Ashlee 🤟🏻

@ashleemboyer.com

Deaf, ND, multiply disabled. W3C Invited Expert participating in WCAG 3. Software eng. & consultant: @ashlee.semanticfish.com Blog: ashleemboyer.com More writing: @semanticfish.net Interests: crip theory & critical access/disability studies.

I knew I was having bad executive functioning issues but yesterday I learned about functional freeze. Pretty sure I’ve been there for a long time. I read that creativity and journaling can help, and I’ve already been writing with pen and paper and finding it helpful in organizing my thoughts.

Green text above a portrait layout zine on a striped rug. The text reads “day 1 zine-ing through executive dysfunction.” The zine cover has thin black text on a background of pastel colored blobs. The text reads “how to ship a landing page” in all caps. There’s a light pink paperclip on the right edge holding the zine closed.

When disabled people/many people who work on disability/health pointed to the dangers of this kind of framing since COVID, they were usually mocked ("oh you think everything is eugenics") or ignored. But normalising the idea that the deaths of disabled people are desirable/reassuring is dangerous.

The New York Times@nytimes.com · 2d ago

Breaking News: Two deaths in Michigan have been linked to cyclospora. Both people who had the parasite also had underlying health issues.

If you lead with ”web developers know accessibility,” I’m probably gonna ask you to write a lil’ persuasive essay backing up your points. You don’t have to of course, but I’m genuinely curious about this when it’s used as a premise. And I say this as a software engineer of 8+ years.

A year ago today, I held her hand as she took her last breath. Her arm was feverish. Shocking bc she was always cold. I’m the same. Touching my arm today, if it’s warm, I’m whiplashed straight to that moment. How has it been 365 days since the woman who mothered me breathed at the same time as me?

Ashlee 🤟🏻@ashleemboyer.com · 12mo ago

She is my first and last thoughts every single day. Every single day, such heavy thoughts. I love to picture her smile and laugh, even though those images quickly remind me of the cold permanence of her absence.

A casket splay full of red roses, atop the end of a white casket, with two ribbons peeking out with sparkling, gold lettering: Mother, Grandmother.

As a deaf person I say HELL YEAH to the ppl who used Deaf applause (see 1:35). Notice I said: applause, not clap. The distinction is important. The rules were don’t clap bc the sound delays between speakers. Deaf applause was silent. But then they added another rule: don’t wave, it‘s distracting.

404 Media@404media.co · last wk.

Police arrested a teacher for clapping during a city council meeting last week. They went to the meeting of Emporia, Kansas City Commission to speak out against a proposed hyperscale data center that would sit on 1,000 acres of rural land. @mjgault.bsky.social reports www.404media.co/person-oppos...

it’s a good day to remind yourself that you are a mammal, and all animals are going to want to move slow and conserve energy in this heat give yourself some grace and drink some water

“I believe disability parking spots should only be for people with a certain level of disability where they require parking in such a place.” How do people think these placards are acquired??? 🤔

One year ago today, the woman who mothered me was put on a ventilator she would not be able to come off of. I had not visited her in the hospital yet despite her asks. I took away her last chances to see me, talk to me, hear me. I haven’t forgiven myself, but I’m trying to. 💔

To whom it may concern: My body has designated Tuesdays as pain flare days. No, she did not care that it’s Disability Wrath Month. Actually, maybe it’s how she’s celebrating this year. I‘ll just trust she’s cackling in rebellion against conformity. Thank you for your attention to this matter.

The 22nd marks one year since I entered a hellscape I could have never predicted. The next week is going to be awful. Not the best time to be waiting to hear back from interviews. I’m afraid if it’s not good news it‘ll crush me.

For example: There is no path for me, a deaf person, to easily inquire about accessibility when I’m called for jury duty in Indiana. My only option is to say “Yes” to the infuriating question, “Do you suffer from a physical or mental disability that would prevent satisfactory jury service?”

Ashlee 🤟🏻@ashleemboyer.com · 3w ago

I’ve seen some discourse about this ban negatively impacting d/Deaf/HH people who use smart glasses for captioning. I implore folks who make that point to more strongly reject disability dongles and demand meaningful accessibility in court settings. CART, signed & other language interpreters, etc.

I’ve seen some discourse about this ban negatively impacting d/Deaf/HH people who use smart glasses for captioning. I implore folks who make that point to more strongly reject disability dongles and demand meaningful accessibility in court settings. CART, signed & other language interpreters, etc.

Hypervisible @hypervisible.blacksky.app · 4w ago

“Beginning on July 20, all eyewear or headwear that contains cameras, microphones or other recording technology will not be allowed inside any Unified Court System facilities, according to a memo from the Office of Court Administration.”

Listen. I’m no fan of McConnell. Criticize the hell put of him. But do it equipped with a little more knowledge about disability and US healthcare. 😅 That picture isn’t in a hospital bed. It’s a chair. You can wear whatever you want in rehabilitation facilities. It’s not the ICU.

Hello friends near and far 💜 I've reached the end of my savings, frustratingly, just as we've solved the root mystery of my illness (it's Lyme) and are seeing continued success with treatment. I'm asking for your help in bridging the gap between now and when I can hopefully work full-time again.

Donate to Help Kate Beat Lyme, organized by Kate Violette

Hello! I’m Kate Violette and I’m asking for community help in finishing beating an illness that took… Kate Violette needs your support for Help Kate Beat Lyme

gofundme.com

There is a lot to unpack here and I don't have all the words for it yet. But it feels really gross that disability is positioned as an unfortunate "ever-increasing" consequence of aging. The outcome of advancements in medicine & accessibility is that disabled people live longer.

Quote in a white box on a dark background that reads: Everybody hopes to live well into their 70s, 80s, and beyond. Unfortunately, an ever-increasing percentage of people will acquire functional limitations as they age. In fact, all of us will acquire disabilities – unless we die first.

Meal delivery is accessibility. Grocery delivery is accessibility. Pre-peel/cut food is accessibility. Single use plastic straws are accessibility. Audiobooks are accessibility. Image, video, & audio descriptions are accessibility. Captions & transcripts are accessibility. Just some examples.