RDAC Bill (HB 2457) update: Work session scheduled for tomorrow (the 20th) @ 3:00pm. A "work session" generally means the committee will discuss one or more pieces of proposed legislation, but won't adopt changes during the session. 1/ #ORLeg #ORPol #DisabilityJustice #RareDisease #CripTheVote

#ORPol #ORLeg: A Thread of 2025 bills affecting Housing, Eviction, & #TenantRights in Oregon Please scroll through. You can use legiscan.com to track bills you want to testify for/against. In this🧵: A few bills that would affect evictions, &/or housing opportunities. Most will harm tenants. 1/9

#Oregon, This hearing was today, but you can submit written testimony for 48 hours following the posted start time for hearings. Please take a moment to support HB2967 (bans rental application fees) and check out some of the other proposed bills that will affect tenants in OR. #ORLeg #CriptheVote

Oregon RDAC Coalition@rarediseaseoregon.bsky.social · 2y ago

#Oregon #ORLeg🧵 Let me draw your attention to another local bill! If passed, HB 2967 will impact EVERYONE who rents or hopes to rent in Oregon & increase housing equity by banning application fees. What does that mean? A landlord can't charge for background checks or to "process your application."

Disabled people have been warning about this since 2020. We've now got tons of scientific articles about post-covid illness/disability and the relationship between repeat covid infections and other health conditions. I hope you'll take a minute to follow some PWD and ask your friends to wear masks.

Chad Loder@chadloder.dev · 2y ago

So it's not just me? Is this one of the worst seasons we've had with non-COVID respiratory illnesses in recent memory? I see people getting sick constantly, like once a month every single month. My son's high school has been just full of sick kids since early November, kids are missing LOTS of days

#Oregon #ORLeg🧵 Let me draw your attention to another local bill! If passed, HB 2967 will impact EVERYONE who rents or hopes to rent in Oregon & increase housing equity by banning application fees. What does that mean? A landlord can't charge for background checks or to "process your application."

Disabled people have been sounding the alarm about fascism for five years now. Pandemics lead to fascism. They excuse the deaths of the most vulnerable first. How do you not become vulnerable like us? Wear a mask! If you become disabled from Covid, they’ll excuse your death too.

Response to attacks on marginalized residents' rights. Midwest West Coast

Alt-text for the political cartoon posted by Whitehouse (who voted against his constituents' interests): Two people in front of a fenced off white building. A banner flying from the roof says, "We are stealing everything!" One person asks the other, "Why can't democrats have such clear messaging?"

FYI, anyone can check politicians' voting history, bill sponsorships, financial ties, and known positions with Legiscan For example, here you can view the bill sponsors for HB 2457 and navigate to Sponsorships, Donors (FollowtheMoney), and Positions (VoteSmart) #USPol legiscan.com/OR/sponsors/...

The rep discussed in this thread is also sponsoring an anti-transgender "biological sex" sports and bathroom bill this year and actually wants to secede from Oregon to join Idaho. It won't pass, but no civil rights movement needs "help" from someone like that. #ORPol #CripTheVote #ProtectTransKids

Oregon RDAC Coalition@rarediseaseoregon.bsky.social · 2y ago

Statement on House Concurrent Resolution 4 (establishing "Ehlers-Danlos Awareness Month" in #Oregon) OR HRC4 is a performative proposal put forth by a transphobic, anti-choice bigot. "Raising awareness" without action does nothing for the thousands of Oregonians who live with #EDS or other #CTD 1/

So, you and your colleagues have stopped trying to obstruct the confirmation of people who want to loot and disenfranchise your constituents, and now you're lowering the bar to "answers?" If broke #disabled people could do more in 1977, so can you. #PWD - 25 days Democratic senators - overnight(?)

Senator Ron Wyden@wyden.senate.gov · 2y ago

It’s past time for Treasury to come clean on Musk’s takeover. People's Social Security, Medicare, and their most sensitive personal data is at risk. I'm not going to stop until I get answers.

Statement on House Concurrent Resolution 4 (establishing "Ehlers-Danlos Awareness Month" in #Oregon) OR HRC4 is a performative proposal put forth by a transphobic, anti-choice bigot. "Raising awareness" without action does nothing for the thousands of Oregonians who live with #EDS or other #CTD 1/

Thanks for finally doing something. It's a start, but these shifts must continue until there's no danger to the American people, including our #transgender, #BIPOC, #unhoused, #disabled, and #undocumented siblings. We need to see that our representatives are willing to do your jobs, which means

Senator Ron Wyden@wyden.senate.gov · 2y ago

I’ve got the morning shift. This guy is dangerous and unfit to serve and I’m about to explain why. Tune in: www.senate.gov/legislative/...

