Sabine Best

@sabinebest.bsky.social

Associate Director, Research Management & Impact, Marie Curie. Interested in end of life, PPI, #openaccess etc. All views my own.

Prizes return for the Marie Curie Research into Practice Conference 2026 In continuation with previous years, we will be presenting four awards. Two are now open for nomination of any researcher in the palliative and end of life care field:

A Marie Curie branded image reads Marie Curie Research into Practice conference award nominations are now open. Nominations close 9 january 2026

Dr Katharine Weetman, Marie Curie Associate Professor Dr John MacArtney and team have recently published findings on the challenges posing current discharge processes, identifying patient experiences and highlighting suggestions for healthcare professionals, summarised below.

John MacArtney@johnmacartney.bsky.social · last yr.

Latest paper with Katherine Weetman et al. on improving specialist palliative care discharge: bmcpalliatcare.biomedcentral.com/articles/10.... @nihr.bsky.social @warwickmed.bsky.social @mariecurieeolc.bsky.social @mariecurieuk.bsky.social @hospiceuk.bsky.social @nhscovwarksicb.bsky.social 1/

Abstract

Background: Patients who have received specialist intervention during periods of complex symptom and palliative care needs (e.g. pain crisis) may be discharged from specialist palliative care services to primary care. Despite such discharges being reasonably common, little is known about what happens during this process. We sought to explore 
patient, carer and healthcare professional experiences, identifying ways to improve this crucial and time-sensitive part of the healthcare journey.

Methods: A qualitative interview study designed using an interpretive approach and reflexive thematic analysis methods. Sampling was purposive across six specialist palliative care sites (hospitals and hospices) and six general practices.

Results: A total of 38 participants took part in interviews:15 patients, 8 carers and 15 primary care professionals. Two overarching key themes were developed. The first described the multiple ways that ‘discharge’ was understood depending on the setting and circumstances of the patient. The second explored what was associated with better 
or worse transitions to primary care. Discharge communications that were accurate and complete were described as effective whereby written information reinforced verbal instructions and acted as a reminder. Participant suggestions for improving these discharge communications included: incorporating the patient’s palliative care preferences (e.g. advanced directives); offering letters to patients and, where appropriate, carers; providing post-discharge follow-up 
and contact details; ensuring medication instructions are accessible to patients and carers.

Conclusions: Current specialist palliative care discharge communications risk confusion, distress, and increased workload post-discharge. The study identified numerous suggestions professionals could take to improve this process.

Priorities identified through the Marie Curie/James Lind Alliance (JLA) Priority Setting Partnership have guided our research grants scheme; end of life care in, and discharge from, hospitals. Read the JLA blog to learn more👇 And visit the scheme page - www.mariecurie.org.uk/research-and...

James Lind Alliance@jameslindalliance.bsky.social · last yr.

📢 ‪@mariecurieuk.bsky.social‬ has launched a funding opportunity that responds directly to the questions raised by patients, carers, and clinicians through the Palliative and End of Life Care Refresh PSP! More info in our latest blog post ➡️ buff.ly/KlHMxgO ‪@mariecurieeolc.bsky.social‬

The @mariecurieeolc.bsky.social research call is now open. We're delighted to partner up with two brilliant hospital charities: Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity. Deadline for expressions of interest is 21 July 25 www.mariecurie.org.uk/research-and...

Research Grants Scheme: improving hospital experiences

Marie Curie's next call for research will focus on improving the quality of care and discharge processes in hospitals for people at the end of life.

mariecurie.org.uk

I’m presenting at the Dorothy House Palliative Care Research Conference on 5 June, discussing the timely, effective and safe use of injectable end-of-life medications. Bringing together our brand new research for the 1st time! www.dorothyhouse.org.uk/palliative-c...

Palliative Care Research Conference

Our Palliative Care Research Conference aims to support researchers and practitioners to establish research opportunities in their hospice.

dorothyhouse.org.uk

Marie Curie funded research is looking into the palliative and end of life care research workforce. Can you help? The sessions seek to explore your views on the findings and implications for growing the palliative care research workforce in the UK. See below post for details 👇

Bild

🏅Our Tammy Prescott public and patient involvement award goes to the team behind the Victoria and Stuart Project! The project was a codesign of a toolkit of resources for advanced care planning for those at the end of life with learning difficulties.

Most carers of people at the end of life are significantly older, most aged over 65 years, 20% aged over 80 years - striking findings that chime with my experience of my mother caring for my father for > 2 years, aged 84+, Clare Gardiner Sheffield #MCResearch2025 www.sheffield.ac.uk/palliativere...

Financial and employment impacts of end of life family caregiving

Funded by Marie Curie, this study used data from the UK Household Longitudinal Survey (UKHLS) and Health Survey for England (HSE) to explore the financial and employment impacts of end of life caring ...

sheffield.ac.uk