Have you completed the Ask Us Europe survey? For the first time, it asks about neurodiversity-and we need more autistic/ADHD voices to understand how HIV treatment is being discussed across Europe. If you’re autistic and/or have ADHD and living with HIV, please take part. bit.ly/4m5ktRm

Neurodiversity & HIV: Your Experience Can Change Treatment | Ask Us Europe

YouTube video by Harun Tulunay

youtu.be

The Ask Us Europe team at #EACS2025 following Megan’s poster presentation. If you’re on HIV treatment and live in Europe, please take part - it takes 10 minutes and the results should help improve treatments for us. @shareeastlondon.bsky.social @profchloeorkin.bsky.social bit.ly/4oqzvCG

Well done to @profchloeorkin.bsky.social & @shareeastlondon.bsky.social. They won the Impact-led Initiative Award at @knowledgeexchange.bsky.social Awards for their inclusive response to the Mpox outbreak. @qmul.bsky.social @qmulfmd.bsky.social

Huge congratulations to @profchloeorkin.bsky.social and the @shareeastlondon.bsky.social for winning the Impact led Initiative Award at the KE Awards. A brilliant recognition of community driven mpox research and partnership working. Full story: www.qmul.ac.uk/media/news/2...

Pleased to inform that a consortium of Japanese doctors has published a paper on LAI. I’m honored to be listed as a co-author. Prof. Orkin encouraged us to form the consortium. We appreciate your support. @profchloeorkin.bsky.social @toshtaniguc.bsky.social onlinelibrary.wiley.com/doi/10.1111/...

Evaluation of cabotegravir plus rilpivirine in routine clinical settings in Japan: A multicentre study of efficacy, safety and biomarker dynamics

Objectives Long-acting cabotegravir plus rilpivirine (CAB+RPV) offers an alternative to daily oral therapy, but real-world data in East Asia remain scarce. This study aims to evaluate the impact of ...

onlinelibrary.wiley.com

We encourage all people living with HIV in Europe to join this short study run by @shareeastlondon.bsky.social & @profchloeorkin.bsky.social to share their experiences with new HIV treatments & conversations with the clinical teams about treatment choices. Visit the page & complete the survey below

Prof Chloe Orkin@profchloeorkin.bsky.social · last yr.

Our latest study to understand the perspective of people living with HIV in Europe is now live! We created it together with an amazing steering group of community members from 17 countries. Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

Are you: ✅working in a UK sexual health service that provides #PrEP, AND ✅willing to take part in a 15 minute survey? We are conducting a brief survey of sexual health clinics for our #beyondtheclinic study. You can complete the survey here: bit.ly/40weNaX #studyparticipants

Do you live with HIV? Are you in Europe and currently on treatment? Please take part in the Ask Us Europe survey, which aims to improve treatment and care for people with HIV. I am proud to have worked on it with @shareeastlondon.bsky.social and a powerful group of people with HIV. Please share. 🙏

Our latest study to understand the perspective of people living with HIV in Europe is now live! We created it together with an amazing steering group of community members from 17 countries. Please do the survey if you are living with HIV in UK and Europe and SHARE widely !! 🙏🙏🙏🙏

SHARE Collaborative@shareeastlondon.bsky.social · last yr.

Our latest study 'ASK US Europe' is live and open to recruitment for people living with HIV in Europe who are on ART! Please share widely across your networks in Europe and the UK. bit.ly/4m5ktRm /1

A decline in funding for the HIV response could result in millions of preventable new infections and deaths, with up to 120,000 of these deaths affecting children. International cooperation is essential to sustain the advances we’ve made in HIV prevention, testing, and treatment. bit.ly/43uTfxA

🚨1.25 million people died of TB in 2023 🚨10.8 million new cases of TB were diagnosed in 2023 🚨Multi-drug resistant TB is a public health crisis 🚨US$ 22 billion is needed annually for TB prevention, diagnosis, treatment and care, but funding is being cut. 🚨Poverty fuels TB globally #WorldTBDay2025

#DEI , women’s rights, LGBTQ+ rights, disability rights, global & domestic public health are under attack and being censored in the US. Let’s remember the phenomenon of ‘social contagion’ -the concept that thoughts 💭 can be as contagious as viruses 🦠 and keep committing to celebrating #DEI 🏳️‍🌈🏳️‍⚧️✊🏿♿️

Re-suppression post CAB LA PrEP 083 #CROI2025 9/44 had INSTI resistance before ART 6/6 people suppressed on INSTIs (VL less than / equal to 50 c/ML) 15/16 on other ART 5 further participants from other oral regimens switched to INSTIs afterwards and maintained suppression where data available.