The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread: #CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs

Oregon RDAC Coalition@rarediseaseoregon.bsky.social · 2y ago

Hello #Oregon! If you are, have ever been, or might ever be impoverished and/or #disabled (hint: the longer you live, the more likely it becomes), or consider yourself an #ally to poor and/or disabled people, we have another opportunity for you to help improve #access to care! Please read on: (🧵)

Are you a healthcare worker that is still masking? Is it a struggle in your workplace (i.e. does your employer oppose covid precautions)? I want to hear from you for a story I'm writing! DM or email drmegkrausch@gmail.com #journorequest

Matthew Cortland is very good at what they do! Their patreon has a free tier & frequently posts spoon-friendlier calls to action. #ORLeg #Medicaid hearings start tomorrow but regardless of local outcomes, it is imperative that we also do everything possible to protect Medicaid at the national level

Matthew Cortland (they)@matthewcort.land · 2y ago

I don't have fancy branding for this Congressional Medicaid Advocacy Webinar, but what I do have are a very particular set of skills I've acquired and I want to teach you how to advocate for Medicaid with the legislative staff of a Member of Congress or U.S. Senator

My staff is hearing reports from Head Start programs in Oregon that they're still locked out of federal funds. My office is doing everything it can to get more info and get funds flowing before providers have to start closing their doors.

The #Oregon #Medicaid budget hearing is tomorrow! Please sign up to testify, if you can. If you can't, please submit written testimony. Details (including a sample letter) in this thread: #CripTheVote #ORLeg #NEISVoid #DisabilityJustice #DisCo #DisabilityCommunity #NothingAboutUsWithoutUs

Oregon RDAC Coalition@rarediseaseoregon.bsky.social · 2y ago

Hello #Oregon! If you are, have ever been, or might ever be impoverished and/or #disabled (hint: the longer you live, the more likely it becomes), or consider yourself an #ally to poor and/or disabled people, we have another opportunity for you to help improve #access to care! Please read on: (🧵)

Unfortunately, I don't expect to notice differences in access (for most of my care), because we've been experiencing an ongoing shortage of local specialists, combined with deliberate discriminatory institutional barriers, for years. For example, the largest local hospital system has been allowed

Julia Métraux@juliametraux.bsky.social · 2y ago

Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.

Hi, I am @motherjones.com' disability reporter. In the following weeks, I am very interested in hearing how tariff nonsense impacts getting your meds and medical equipment. My email to get in touch is jmetraux@motherjones.com. Reposts appreciated.

#Oregon #Medicaid (Also known as Oregon Health Plan or #OHP) -Pays rents -Buys groceries -Provides air conditioners during heat waves -Covers all reproductive healthcare -Covers all gender-affirming care -Covers mental health services -Exempts members from all medical bills and prescription costs

The Oregon Legislature is hearing testimony this week regarding the Medicaid Budget for 2025. Please submit testimony by Feb 5th at 1pm Sharing a personal story about how Medicaid has helped and we need expansion of coverage. Link to HB5025 olis.oregonlegislature.gov/.../Overview...

Please take 30 min to watch this video to understand what's at risk with Medicaid right now. We need people to speak out beyond social media. Use your spoons to take action- reach out if you need help thearc.org/resource/cal...

Watch the Webinar: Medicaid Advocacy in 2025

Learn about the growing concern of potential cuts to Medicaid and what you can do to help protect it.

thearc.org

Hello #Oregon! If you are, have ever been, or might ever be impoverished and/or #disabled (hint: the longer you live, the more likely it becomes), or consider yourself an #ally to poor and/or disabled people, we have another opportunity for you to help improve #access to care! Please read on: (🧵)

#PDX - in case you haven't heard, New Seasons labor is on #strike after management fired their #union treasurer. Don't be a scab. Don't cross the picket line. kboo.org/media/125427...

Portland New Seasons workers strike after their coworker was fired

By John Giacoppe

kboo.org

I just *know* somebody on here wants to talk about the OHSU "diagnosis matrix" (used to prevent disabled people from accessing specialists), or how it went with attempts to formally complain about any other number of shady things that hospital system routinely does to chronically ill patients.

Kelly@broadwaybabyto.bsky.social · 2y ago

I'm working on an article about why telling disabled patients to 'lodge a complaint' when we're mistreated in hospital is NOT a solution Ironically I was just severely mistreated and may actually be forced to lodge a complaint If you've complained & been ignored and want to comment... reach out!

I'm working on an article about why telling disabled patients to 'lodge a complaint' when we're mistreated in hospital is NOT a solution Ironically I was just severely mistreated and may actually be forced to lodge a complaint If you've complained & been ignored and want to comment... reach out!

#CripTheVote

Safe and accessible housing is a human right.

Marianne Dhenin@mariannedhe.bsky.social · 2y ago

Chances are you heard about Grants Pass, Oregon, last year when the town had a case before the Supreme Court. The court's decision criminalized homelessness, and now a new crop of far-right officials in Grants Pass are doubling down. I covered the developments: boltsmag.org/grants-pass-...

As we've been seeing with how politicians treat our own little #RareDisease patient coalition. 🤦 #NothingAboutUsWithoutUs

Erin Biba@erinbiba.bsky.social · 2y ago

All disabled people will tell you that we are infantilized by everyone on the entire political spectrum. We are arguably one of THE most well organized effective activist communities that exists. And yet we are told we need abled advocates to speak for us because we incapable of doing it ourselves.