1,000,000%! 💙♿️💙 #disability #wheelchair #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome linktr.ee/thezebraalliance

Ambulatory Wheelchair Meaning: Learning about Mobility Aids

Why someone might be using a wheelchair even if they can technically walk unsupported When you see someone in a wheelchair, many of us assume that the person in the wheelchair cannot walk at all. But ...

wikihow.com

Chronic Illness Humor@chronicillness.bsky.social · 14h ago

Peptides are exploding in popularity online, and they're inching closer to FDA approval for compounding. Dr. Josh Sharfstein, former Principal Deputy Commissioner of the FDA, discusses how peptides should be researched and regulated. 🔗 podcast.publichealth.jhu.edu/the-peptide-...

1,000,000%! 💙♿️💙 #disability #wheelchair #chronicillness #raredisease #chronicpain #invisibleillness #EDS #ehlersdanlossyndrome linktr.ee/thezebraalliance

Ambulatory Wheelchair Meaning: Learning about Mobility Aids

Why someone might be using a wheelchair even if they can technically walk unsupported When you see someone in a wheelchair, many of us assume that the person in the wheelchair cannot walk at all. But ...

wikihow.com

Chronic Illness Humor@chronicillness.bsky.social · 14h ago

More younger adults are being diagnosed with bladder cancer. A new Cleveland Clinic study found bladder cancer diagnoses are rising among adults under 50, with women making up a growing share of cases. Learn more: cle.clinic/45a3dnL

We would not be flying drugs around 🤪 How about this: Hire one of the over 7M people in need of jobs, many of whom have disabilities and #chronicillness ♿️💊 linktr.ee/thezebraalliance #prescription #Rx #healthcare #clevelandclinic

Cleveland Clinic@clevelandclinic.bsky.social · 3d ago

We're launching a drone delivery program for prescription medications. See how the program will be used to deliver medications quickly, safely and efficiently: cle.clinic/45BpRp7

#EhlersDanlosSyndrome: Easily bruise + skin that easily tears/puncture caused by fragile dermal capillaries & weak connective tissue surrounding blood vessels. Folks with #EDS are forever covered in bruises and skin injuries. 🤪 (Dont mind the stubble 🫣) linktr.ee/thezebraalliance #hEDS #vEDS #cEDS

PLUS you live w Autonomic Nervous System Dysregulation ( #Dysautonomia)... inferno of hell 🥵🫠 #POTS #menopause linktr.ee/thezebraalliance #memes

Memes & Musings@memesandmusings.bsky.social · 6d ago

Summer Heat + (Peri)Menopause: If I was 🌽 I would turn into 🍿 🥵😒🫠🤓😂 linktr.ee/memesandmusings (The Sugar Coated Sister video about heatwave) #menopause #perimenopause #memes #meme #hotflash #beingawoman

For most - esp for folks with #hEDS - it takes so darn long to be diagnosed, irreparable damage has been done. Fact: The world needs more doctors who can identify #EhlersDanlosSyndrome and #HypermobilitySpectrumDisorders 🩵🦓🩵 linktr.ee/thezebraalliance #EDS #chronicillness #chronicpain #disability

Doctor Explains Why EDS Takes So Long to Diagnose

YouTube video by Doctor Clair

youtu.be

“In the early days of living with #Fibromyalgia, you won’t believe the number of times I had a good day & tried to do everything I thought I should be doing, just to trigger a long #FlareUp. That lesson took a while to learn.”: buff.ly/Kzsoy15 by @Creativefibro.bsky.social #disabled #ChronicPain

What is a Fibromyalgia Flare-Up? Exposed

Have you ever wondered what a Fibromyalgia Flare-up is? This post tells you all about my experience of flare-ups and explains the different types of flare.

buff.ly

Read “The Invisible Burnout: ADHD in the Workplace” by Beth Rush on the TWLOHA Blog at https://twloha.com/blog/the-invisible-burnout-adhd-in-the-workplace/.

Do you live with #Dyscalculia? What is something you wish people understood? It frustrated my mum that teachers didnt help, and it made my depression and anxiety worse: 16 yrs but only 2 teachers took time to help me—The only two yrs I got an A in #math vs. C/D. linktr.ee/thezebraalliance #meme

When you’re laid low with diarrhea, the last thing you want to do is have a conversation about it — with a healthcare provider or anyone else. But sometimes it can’t be avoided. health.clevelandclinic.org/when-to-see-...

When To Seek Care for Diarrhea (and Where To Go)

Find out when diarrhea is safe to wait out at home, and when it warrants a trip to the doctor’s office, urgent care or ER.

health.clevelandclinic.org

July is Disability Pride Month. Pride? "The concept of #DisabilityPride was born out of the #Disability Rights movement and based on intersectional identity politics and social justice." DYK: Bush Jr signed the #ADA and made it law. Trump is taking protections and rights: dds.dc.gov/sites/defaul...

