.
Deeply concerning news about our friend and former BF teammate Rebecca Burke whose backpacking trip to the US has ended with her being detained by ICE for over ten days, with no clear timeline for her release. Please read her father's statement here: www.facebook.com/paulrburke
www.democracynow.org/2025/3/4/hea...
Former Social Security Chief Warns DOGE Cuts Could “Collapse” Benefits Within Weeks
Back in the United States, the former head of the Social Security Administration has warned interference from the Trump administration could result in beneficiaries missing payments within the next th...
democracynow.org
The pwME in vid calling for return to “old fashioned convalescence” reminded me of a neighbor who got mono in 1950s. Her doc advised family to support her rest. Took 6 months, but she recovered from bedbound never to relapse. It’s not total nonsense that there is lost wisdom, but RFKs BS is not it.
Matt Lazell-Fairman@mfairma.bsky.social · 2y agoOne of the contributors to this wonderful video, pwME Horace Reid, just passed. It’s only 6 minutes and affecting. Well worth the watch. His portion begins at 4:54. #MECFS #LongCovid
If you don’t wear a mask bc you’re worried friends or family will pull away, know that none of those ppl would be there for you anyway if you come down with a debilitating post-infectious illness like #LongCovid or #MECFS. 🧵
As a sick person, I know the love that must have been in that house and want to believe that some of that somehow remains now that she and he have passed on. I want more for ppl to honor that love by breaking the veil in themselves that makes disabled ppl so foreign. 3/3
Watched a YT vid abt English artist William Hogarth. He supported one of the first orphanages, in part bc he’d spent 5 yrs growing up in a debtor’s prison w his family, after his father’s attempt to start a Latin-speaking coffee house failed. Can we stop listening to the ghouls that want that world?
‘There will meet some learned gentlemen’: Hogarth’s Coffee House at St. John’s Gate - Museum of the Order of St John
Richard Hogarth, father of the engraver and painter William, set up his coffee shop in 1704 at St. John’s Gate, Clerkenwell
museumstjohn.org.uk
They said we were being hysterical for saying he would rule like a fascist.
Popehat@kenwhite.bsky.social · 2y agoHow’s this WSJ take aging
ECONOMIC BLACKOUT FRIDAY, FEBRUARY 28, 2025 Share this information and participate! You are a valuable human being with your own specific gifts. More Boycotts to follow.. read next page ⬇️ #DemVoice1 #LiveBlue #ResistanceUnited #Voices4Victory #OneVoice
