weight i would like to weigh myself before I bolus IV fluids when i wake up after sleep haha but I don’t think I can. I don’t think I could stand up without the fluids. i fell asleep and woke up and needed to bolus 2L today. I guess I can always try after that and just subtract 1 kg but

talking to a friend had me reflecting a bit about what i share and my community. I feel very wanted and loved, and I have multiple friends I talk to nearly daily. A whole community I can ask for advice, friends who share their experiences. And Also, I miss someone to feel soft around like bestie.

it is really hard to do anything lately and with work filled with frustrations like this, it’s hard to want to work. like what do i do with that?

pumpkin@pumpkinstars.bsky.social · 3h ago

yesterday my intern really just he has no idea what is going on and i am concerned for him as a human being because he is not able to do anything independently correctly and idk what to do about that i did tell him i was concerned. but. idk.

yesterday my intern really just he has no idea what is going on and i am concerned for him as a human being because he is not able to do anything independently correctly and idk what to do about that i did tell him i was concerned. but. idk.

food it’s hard enough to want to eat and eat solid food right now but also there are SO many issues with the safety of food right now and I can’t even keep track of all the health violations and outbreaks right now if i ordered food what could i even safely get?

sometimes i can watch shorts! many are clips of tv shows or movies and it had me realizing that i can’t think of any feminism, environmentalism, etc that isn’t a hyperbolic caricature as the butt of the joke… except for Barbie movie. It’s really awful that media does that.

USA: "Salmonella outbreak linked to jalapeños expands to 27 states" The CDC is investigating a salmonella outbreak tied to Mexican jalapeños supplied by Coast Citrus Distributors. The outbreak has sickened 345 people in 27 states. The peppers were served at Chipotle, Qdoba, and other restaurants.

Salmonella outbreak linked to jalapeños expands to 27 states

Chipotle and Qdoba say they have removed the jalapeños from their restaurants.

nbcnews.com

i fell asleep at work 😅 oops

please help me to pay for this scan 🙏🏽 $590 still needed for the scan & $750 needed for rent 😔 paypal.me/thelongestroad

Pay RMM Creative using PayPal.Me

Go to paypal.me/thelongestroad and type in the amount. Since it’s PayPal, it's easy and secure. Don’t have a PayPal account? No worries.

paypal.me

MashedBex | trying to kick cancer's ass@bexmashaba.bsky.social · 2d ago

my rent is also 3 days overdue and idk if i should pay the rent with the money i’ve received so far or if i should hold out a little and see if i can get enough to schedule the scan first i feel so bad about not paying the rent because the stress is on my roommate who has been really good to me

We need to pick up the pace fundraising to finally get me and my trans daughter out of this tent in NC to my also disabled friend's apartment in CA! Setting a daily goal of $100 towards getting us indoors with a space for the community workshop! 💸 bit.ly/WDCshApp ☕ ko-fi.com/ommerdraven 🙏⚒️💕💸🏳‍⚧♿💜

update it says i have 7 pace points to use a day but i washed my hair so i’m at 8.8 haha oops but! also! that’s pretty good pacing for me, it’s not like i went 20 points over! i like this. i hope i can remember to update it with my unscheduled sleep hours making alerts to check in not useful.

pumpkin@pumpkinstars.bsky.social · 5d ago

i got visible and set it up and it’s still getting to know me but when i woke up it said i had “0.4 pace points” lol so that’s how that is going. also, as i suspected it’s not an app that very severe MECFS can use or even all severe all the time. but i’m still giving it a go to see if it helps!

omg i did it!!! i wash my hair!! very fast kitchen sink and barstool just basic one wash i did it omg i am a goddess i am i must be because i did that!!!!

2-5 depending on my mood (when i drank coffee) 3 or 4 none (vegetarian)

TwoSense@twosense.bsky.social · yesterday

1 4 2or3

some wild health issues lately that are mild and tame but make it hard to sleep. like i’m not upset from it all, but i can’t sleep and need rest so i just end up lying here lol bored weird chronic illness times in summer, a good time of year for me. yeah.

i am just now figuring out why my hair has felt so weird gross lately. a while ago, I tried a different hair serum sample. that is the only different thing. apparently it doesn’t work well if you never wash your hair. good to know. sigh. now i have to wash it soon.

my packages!! eeee

chronic fatigue mentioned in The Middle but of course by someone claiming falsely to be disabled and faking it. i don’t know where this episode ends up but screw this clip. youtube.com/shorts/icy_K... #MECFS

Do you know about intermittent fatigue syndrome?#MysteryCondition #seriesclips

YouTube video by Edit Quartheon

youtube.com

weight huh yeah so i lost weight lol i don’t know how much but i weigh less than what i was before i gained more weight. so at least 12 pounds and i lost more after April crash. but gained some back. so idk my lowest weight.

the UPS tracker LIED and the my food drinks aren’t delivered yet ugh ugh! it said by noon and then later and later sigh. unreliable mail.

food feeling better after food and was able take supplements! progress

food / disordered eating / weight stuff also i am really bad at CW and tagging, sorry in advance. i try to write food in the first line but i can’t always rrmember i am remembering times when i struggled to eat. before i got fat. the big bite bestie encouraging me. so scared for me.

i ordered more kate farms drinks and one box. ones today. it comes today and the new boxes i ordered come in a couple days. but today kinda sucks haha my own fault. should have ordered earlier. kinda been in denial? hoping i could eat more solid foods. i have those here.

in case you missed it and want to see my central line stitched to my body 👇

pumpkin@pumpkinstars.bsky.social · 2d ago

Anyone want to see what my central line looks like? I have #EDS and my last line fell out 2 weeks after it was placed (it replaced my old line of just over a year). So, the surgeon sewed it to my chest. Which was shocking for me to discover. I have grown to kinda like it. #NEISvoid #POTS #MECFS

reported an accessibility issue at work and got the run round by someone who couldn’t fix the problem asking chat GPT to explain the basics of the area with issues to me, while ignoring the actual issue I very clearly stated. Multiple times. He would not give up. Embarrassing for him.

i have an idea for a short / reel / tiktok that hasn’t happened in a while. a long time. …but i can’t safely do it without some help haha. so i can’t complete it.

disordered eating eating solids is still too hard and my kate farms order isn’t here yet but comes today started feeling sick and not wanting to eat but had some edible cookie dough in the fridge so, i am eating that. fed is best. sigh

Anyone want to see what my central line looks like? I have #EDS and my last line fell out 2 weeks after it was placed (it replaced my old line of just over a year). So, the surgeon sewed it to my chest. Which was shocking for me to discover. I have grown to kinda like it. #NEISvoid #POTS #MECFS

please help draven and their trans teen survive outside in a tent until they can move here! they are packing up and stuff right now, just need to get their survival needs met as they do so and replenish a bit of the move fund that had to go to survival needs

Ommer Draven🚛$0/100 ⚒️🏳‍⚧♿@ommerdraven.unitedsyncretic.org · 3d ago

No motion on donations yesterday. I'm feeling a little better today, but still can't stand up in the hot humid air for more than a minute or two before I start getting dizzy. Can you help us finally get indoors? 💸 bit.ly/WDCshApp ☕ ko-fi.com/ommerdraven 🙏⚒️💕💸🏳‍⚧♿💜

Anyone want to see what my central line looks like? I have #EDS and my last line fell out 2 weeks after it was placed (it replaced my old line of just over a year). So, the surgeon sewed it to my chest. Which was shocking for me to discover. I have grown to kinda like it. #NEISvoid #POTS #MECFS

good morning 💛💫🌻