Jodi Ettenberg

@legalnomads.com

Once a lawyer, then a celiac travel writer. Now disabled, writing about curiosity & health. Travel writing & gluten-free guides: legalnomads.com The best things I read each month: jodiettenberg.substack.com MCAS, meditation, & health: jodiettenberg.com

I was so very excited to be the lead author on a recent paper about barriers to care in spinal CSF leak, and my friend surprised me with with the best gift: she had the abstract printed on a mug and sent it my way. SO THOUGHTFUL 😭

This photo is a white mug with a printed abstract from the American Journal of Neuroradiology for the paper "Patient-reported barriers to spinal cerebrospinal fluid leak: a cross-sectional survey"

One of the most difficult aspects of having your life change overnight is how to reckon with the loss of identity. For a decade, I lived and breathed food and travel, & I loved the life I had built. Suddenly, I could barely stand up. About spinal CSF leak and loss of identity:

Amazing that this review paper from 2021 just became my most cited paper of my 30+ yr career. I am honored to have been the lead first co-corresponding author with @ChiaWang8. COVID is indeed airborne--as are most other respiratory viruses. @ucsandiego.bsky.social www.science.org/doi/full/10....

Airborne transmission of respiratory viruses

A Review discusses the scientific basis of and factors controlling airborne transmission of respiratory viruses including coronavirus.

science.org

"As a physician, I empathize with the lack of familiarity; doctors only know what they know, and headache, after all, is a common complaint. But as a patient, I can’t help feeling angry. It seems that many doctors simply do not believe spinal CSF leak patients."

More Than Just a Headache: The Lonely Journey of a Spinal CSF Leak Patient

In early June 2024, I picked up my paddleboard, noting that it felt heavier than I’d remembered. Over the next few hours, I developed searing neck ...

opmed.doximity.com

This WSJ piece was so indelibly biased wow. I’m not estranged from my parents, but I know people who are (imo validly) & their parents constantly claim they are the victims. Why don’t we hear from the kids’ POV in this story? Smacks of missing missing reasons. archive.is/2025.12.16-1...

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