Very strong data from the PILLAR study LA CAB PrEP #CROI2025 60% were cis BiPOC men and were 6% trans men •201 people •0 transmissions •High retention and coverage •22% had not taken PrEP in past 3/12

Brazilian CAB PrEP cohort #CROI2025 •genXpert test at baseline •diverse cohort •86% chose CAB LA •CAB adherence very high •PREP coverage much higher than oral PrEP •no incident infections on CAB •6% did not persist on CAB • 4% switched away due to side effects

Very strong data on LA CAB PrEP from Kaiser Permanente large US real world cohort #CROI2025: •141 received LA CAB •25% had never taken PrEP •75% persistence •No incident infections •> 90% of injections given on time

✅ WHO does not impose lockdowns or policies on countries. It does not have the authority to do this and isn't trying to get it. Only governments can make those decisions. Know the facts ⬇️

ARV session highlights #CROI2025: •Once yrly LEN dose tolerable with good PK •VH499 (capsid inhibitor) with LA potential led to rapid resistance at lowest dose •VH184 3rd gen INSTI appears potent against multiple mutations •ZAB/TAB/LEN-1 breakthru VF (low LEN levels & single bNAb susceptibility)

For those at #CROI2025 there is a ‘Save our Science’ rally this evening at Yerba gardens next to the Moscone centre Non US people CAN attend but you won’t be able to register Hope to see you there @iasociety.bsky.social @hivpxresearch.bsky.social @bhiva.bsky.social

Post from #CROI2025 San Francisco: I have been re-posting recently to amplify voices of US colleagues on the war on science and public health that is taking place in the US and the cuts to public funding for PEPFAR HIV programmes supporting treatment and HIV prevention for millions worldwide.

Happy IWD to all the wonderful, wise women I am so fortunate to have in my life - first and foremost my wife of 24 years, my friends, my colleagues and fellow human rights activists.

Violence against women demands urgent attention. One in three women faces physical or sexual violence, and nearly 25% of workplace violence happens in hospitals or clinics — and women are most affected. #BeijingPlus30 #IWD2025

Here is a blog by Vanessa Apea and I describing the story behind most recent SHARE-net manuscript on the healthcare provider perspective during the 2022/23 #mpox outbreak. The paper has been published in PLOS Global Public Health eur01.safelinks.protection.outlook.com?url=https%3A...

Behind the Paper: International Healthcare Workers’ Experiences and Perceptions of the 2022 Mpox Outbreak

PLOS Global Public Health was a natural home for our study due to its commitment to open-access publishing and its focus on amplifying research from diverse and resource-limited settings. Given the gl...

eur01.safelinks.protection.outlook.com

Check out our latest #CDTR - the weekly bulletin for epidemiologists and public health professionals with updates on: ➡️ #STIs ➡️ #chikungunya ➡️ #Ebola ➡️ #measles ➡️ #AvianInfluenza ➡️ #SwineInfluenza ➡️ #influenza & respiratory virus epidemiology. Read full here: bit.ly/41iaY9P #IDsky #EpiSky

Communicable disease threats report, 8 - 14 February 2025, week 7

This issue of the ECDC Communicable Disease Threats Report (CDTR) covers the period 8-14 February and includes updates on STI cases, chikungunya, Ebola, measles, avian influenza A (H9N2, H5N1), swine ...

bit.ly

In these unthinkably dark days for global public health I’m proud to share the results of this international survey which describes the challenging and distressing experiences of clinicians in 12 countries during the 2022/23 #mpox pandemic. eur01.safelinks.protection.outlook.com?url=https%3A...

International healthcare workers’ experiences and perceptions of the 2022 multi-country mpox outbreak

In May 2022, the most widespread outbreak of sustained transmission of mpox outside of countries historically affected countries in Western and Central Africa occurred. We aimed to examine the persona...

eur01.safelinks.protection.outlook.com

Usha Lee McFarling@usha.bsky.social · 2y ago

DATA! 📊 Health care policy analyst @charlesgaba.com has downloaded the entire CDC site. Access it below.

The PEPFAR program, which distributes HIV drugs, is estimated to have saved 25 million lives. The Trump administration has stopped it and taken its computer system offline, raising fears the program is done for good. Story by @apoorvanyt.bsky.social [Gift link] nyti.ms/4aCJHSx 2/12

Trump Administration Halts H.I.V. Drug Distribution in Poor Countries (Gift Article)

PEPFAR’s computer systems also are being taken offline, a sign that the program may not return, as Republican critics had hoped.

nyti.ms

It is important to follow the threat to science as it unfolds in the US. See the thread below

Darby Saxbe@darbysaxbe.bsky.social · 2y ago

🚨BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science.

Fantastic to see this profile of our Professor of Infection and Inequities! Congratulations, @profchloeorkin.bsky.social

Queen Mary University of London@qmul.bsky.social · 2y ago

Delighted to see Prof @profchloeorkin.bsky.social, Director @shareeastlondon.bsky.social & Consultant HIV physician at Barts Health, profiled in @thelancet.bsky.social today. Great to learn more about her career, with ‘equality at its heart, motivated by activism’ www.thelancet.com/journals/lan...

Thanks QMUL for highlighting this Lancet profile of my work. I’m very honoured to have been profiled & very grateful it foregrounded my work outside of the biomedical model of health & disease & beyond high impact papers. She foregrounded the activism & inclusion work I am most proud of.

Queen Mary University of London@qmul.bsky.social · 2y ago

Delighted to see Prof @profchloeorkin.bsky.social, Director @shareeastlondon.bsky.social & Consultant HIV physician at Barts Health, profiled in @thelancet.bsky.social today. Great to learn more about her career, with ‘equality at its heart, motivated by activism’ www.thelancet.com/journals/lan...