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Ashley Hultman

@ashleyhultman.bsky.social

#TeachMETreatME #hEDS #MyalgicEncephalomyelitis #MESpine #CCI #POTS #longCovid #AuDHD #endo • Capitol Hill, AFL-CIO, and AFT alum • She/her

123 Posts1635 Follower963 Folgt
George Monbiot@georgemonbiot.bsky.social · last wk.

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

theguardian.com

Ashley Hultman@ashleyhultman.bsky.social · 3mo ago

A group of us are fundraising for Nevra to have a caregiver in place, a permanent, safe, and accessible home, health care, and medication. Please check out her fundraiser below, consider a donation if you can, or help amplify her story. Thank you! 💙

Liz Nevra A.@nlizaki.bsky.social · 3mo ago

Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of blossoms on a tree with text overlaid that reads "Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer"
Ashley Hultman@ashleyhultman.bsky.social · 3mo ago

A group of us are fundraising for Nevra to have a caregiver in place, a permanent, safe, and accessible home, health care, and medication. Please check out her fundraiser below, consider a donation if you can, or help amplify her story. Thank you! 💙

Liz Nevra A.@nlizaki.bsky.social · 3mo ago

Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of blossoms on a tree with text overlaid that reads "Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer"
Liz Nevra A.@nlizaki.bsky.social · 4mo ago

Please continue sharing & donating Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #KeepNevraOutOfDV #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #DisabilitySupport #ChronicIllness #MedicalCrisis #MEAwareness #HelpNevra

Donate to Help Nevra Secure Surgery, Care, and Safety, organized by Adrian Bamforth

Nevra is a 28 year old young woman in Karachi, Pakistan, who has been suff… Adrian Bamforth needs your support for Help Nevra Secure Surgery, Care, and Safety

gofundme.com

Liz Nevra A.@nlizaki.bsky.social · 4mo ago

Urgent Nevra June Update! We have raised £2,732- enough to temporarily cover urgent costs. But we still have £2,918.54 left to raise toward the next critical stage of keeping Nevra safely housed & medically supported. Nevra's facing the increasing likelihood of having to return to DV.

Jasmine 🌌🔭@astrojaz.bsky.social · 6mo ago

“every triumph, every tear, every birthday cake, every disappointment, every skinned knee, every dust off, every draped flag, every first dance, every missed flight, every shift change, every twirl hug, every wave goodbye, every love note, every human. us. you. all we have.” - christina koch 🌎

Earth half-illuminated in space.
Aaron Rupar@atrupar.com · 6mo ago

Kaine: "You don't sucker punch somebody in a bar and then blame your buddies when they don't join the fight with you. If the president wanted the support of allies, he should've respected them instead of putting tariffs on their economies and trash talking them."

Katharina 🦋🍋🍀@katha1970.bsky.social · 11mo ago

‼️Germany allocates 500 million Euros to research on #MECFS #LongCovid #PAIS from 2026-2036‼️ “We are opening a new chapter in researching these diseases.” "The National Decade Against Post-Infectious Diseases is coming." - German Federal Research Minister Dorothee Bär @dorobaer.bsky.social

Nationale Dekade gegen Postinfektiöse Erkrankungen: Insgesamt eine halbe Milliarde Euro für weitergehende Forschung - BMFTR

Nationale Dekade gegen Postinfektiöse Erkrankungen: 500 Millionen Euro für Forschung

bmftr.bund.de

Adam@abrokenbattery.bsky.social · 11mo ago

Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID. Addressing what they call “one of the greatest public health challenges of the 21st century.” www.zeit.de/politik/deut...

Chronic Fatigue Syndrome: Bundesregierung will Erforschung von ME/CFS stärker fördern

Die Zahl der Long-Covid- und ME/CFS-Erkrankungen hat seit der Pandemie stark zugenommen. Bis 2036 sollen deswegen 500 Millionen Euro in die Forschung investiert werden.

zeit.de

Peter Morley ♿️@petermorley.bsky.social · last yr.

