Today @thesicktimes.org: Actor and playwright Elizabeth Pugh argues that Long COVID organizations should use person-first language, drawing on her own experience with HIV/AIDS activism in the 1990s. thesicktimes.org/2026/08/04/t...

There’s a long history of person-first language in advocacy. Here’s why we should use it for Long COVID. - The Sick Times

Labeling people with Long COVID as “patients” is stigmatizing and personally and politically harmful. It strips personal agency. And frankly, it’s bad PR.

thesicktimes.org

Inflammatory disorders can be brutal. I’d know personally (thanks vasculitis et al). But the misinformation, including on vaccines, is dangerous. A deep dive from me into how MAHA sped up the inflammation panic. New from me at @motherjones.com www.motherjones.com/politics/202...

The Great Inflammation panic

The wellness world's favorite buzzword has gone federal. For those of us with real inflammatory disorders, the misinformation isn't just annoying—it's harmful.

motherjones.com

Obsessed with the fact that Wisconsin residents opposing a data center, with which Eric Adams is somehow involved, used the Hell Gate Table of Success to inform their advocacy. @hellgatenyc.com rules as always. (And this whole story is wild!) hellgatenyc.com/eric-adams-i...

Les Mis mis at Radio City Music Hall is incredible. Stacked cast and a full orchestra!!! Multiple French horns!!!!

*standing up on the plane* okay i'm gonna read "america" by allen ginsberg. don't worry i'm not gonna do the n word part. okay. america i've given you all and now i'm nothing. america two dollars and twentyseven cents january 17, 1956. i can't stand my own mind. america when will we end the hu

Damn, even Fauci was disappointed in NIH RECOVER.

Huge congrats to Jane Qui, who has been awarded the @sciencewriting.bsky.social 2026 Sharon Begley Award for Science Reporting for her wide-ranging reporting on everything from Tibet's grasslands to CRISPR babies and the lab leak controversy. casw.org/news/jane-qi...

we need to be rapidly & massively increasing public health funding. yet we have one party that is explicitly anti-public health, while the other thinks preventing funding cuts each year is good enough (which they still fail to do half the time). the pandemicene is here. something’s gotta change

public health guy@publichealthguy1.bsky.social · last wk.

2020 was bad. very bad. horrific in every sense of the word. unfortunately it can get a lot worse. the seriousness of these threats — for which the clock is ticking — is barely reflected in our politics, largely for reasons every disability scholar has written on at this point. these are the stakes

Today @thesicktimes.org: @sweetsciencewriter.bsky.social covers the recent Dysautonomia International conference! Featuring a new biobank initiative, presentations on autoimmunity, clinical trial results, discussions on the overlap of POTS and ME, and more. thesicktimes.org/2026/07/28/d...

Dysautonomia conference centers biomarkers and post-exertional malaise - The Sick Times

The 14th annual Dysautonomia International conference outside Houston included presentations on the role of autoimmunity in dysautonomia and a biobank initiative for POTS research.

thesicktimes.org

Why is airborne disease transmission still controversial to doctors? In this week's episode of Still Here (@produced by @melaniemarich.bsky.social), co-hosts @mileswgriffis.bsky.social and @betsyladyzhets.bsky.social talk to Lola Germs about that and more. thesicktimes.org/2026/07/24/w...

🚨Breaking🚨: NIH is terminating health disparities research grants again. This time, they may successfully avoid legal challenges by giving specific reasons for their decisions. One grant so far, more to come. Exclusive @science.org by me and @jocelynkaiser.bsky.social www.science.org/content/arti...

NIH is again terminating grants that the Trump administration dislikes

With cancellation of health disparities project, agency may be testing new way to legally kill politically sensitive grants

science.org

Today @thesicktimes.org: Writer Flynn Lovelace shares his experience as a teacher with Long COVID, seeing signs of the disease among his students. "Since 2020, disease has held a constant, detrimental grip on classrooms across K–12 (and higher) education," he writes.

The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times

We must help students by addressing Long COVID and advocating for clean air in schools.

thesicktimes.org

“Science journalism is not just about explaining science. It is about showing how science matters for our lives, our decisions, and our shared future, as well as how it's a source of awe and joy,” writes @siricarpenter.bsky.social in our new book’s intro.

The Best Science Stories and How They Work: A Collection with Commentary - The Open Notebook

An invitation to engage with some of today’s most respected science journalists as they take readers beneath the surface to tell the stories behind eleven of the best science stories.

theopennotebook.com

I am so excited to announce the pre-sale for my forthcoming book, The Struggle Is Always Worth It! This is also the first reveal of the table contents, and let me tell you, there are some superstars who contributed to this book. givebutter.com/SIAWI-presale

Struggle Is Always Worth It book pre-sale

Pre-sale and fundraiser for the edited collection, The Struggle Is Always Worth It, coming out December 2026.

givebutter.com

Today @thesicktimes.org: @spichaksimon.bsky.social wrote a detailed explainer on how to interpret clinical trial results, focusing on issues that come up specifically for Long COVID trials. thesicktimes.org/2026/07/21/h...

How to interpret clinical trial results for Long COVID - The Sick Times

With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...

thesicktimes.org

I don’t think I’ve ever met Mari (a pseudonym), but her story is so deeply familiar to me and the things I’ve witnessed here in the States. Homelessness triggering Long Covid ME, triggering continued homelessness. Caregiver abuse that goes unrecognized as DV. Complete absence of social services.

