Olenka Sayko

@osayko.bsky.social

Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.

You close down all the culture sections and features departments and de-jobbed all the critics and you wind up not actually understanding your fellow Americans at all because you decided art was ancillary and unimportant when in fact it's vital to democracy b/c politics is emotional and so is art.

Here’s how I realized I had long covid. I got sick but improved. A month later was Christmas. I did all my usual activities - baking, hosting, good solid walks. On New Year’s Day I collapsed getting out of bed, couldn’t get up for a week, and never, ever got that level of energy back.

Quote from article: In Wired, Levinovitz took aim at claims that Long Covid patients with ME/CFS are limited in their ability to exercise. He argued that the problem isn't exercise, but the belief that exercise is harmful.
"Patients cursed themselves by believing their symptoms had a strictly biological cause," he wrote.

And if you fear that you will now be at higher risk of death and complications because you cannot stay up to date on vaccines, please consider for a moment that that is the burden you’ve been happy to put on disabled and vulnerable people for several years.

If you are angry, as you should be, that restricting access to the vaccine will make covid worse and more dangerous, please start wearing a mask, which actually does a significantly better job of preventing transmission in the first place.

The compounding pharmacy that used to prepare my thymosin alpha-1 is no longer doing it and my usual compounding pharmacy doesn’t offer it. Anyone with #LongCOVID or #MECFS and at TA-1 script have a compounding pharmacy that offers it? If so, details pls!

I’m always so tickled when people go “ugh when did [insert thing here] become political?” And it’s like, sorry babe, but as long as groups within society use the state as a cudgeol to decide who has what rights and how collective resources are allocated, most things will be political.

As we approach the 4th and 11th anniversaries of the war that Russia started, it is important to remember that this has always been a blatant land grab that turned genocidal as soon as they realized Ukrainians do not want to be Russians

It’s wild how much calmer my nervous system feels when I’m on my period. I wish I knew what was happening in my body that makes it so and how I can reproduce it the other three weeks of every month. 🤔 #LongCOVID

Incredible: Russ Vought’s daughter has cystic fibrosis and benefits from a “miracle drug” made possible by the National Institutes of Health—an agency Vought now aims to gut as part of the Project 2025 attack www.motherjones.com/politics/202... Scoop from @motherjones.com’s @metrauxjulia.bsky.social

Project 2025 is gutting medical funding that helped Russell Vought's own kid

Its architect's daughter has cystic fibrosis—and benefits from a "miracle drug" backed by an agency he's attacking.

motherjones.com

I’m on day 5 of Sofosbuvir. The first two days I only took one pill, but have been taking 2 the other two days. Very up and down but the ups are very up. My nervous system feels very calm on those days.

Reminder that protecting each other from illness and potential disability/death when the people in charge actively want us dead is actually punk as fuck. Simple disease prevention is community care. It is resistance. Please mask up, especially at protests.

Hey, guess what has suddenly disappeared from the HHS website? Any mention of this $306M investment in pandemic flu preparedness that was approved in the last days of the Biden administration. Not DEI. Not USAID. Our surveillance & response program around H5N1.

Biden administration allocates $306m in its final days for bird flu response

‘Critical’ funding comes as H5N1 outbreak intensifies and will go toward developing a response to the virus

theguardian.com

“These first two weeks of Trump’s new term and the extensive executive orders removing nearly every right I have as a trans American have been by far the worst in all my professional years.” In The Handbasket’s first guest piece @katelynburns.com explains the toll on trans journalists right now:

GUEST COLUMN: The current ‘mindf*ck’ of being a trans journalist

Katelyn Burns explains the personal and professional toll of Trump's anti-trans executive orders.

thehandbasket.co