War. And after that? War. And now? War. War. History might as well be water, chastising this shore. -Carol Ann Duffy, The Wound in Time, written on the occasion of the centenary of the first World War. #everynightapoem
Alport Research Hub Symposium 2026 on Friday 3 July at the Institute of Child Health, London. An interactive event dedicated to sharing the latest scientific advances and clinical trials in Alport syndrome and the achievements of the Alport Research Hub. Register now: https://bit.ly/46NOBeW
Alport Research Hub Symposium - Kidney Research UK
Register for free to join us for a day of inspiring renal research at our Alport Research Hub Symposium 2026.
kidneyresearchuk.org
Just on Tom Addis Stanford and the AMA behaved badly - as most large organizations usually do. From en.m.wikipedia.org/wiki/Thomas_... with lessons for today. #MedSky #HistoryofMedicine
![His Stanford colleague Frank W. Weymouth wrote about him:
Injustice or oppression in the next street ... or any spot inhabited by men was a personal affront to Thomas Addis and his name, from its early alphabetical place, was conspicuous on lists of sponsors of scores of organizations fighting for democracy and against fascism. He worked on more committees than could reasonably have been expected of so busy a man. ... Tom Addis was happy to have a hand in bringing to the organization of society some of the logic of science and to further that understanding and to promote that democracy which are the only enduring foundations of human dignity.[5]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:33h4q6nw674jdcwfxaq2m2nl/bafkreidjwcfxnwi7xc4iksu3t5rsasfpy3bv445m545lqsknpfhhgjhvl4)
🎉 It’s our official birthday on Thursday 7 August! On the day, visit us at George IV Bridge, Edinburgh or Kelvin Hall, Glasgow to get your own copy of a special edition centenary comic created by Beano, especially for this occasion! #Beano #NLS100 #LoveLibraries #LibrariesAloud
An exciting day ahead at the @alportuk.bsky.social Alport Syndrome patient day in Nottingham. Here to learn from people how this kidney/ear/eye syndrome affects them & their families. 🧪🫘👂🏼👁️🧬
The Alport Workshop in Beijing in September is looking tremendous! Agenda to be added soon, but register now at tinyurl.com/5674vckz @alportuk.bsky.social @dannygale.bsky.social @rheaultm.bsky.social @rachellennon.bsky.social
13 Blackfriars St, Edinburgh—currently eight flats (after modernisation); probably more in the 1870s, when it was built as working-class housing to replace the "rotten, ruinous old buildings" and the "congeries of dark and wretched lanes" of the area. Former residents include:
📢 Save the Date! The 2025 International Workshop on Alport Syndrome is in Beijing, China! 📅 Sept 4 – Patient Workshop 📅 Sept 5-7 – Scientific Workshop Connect, learn, and advance treatments! More details soon. 🔗 www.alportsyndromealliance.org #AlportSyndrome #GlobalWorkshop #SaveTheDate
ADPKD Risk calculator. This looks well done: halbritter-lab.github.io/adpkd-risk/
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ADPKD Risk Calculator is a web-based tool designed to assess Autosomal Dominant Polycystic Kidney Disease (ADPKD) progression risk using the Mayo Imaging Classification and PROPKD Score.
halbritter-lab.github.io
Quiz: Young man with 1 week of fever, headaches, nonproductive cough, 1 day of dyspnea. Within 36 hours, he had 1 episode of hemoptysis and worsening hypoxia requiring mechanical ventilation. https://bit.ly/4ka9Ts3 (FREE)
On the long flats north of the river An elder in a leather jacket Is hitchhiking to his daughter’s funeral (Les Murray) www.scottishmedicalhumanities.org/human/a-coun...
Two wonderful 50 year flashbacks to the early days of dialysis and transplantation (19974) vimeo.com/ukkidneyhist...
Congratulations to the Parker solar probe for setting a new record for 'worst job avoiding the sun' xkcd.com/3029/
Sun Avoidance
xkcd.com
Great case, but we now know you that some have the mutation with renal manifestations but minimal or no systemic features.
American Journal of Kidney Diseases@ajkd.bsky.social · 2y ago#Quiz from the archives: A 13-year-old boy with generalized body swelling, reduced urine output, and nephrotic-range proteinuria was evaluated. He had finger and toenail hypoplasia and “swan neck” deformity of the fingers. What is the diagnosis? https://bit.ly/3ZVwzo6 (FREE)
Great time to revisit the outstanding Alport workshop in Cyprus in March youtu.be/HnwKsDMms8A
The 2024 International workshop on Alport Syndrome in Nicosia, Cyprus - 14-16 March 2024
YouTube video by Alport Workshops
youtu.be
Thankyou @AJKDonline for the opportunity to share my story “In a Few Words” @AJKDblog and providing a platform to advocate for kidney community in generating solutions to alleviate care giver fatigue for patients with ESRD. @ajkd.bsky.social @nkf-professionals.bsky.social
