One week ago to August 8, #SEVEREMEDAY I have a Pinterest board with 714 pins on #severeMECFS here ie.pinterest.com/tomkindlon/m... that could be shared around. It mainly contains images but also links to videos & articles You don't need to be on Pinterest #SevereME #MEcfs #PwME
@penelopidia.bsky.social
Persistent vision problems after COVID linked to ongoing inflammation, nerve damage www.cidrap.umn.edu/covid-19/per...
Persistent vision problems after COVID linked to ongoing inflammation, nerve damage
cidrap.umn.edu
Tutkijat varoittavat miljardien kustannuksista, jos pölyttäjäkatoa ei pysäytetä yle.fi/a/74-2023372...
Tutkijat varoittavat miljardien kustannuksista, jos pölyttäjäkatoa ei pysäytetä
Uutiset nopeasti ja luotettavasti.
yle.fi
Jeff Bezos thinks we should let the water flow to data centres rather than humans and the living world. This is utterly genocidal thinking, and indicates why we should tax the billionaire class out of existence. Otherwise the dangers they pose end up getting solved the way of the French royalty.
Hallitus on leikannut köyhiltä ja sote-palveluista, aiheuttaen kurjuutta ja pahoinvointia. Vaikutusarviot se on jättänyt tekemättä. Sote-järjestöt ovat tehneet vaikutusarvioita, kritisoiden hallituksen brutaalia politiikkaa. Joten luonnollisesti hallitus leikkaa järjestöt henkihieveriin kostona.
“I don’t think I can think of another condition that would be treated this way.” Dr Anna Brooks, Liggins Institute. A powerful opening to Zoe Madden-Smith’s award-winning RE:News documentary on #MECFS
“Waking up, it’s like you’ve been hit by a truck. Everything’s shaking, vibrating internally. My brain feels inflamed, it’s like you’ve got a concussion.” Rhi has had #MEcfs for over 20 years.
4 weeks to go until the International ME/CFS Conference 2026 🗓️ On May 7 & 8, leading researchers share the latest on #MECFS and #LongCOVID – watch it live via livestream. Register now ➡️ https://t.ly/us026
TW: assisted suicide 30 min interview with Samuel’s mother and doctor. Samuel developed #MECFS after a Covid infection and chose assisted suicide. Before his death he asked for his story to be used to raise awareness. English Subs (edited with ChatGPT) youtu.be/_w0v7he88Uo?...
Austrian TV | ME/CFS | Samuel’s mother talks about his assisted suicide
YouTube video by Broken Battery
youtu.be
Clip 2 from Austrian TV report about Samuel ME/CFS was largely ignored in Austria until Covid. The hallmark symptom is that exertion can make the illness worse. Many doctors are completely unaware, even though patients have been saying this for decades. #MECFS #LongCovid
Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
Clip: Dr @binitakane.bsky.social explains how ME is an energy-limiting illness. The hallmark symptom, Post-Exertional Malaise (PEM), means even normal activities can trigger a worsening of symptoms. Some of her patients have to choose between a shower or preparing a meal that day.
Clip 2 (WDR German TV): Dr Astrid Weber from the Long Covid Clinic in Koblenz says ME/CFS cases have exploded since Covid. ME/CFS isn’t new — despite being around for decades, many doctors know little about it. She wants to educate them. It’s a physical, not a mental, illness.
Clip from a WDR German TV report: Pascal Hilgruber developed ME/CFS following a Covid infection or vaccination. He now spends 80–90% of his day in bed and says being able to go to the toilet on his own feels like an achievement.
need one of those german train-car noun constructions for ‘the sense of betrayal a woman suffers when a thinker who was hugely influential to her turns out to be the same bog standard worthless misogynist as everyone else’
“That’s particularly true now with the hysteria that has developed about abuse of women, which has reached the point that even questioning a charge is a crime worse than murder." -- Noam Chomsky www.theguardian.com/us-news/2026...
Te puhuitte teoin -mielenosoitukset kautta Suomen 14.2.2026 kello 14. Alla olevissa paikoissa. Listasta puuttuu Tampere, jossa on mielenosoitus myös Hämeenpuisto, Vapauden patsas. Laittakaa tietoa eteenpäin. Täällä ei ole organisoijien puolesta ollut tietoa. Se löytyy Facesta tai IG:stä.