Washington law requires the state medical board to notify the media when an investigation into a doctor leads to formal charges. A review by @kuow.org and ProPublica found the board often waits to do so for months while the doctor continues to practice.

Washington Law Says to Alert the Public When Doctors Are Accused of Misconduct. It Can Take Months.

In the case of Mark Mulholland, who was repeatedly accused of sexual misconduct, the board waited six weeks to announce that it had filed charges. He was allowed to keep seeing patients during that ti...

propublica.org

Read up until the point he starts "advertising"— Information shared before that is valuable, put plainly so almost anyone can understand "the science" discussed. A friend shared this with me 🩵🦓🩵 Note: Author acknowledges it isnt the soul problem for all people. #MCAS #chronicillness #mentalhealth

Brain Inflammation Wearing Different Diagnoses

How inflammation reaches the brain and shows up as anxiety, depression, and sensory overload.

acemannan.substack.com

Having 'explosive' diarrhea? It could be from cyclosporiasis. Cyclosporiasis, a parasitic foodborne illness, is spreading across the U.S., with more than 1,000 infections being reported. Here's what we know. Subscribe to "The Uptake" for more news like this: publichealth.jhu.edu/headlines/ne...

Having PTSD is like having pop up ads in your brain for a horror movie that is based on a true story.

Vascular Ehlers-Danlos syndrome (vEDS) is a heritable connective tissue disorder that makes the connective tissue very fragile, particularly in the blood vessels and hollow organs. vEDS can cause life-threatening complications. Learn more about #vEDS: www.ehlers-danlos.com/veds/ #VascularEDS

New Cedars-Sinai research links hypothyroidism to a higher risk of small intestinal bacterial overgrowth, adding insight into how gut bacteria shape health beyond digestion. Learn more: https://ceda.rs/4p1Ovsd

Looking for a source to stay up to date on American Healthcare? NPR is one of the news platforms TZA trusts for information: www.npr.org/sections/hea... linktr.ee/thezebraalliance #Healthcare #memes #chronicillness #raredisease #invisibleillness #disability #mentalhealth #EDS #ehlersdanlossyndrome

Edward was diagnosed with PLOD1-related kyphoscoliotic Ehlers-Danlos syndrome in 2019, and shares his experiences with kEDS and oesophageal achalasia. youtu.be/7_6nUn7z8Cs?...

Edward - "Living with PLOD1-Related kyphoscoliotic Ehlers-Danlos syndrome (kEDS)"

YouTube video by The Ehlers-Danlos Society

youtu.be

Hypermobility spectrum disorders (HSD) are connective tissue disorders that cause joint hypermobility, instability, injury, and pain. Other problems such as fatigue, headaches, GI problems, and autonomic dysfunction are often seen as part of #HSD. youtu.be/93u8edKfbMQ?...

Signs You May Have HSD (Hypermobility Spectrum Disorder) | Symptoms, Diagnosis & Management

YouTube video by Doctor Clair

youtu.be

Also "I cant take more" Can you relate? Its not only hard, it can be downright scary. Thats definitely not talked about. I've been struggling w this A LOT. linktr.ee/lueoutdoorsllc #mentalhealth #mentalillness #chronicillness #raredisease #chronicpain #invisibleillness #disability #dynamicdisability

No one should be denied health care because of who they are or who they love. #HealthForAll #Pride

NEWS: Oxford researchers hunt for hidden protein clues to prevent prostate cancer Read about @oxpop.bsky.social and @ndsurgicalsci.bsky.social new research programme.

Oxford researchers hunt for hidden protein clues to prevent prostate cancer

A major new research programme, led by Professor Ruth Travis and Dr Karl Smith-Byrne (Nuffield Department of Population Health) and funded by Cancer Research UK, aims to uncover the biological causes of prostate cancer and identify ways to prevent the disease. The programme is being delivered through a collaboration between researchers in the Nuffield Department of Population Health and the Nuffield Department of Surgical Sciences (NDS).

medsci.ox.ac.uk

Gotta love relatable posts and memes that give you a giggle 😉😅😄 @chronicillness.bsky.social linktr.ee/thezebraalliance #meme #memes #chronicillness #raredisease #invisibleillness #disability #dynamicdisability #EDS #POTS #dysautonomia

REALLY, REALLY wish it was easy to explain what its like living w #EDS + (co)morbid conditions. Words can not convey the constant pain—physical & mental; utter exhaustion, and flare-ups; constantly grieving things you can no longer do because of #EhlersDanlosSyndrome + the list goes on. #hEDS #HSD

Relatable 🤪😆 linktr.ee/thezebraalliance #memes #meme #chronicillness #EDS #ehlersdanlossyndrome #HDS #hEDS #rarediseases #healthmemes

For many people living with #EhlersDanlossyndromes (EDS) or #hypermobilityspectrumdisorders (HSD), diagnosis is only the start. The next challenge is navigating care, being heard, finding support, and accessing joined-up services. ⁠