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 2w ago

Today @thesicktimes.org: Without help from government institutions, people like Mari, a young Black woman living in Canada with severe ME, are supported primarily by fellow people with severe symptoms. thesicktimes.org/2026/07/20/a...

'“I didn’t have anyone close to me who cared enough to help me when I wasn’t being happy & friendly,” Mari said. This is common among people who develop severe ME, who often experience widespread abandonment as their condition worsens.' Help Mari escape caregiver abuse: www.gofundme.com/f/marigfm

Donate to Help a Severe ME patient safely escape her abuser, organized by Mutual Aid Saves Lives Julissa C

TW: caregiver abuse, s*icidal ideation Mari has … Mutual Aid Saves Lives Julissa C needs your support for Help a Severe ME patient safely escape her abuser

gofundme.com

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 2w ago

Today @thesicktimes.org: Without help from government institutions, people like Mari, a young Black woman living in Canada with severe ME, are supported primarily by fellow people with severe symptoms. thesicktimes.org/2026/07/20/a...

Today @thesicktimes.org: Without help from government institutions, people like Mari, a young Black woman living in Canada with severe ME, are supported primarily by fellow people with severe symptoms. thesicktimes.org/2026/07/20/a...

Abandoned by our governments, people with severe ME and Long COVID are supported by severely ill peers - The Sick Times

Mari, a Black Canadian woman with severe myalgic encephalomyelitis (ME), is supported by fellow people with ME in the absence of institutional care.

thesicktimes.org

I can't possibly do the story justice in a Twitter thread, so please read it on @cenmag.bsky.social: cen.acs.org/pharmaceutic... 13/13

Access to potential long COVID drugs dwindles as trials falter

Two sets of studies for COVID-driven conditions show the struggles of drug development

cen.acs.org

"When healthy people become ill, they expect to call a doctor, receive treatment, and recover. When people with myalgic encephalomyelitis (ME) become sicker, they often rely on other sick people for care, in the absence of systemic support." thesicktimes.org/2026/07/20/a...

Abandoned by our governments, people with severe ME and Long COVID are supported by severely ill peers - The Sick Times

Mari, a Black Canadian woman with severe myalgic encephalomyelitis (ME), is supported by fellow people with ME in the absence of institutional care.

thesicktimes.org

DOGE axed the CDC team that tracks cyclospora. Now 1000s are sick, restaurants & hospitals scrambling. What's next? “Cyclospora is just one piece. It's making the news right now, but there are other, more dangerous pathogens.” By @emilymullin.bsky.social www.wired.com/story/cdc-cy...

The CDC Has a Cyclospora Lab. DOGE Downsized It Last Year

“Based on simple math, these outbreak responses—which require rapid, timely responses—are going to be greatly diminished,” the former CDC lab director tells WIRED.

wired.com

The only research center in the United States focused on disabled parents may close soon due to loss of federal funding. New from me at @motherjones.com. “It is a profound setback for disability rights and family equity.” www.motherjones.com/politics/202...

The only research center for disabled parents is losing federal funding

Staff call it a "profound setback for disability rights and family equity."

motherjones.com

RECOVER-TLC is currently hosting a webinar sharing updates on the NIH-run, Long COVID clinical trials initiative. I'll be live blogging a bit here, and we'll share any notable updates on the @thesicktimes.org's socials and/or website later today.

We are in the last few hours of this fundraiser and still about 50 new Supporters away from our goal! Please consider signing up for a monthly donation if you value our work: the-sick-times.fundjournalism.org/donate/

The Sick Times@thesicktimes.org · 3w ago

🚨🙀‼️: Our summer fundraiser ends tomorrow at midnight and we need your help to cross the finish line! We’re aiming to gain 88 more Supporters. Monthly donors, even at $1 a month, help us in our mission in becoming a more sustainable newsroom.

Today’s the final day of our summer sustainability fundraiser and we could really use your help! Sign up to become a monthly donor at any amount, and keep our Long COVID journalism going.

The Sick Times@thesicktimes.org · 3w ago

🚨🙀‼️: Our summer fundraiser ends tomorrow at midnight and we need your help to cross the finish line! We’re aiming to gain 88 more Supporters. Monthly donors, even at $1 a month, help us in our mission in becoming a more sustainable newsroom.

Hi! For reporting I'm doing at @motherjones.com, I'm looking to connect with people on how workplace accommodations has helped their mental health when it comes to changing in function due to Long Covid. Please reach out at jmetraux@motherjones.com. Reposts appreciated.

nyc giving out free KN95s at these public libraries (for the wildfire smoke on its way, but like, let’s do this all the time) www.nyc.gov/site/em/abou...

🚨🙀‼️: Our summer fundraiser ends tomorrow at midnight and we need your help to cross the finish line! We’re aiming to gain 88 more Supporters. Monthly donors, even at $1 a month, help us in our mission in becoming a more sustainable newsroom.

Donate to @thesicktimes.org so that Jacko can be paid a living wage (in dog treats)

betsy ladyzhets 😷@betsyladyzhets.bsky.social · 3w ago

this is who proofreads @thesicktimes.org fundraising emails BTW

this is who proofreads @thesicktimes.org fundraising emails BTW