“Screaming Immune Activation”: Major Lipkin Study Finds ME/CFS Systems Folding Under the Stress www.healthrising.org/blog/2025/09... Screenshot from AMMES December 2025 newsletter #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Wow this is a great essay. #NEISvoid
The Sick Times: 'You know someone with Long COVID. They need you to ask about it genuinely.' Written by Philip Hoover 'If community-building is a bulwark against autocracy, then asking after one another might be a good place to start.' thesicktimes.org/2025/11/28/y...
The Sick Times @thesicktimes.org : Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise thesicktimes.org/2025/11/21/l... Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID. #LongCovid #PEM
Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...
thesicktimes.org
Stand By ME/CFS! We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today! #StandByMEcfs #StillSickStillFighting #MEcfs #pwME #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono
Tää suomen säästöpuhe velan taittamisesta vertautuu mun mielestä hevosen hoitoon. Leikataan hevoselta ruoasta 20% ja ihmetellään, miksi se ei jaksa juosta kovempaa. Leikataan ruoasta 50% ja ihmetellään samaa. Lopuksi hevoselta leikataan kengät ja mietitään, miksi se ei taaskaan juokse kovempaa.->
Hope they get the required amount!!
Google translation of article on an interesting ME/CFS drug trial that is about to start in Norway www-nettavisen-no.translate.goog/nyheter/vild... Sadly they still haven't reached the amount required to fully do this study. People can donate here www.me-foreningen.no/om-oss/stott... #MEcfs #PwME
One of the big COVID facts that tend to make people go deer in headlights is the high percentage of asymptomatic infections. Unfortunately these infections can still cause you or others problems months or years later. This was known back in 2020 but shushed up afterwards.
a picture of a deer with a question mark on its face and the words huh ?
Alt: a picture of a deer in car headlights with a question mark on its face and the word Huh?
media.tenor.com
49% of COVID infections are asymptomatic according to Yale School of Public Health. Yale advises layered protection: N95 masks, HEPA filters, good ventilation, vaccines, rapid tests and wastewater monitoring. Source: pdflink.to/yale-covid-1...
"Long COVID-19: a Four-Year prospective cohort study of risk factors, recovery, and quality of life" bmcinfectdis.biomedcentral.com/articles/10.... "Nearly 29% of post-acute COVID-19 patients developed long COVID-19" #LongCovid #PASC #Novid
See you soon for our genetic results webinar! Spots are limited to 3000, and registering does not guarantee a spot. Don't worry - we will also be sharing it live to our Facebook page at the time facebook.com/decodeMEstudy as well as recording it so that you can watch it back.
On tärkeää, että pitkää koronaa käsitellään edelleen mediassa – aihe on yhteiskunnallisesti merkittävä ja koskettaa monia. Käsittelyn tulee kuitenkin olla monipuolista, tasapainoista ja rohkeaa. Tällä hetkellä kukaan ei tunnu uskaltavan kyseenalaistaa HUS:n Pitkittyneiden oireiden klinikan […]
Original post on mas.to
mas.to
I feel like I'm trapped in a symptoms cyclone
Clips from The Golden Girls (1989): Dorothy sees a neurologist after months of #MECFS symptoms. He tells her there’s nothing wrong, it’s just ageing — and suggests a psychiatrist. She begins to doubt herself—until Rose comforts her saying “Doctors don’t know everything.”
Clip from The Golden Girls (1989): Before being diagnosed with #MECFS, Dorothy tells her doctor she’s had months of exhaustion, fevers, muscle weakness, memory problems, and more. Her tests are normal, so he dismisses it as loneliness or depression.
Mikä pettymys, (vaikkei yllätäkään), hallitukselta jää uupumaan teot palestiinalaisten kansanmurhan pysäyttämiseksi.
Hallituksen yhteinen linja Palestiinan tunnustamisesta: * KD vastustaa * PS ei näe ajankohtaisena * RKP haluaa keskustelua * Kokoomuksen tavoite kahden valtion malli Linja on yhtä selkeä kuin hallitusohjelma on hyvä.
Kas, kerrankin muutakin kuin liiran laarumia!
Helsingin yliopiston johtama kansainvälinen geenitutkimus on löytänyt perinnöllisen riskitekijän, joka lisää long covidiin sairastumisen riskiä, yliopisto tiedottaa. Long covidilla tarkoitetaan koronavirusinfektion jälkeisiä pitkäkestoisia oireita. https://yle.fi/a/74-20163406 #KoronaFI