Tessera
Folgen

The Massachusetts ME/CFS and FM Association

@massmecfs.bsky.social

To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research. https://www.massmecfs.org

50 Posts176 Follower155 Folgt
Bateman Horne Center@batemanhornecenter.bsky.social · 5mo ago

“What Is Myalgic Encephalomyelitis Like? Patient & Caregiver Perspectives” shares 80 firsthand accounts from people living with and caring for those with ME worldwide. BHC was honored to write the book foreword and chapter forewords for this important project by WIMEL writers. Available on Amazon.

Pillow Writers@pillowwriters.bsky.social · 5mo ago

“Imagine you must operate on 15% energy, at your best. If you go into the red it can take days, weeks or months to recover, and only to 15%.” Úna, Ireland, living with myalgic encephalomyelitis since 1982

Open Medicine Foundation (OMF)@openmedf.bsky.social · 4mo ago

🧬 Science Wednesdays Sensitivity & specificity are terms that describe how good something is at correctly identifying a condition (e.g. people within a population that have a disease). Sensitivity focuses on finding true positives or not missing cases. Specificity focuses on finding true negatives.

Billy Hanlon@bhanlon15.bsky.social · 10mo ago

Health Rising: 'Could “Disequilibrium” Be Causing the Orthostatic Intolerance Found in ME/CFS and Long COVID?' 'If Miwa is right and disequilibrium is contributing to problems with standing, then the treatment focus shifts a bit.' www.healthrising.org/blog/2025/11...

Could "Disequilibrium" Be Causing the Orthostatic Intolerance Found in ME/CFS and Long COVID? - Health Rising

Disequilibrium - the inability to stand or walk without swaying - may be contributing to the orthostatic intolerance (increased symptoms while upright) in ME/CFS and long COVID

healthrising.org

Billy Hanlon@bhanlon15.bsky.social · 10mo ago

UT Health San Antonio: 'New center launches with focus on chronic infectious diseases' 'The University of Texas at San Antonio marked the launch of its new Center for Chronic Infectious Diseases..an inaugural symposium highlighting research on..long COVID...' news.uthscsa.edu/new-center-l...

New center launches with focus on chronic infectious diseases - UT Health San Antonio

The University of Texas at San Antonio marked the launch of its new Center for Chronic Infectious Diseases on Nov. 14 with an inaugural symposium highlighting research on post-acute sequelae of SARS-C...

news.uthscsa.edu