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Michael Sieverts

@yogafogie.bsky.social

DMV native. COVID long hauler. Patient-Led Research Collaborative.

146 Posts1311 Follower309 Folgt
Alexa Philippou@alexaphilippou.bsky.social · 5mo ago

Breaking: Restricted free agent Shakira Austin is returning to the Washington Mystics on a three-year deal, sources told ESPN. Austin, the AP Comeback POY, signed an offer sheet with the Toronto Tempo worth $3.57M, but Washington matched it to retain one of its young stars

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Patient-Led Research Collaborative@patientled.bsky.social · 6mo ago

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1

Long COVID Treatment Guide

An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

rthm.com

Michael Sieverts@yogafogie.bsky.social · 9mo ago

I read this over the past few days. It (somehow enjoyably) captures so much of life with chronic illness. And, as the reviewer writes: "It’s also about grief, loss, pain, loneliness and the healing power of love. It’s sad but not depressing, loving but not maudlin, philosophical but not pompous."

Grace Simms@gracelsimms.bsky.social · last yr.

‘We Should All Be Birds’ by Brian Buckbee is a love letter to pigeons - The Washington Post www.washingtonpost.com/books/2025/0...

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 12mo ago

Getting ready to watch the livestream; it seems to be starting a few minutes late. I can't promise a full live blog but will do my best to share major updates here (while @mileswgriffis.bsky.social and I also work on our write-up).

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 12mo ago

Just announced: HHS Secretary RFK Jr. is hosting two "roundtable discussions" about Long COVID tomorrow at 2 p.m. ET. @thesicktimes.org will be covering the event and reactions from the Long COVID community. (Reach out if you'd like to send us comments during or after!)

Screenshot of text: MEDIA ADVISORY—FOR PLANNING PURPOSES ONLY Livestream: Secretary Kennedy Convenes ‘Leading the Way on Long COVID’ Roundtables WASHINGTON—SEPTEMBER 17, 2025— Health and Human Services Secretary Robert F. Kennedy, Jr. will lead two roundtable discussions to drive actionable steps against Long COVID in the United States — one focused on patient experiences and the other on research. The event underscores the Trump Administration’s commitment to confronting the “invisible illnesses” that affect millions of Americans. WHO: Health and Human Services Secretary Robert F. Kennedy, Jr. FDA Commissioner Dr. Marty Makary NIH Director Dr. Jay Bhattacharya U.S. Senator Roger Marshall (R-KS) U.S. Senator Todd Young (R-IN) Congressman Jack Bergman (R-MI) Additional patients, providers, medical professionals, and others researching, treating, and who have been affected by Long COVID. WHEN: Thursday, September 18 at 2 pm ET WHERE: The event is not open to the public but press and the public are invited to watch the event livestream on HHS.gov, X, YouTube, and Facebook.
Billy Hanlon@bhanlon15.bsky.social · 12mo ago

Tuning into the HHS 'Invisible Illness: Leading the Way on Long COVID Roundtable' Featuring: RFK Jr. FDA Commissioner Makary NIH Director Bhattacharya Sen. Roger Marshall (R-KS) Sen. Todd Young (R-IN) Rep. Jack Bergman (R-MI) + 'Patients, providers, researchers..' Here goes nothing.... 😬 😬 😬

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It's ME(Jaime)@exceedhergrasp1.bsky.social · 12mo ago

Oh, so they're telling #NIH staff what they can do and where they can go in their free time, again. Guessing this is illegal, but by the time they prove it, the conference will have passed. The conference should make all materials publicly available afterwards.

Dave Levitan@davelevitan.bsky.social · 12mo ago

NEW: Per multiple sources, NIH staff have been told that "DOJ has advised" that they "should NOT" attend the American Public Health Association annual meeting, which is taking place in far-off, uh, Washington DC November 2-5.

Meghan O'Rourke@meghanor.bsky.social · last yr.

Mount Sinai’s new manual for the treatment of infection-associated chronic diseases is an important step: not a cure-all, sure, but an important instance of a medical institution taking IACD seriously—including Lyme & TBDs—and introducing frameworks for care. Thx @putrinolab.bsky.social & CORE!

Michael Sieverts@yogafogie.bsky.social · last yr.

Valuable: "I live with neurocognitive effects from Lyme disease and Covid, which can result in headaches and limit my screen time. ChatGPT helped me conserve energy for higher-order thinking and writing. It didn’t diminish my sense of agency; it restored it." #LongCOVID #MECFS

Siegenthaler Lab@siegenthalerlab.bsky.social · last yr.

@meghanor.bsky.social article is exceptional, the concerns raised apply just as much to scientific writing. You can use AI to generate ideas, to summarize, to even write your grants & manuscripts...but, ethics aside, do you miss out on 'the pleasure of invention'? www.nytimes.com/2025/07/18/o...

Michael Sieverts@yogafogie.bsky.social · last yr.

For people in the DMV, I think tickets are still available for tomorrow's free concert with renowned cellist Joshua Roman for the #LongCOVID community. The Immunity project is a performance and advocacy initiative grounded in his experience with Long COVID.

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It's ME(Jaime)@exceedhergrasp1.bsky.social · last yr.

The CDC Data Project shows the impact of the proposed FY26 budget: how lost grants affect each state, that (despite promises) chronic disease funding would be cut more than any other program. We're looking at a cash grab rather than attempts at greater 'efficiency'. 🧪 www.cdcdataproject.org

The CDC Data Project

In the proposed FY26 budget, programs that help Americans live safer, healthier, longer lives are on the chopping block.

cdcdataproject.org

Michael Sieverts@yogafogie.bsky.social · last yr.

Noteworthy and insightful op-ed from former NSF and OSTP Director Neal Lane in the @washingtonpost.com . "We urge Congress ... to awaken to what has been happening .... The future of U.S. science, technology, economic well-being and national security depends on it." wapo.st/3T5wHNz

Opinion | Trump is undermining U.S. science. Here’s why that’s dangerous.

Science has played a crucial role in making the United States great and powerful.

wapo.st

Billy Hanlon@bhanlon15.bsky.social · last yr.

Fierce Biotech: 'RFK budget hearing takeaways' 'Sen. Bill Cassidy, R-LA, chair of the committee..asked if HHS would continue to support long COVID research..' "Senator, I am 100% committed to finding treatments for long COVID..." www.fiercehealthcare.com/regulatory/d...

RFK budget hearing takeaways: Kennedy defends reorg, unaware of $11B grant terminations

Updated: May 14 at 5:20 p.m. ET | Secretary Robert F. Kennedy Jr. is defending the Trump administration's actions in reshaping the HHS. Industry pushback and fear are plaguing national healthcare orga...

fiercehealthcare.com

The Sick Times@thesicktimes.org · last yr.

During the Senate Health, Education, Labor, and Pensions (HELP) Committee hearing with Health Secretary Robert F. Kennedy Jr. today, Kennedy testified that he is "100% committed to finding treatments for Long COVID." The Sick Times will continue to follow the story.

betsy ladyzhets 😷@betsyladyzhets.bsky.social · last yr.

Today @thesicktimes.bsky.social: @mileswgriffis.bsky.social covers this year's #MillionsMissing demonstration, with photos by DC-based photographer Robb Hill. thesicktimes.org/2025/05/12/m...

“Millions Missing” protest at the Capitol demands myalgic encephalomyelitis funding, social support - The Sick Times

Myalgic encephalomyelitis (ME), Long COVID, and other chronic disease advocates demonstrated outside the Capitol Building in Washington, D.C., this afternoon. Organized by the advocacy group #MEAction...

thesicktimes.org