🔥🔥CMS UPDATE ON TELEHEALTH FOR MEDICARE DURING SHUTDOWN🔥🔥 BEGINNING: 10/1/2025, MANY of the statutory limitations that were in place for Medicare TELEHEALTH services prior to the COVID-19 Public Health Emergency will take effect AGAIN for services that are NOT behavioral and mental health services.

Update on Medicare Operations: Telehealth, Claims Processing, and Medicare Administrative Contractors Status During the Shutdown When certain legislative payment provisions (“extenders”) are scheduled to expire, CMS directs all Medicare Administrative Contractors (MACs) to implement a temporary claims hold. This standard practice is typically up to 10 business days and ensures that Medicare payments are accurate and consistent with statutory requirements. The hold prevents the need for reprocessing large volumes of claims should Congress act after the statutory expiration date and should have a minimal impact on providers due to the 14-day payment floor. Providers may continue to submit claims during this period, but payment will not be released until the hold is lifted. Absent Congressional action, beginning October 1, 2025, many of the statutory limitations that were in place for Medicare telehealth services prior to the COVID-19 Public Health Emergency will take effect again for services that are not behavioral and mental health services. These include prohibition of many services provided to beneficiaries in their homes and outside of rural areas and hospice recertifications that require a face-to-face encounter. In some cases, these restrictions can impact requirements for meeting continued eligibility for other Medicare benefits. In the absence of Congressional action, practitioners who choose to perform telehealth services that are not payable by Medicare on or after October 1, 2025, may want to evaluate providing beneficiaries with an Advance Beneficiary Notice of Noncoverage. Practitioners should monitor Congressional action and may choose to hold claims associated with telehealth services that are not payable by Medicare in the absence of Congressional action. Additionally, Medicare would not be able to pay some kinds of practitioners for telehealth services. For further information: https://www.cms.gov/medicare/coverage/telehealth.
Long Covid Families@longcovidfam.bsky.social · last yr.

New Lancet Study: 2x Risk of Long COVID After Reinfection Risks of other serious outcomes also rise sharply. This is not a “mild” illness when it rewrites a child’s future. We need research, medical care, and school protections that match the scale of the problem. #LongCOVID

Long COVID associated with SARS-CoV-2 reinfection among children and adolescents in the omicron era (RECOVER-EHR): a retrospective cohort study

Children and adolescents face a significantly higher risk of various PASC outcomes after reinfection with SARS-CoV-2. These findings add to previous evidence linking paediatric long COVID to multisyst...

thelancet.com

It's ME(Jaime)@exceedhergrasp1.bsky.social · last yr.

Ebola has a sixty-something percent mortality rate and costs a great deal to treat just one patient. With vaccination this low and treatment this expensive, this is a human rights disaster in the making. This is a problem only money can solve right now.

It's ME(Jaime)@exceedhergrasp1.bsky.social · last yr.

This is extremely bad. In the past, the Congo would have leaned heavily on USAID. That's no longer possible. "...Just 1,740 people in three health zones of Kasai province have been vaccinated as of Sept. 21. The Bulape zone alone has a population of more than 212,000."

Ian Weissman, DO@drianweissman.bsky.social · last yr.

A new Ebola outbreak in Congo kills dozens as health officials warn of lack of funds. WHO says 57 cases and 35 deaths have been reported since outbreak was announced this month. www.statnews.com/2025/09/25/e...

Peter Morley ♿️@petermorley.bsky.social · last yr.

FACT: When the 1st Trump administration cut the budget for ACA Open Enrollment information by 90%, Jimmy Kimmel used his platform to make sure that everyone on the marketplace in America knew that you needed to sign up or change your marketplace plan. That speaks for itself. Miss you, Jimmy Kimmel.🙏

Sean Mullen, Ph.D.@drseanmullen.bsky.social · last yr.

I’m not an epidemiologist, but a cognitive scientist & biomedical researcher (PhD, Education) with expertise in digital health, health literacy, and behavior change. Not a credential drop—just context to establish perspective & credibility.