Royal Free 1955
@rfh1955.bsky.social
ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc. https://rfh1955.blogspot.com/
The Black Country Evening Mail, England. 2nd March 1990. #mecfs #cfsme #myalgicencephalomyelitis #myalgice Psychiatrists and children again.
The Irish Independent. 2nd March 1993. About 'TATT' but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice
Medicine's ongoing failure to deal with Long Covid did not begin in 2020. It happened decades before that. Nothing has changed since, all of this has been and continues to be intentional. There is something deeply wrong with parts of this industry, in how they deal with their own failures.
Adam@abrokenbattery.bsky.social · 6mo agoIntro to a 1993 documentary on #MECFS When medicine doesn’t understand an illness, patients are often mistreated. New discoveries challenge existing beliefs, but in the meantime, for those suffering, life can be a living hell.
Video of presentation on #longcovid. She immediately rules out any discussion on the overlap between long Covid and #myalgicencephalomyelitis. The medical profession’s complete mishandling of ME is, in part, why there’s nothing available for long Covid. @crick.ac.uk
GhostWarrior ⚔️🏳️🌈 🇨🇦🇺🇦@ghostwarrior.bsky.social · 6mo agoyoutube.com/watch?v=JMNe... @uriebay.bsky.social @beyerstein.bsky.social @tomlevenson.bsky.social @anniegirl.bsky.social @doloresquintana.bsky.social @merlinofcanada.bsky.social @maej43.bsky.social More on #LongCovid
Ten years ago today. The Plain Dealer, Ohio, US. 1st March 2015. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
The Leader-Post, Saskatchewan, Canada. 1st March 2021. #longcovid #cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Saginaw News, US. 1st March 1996. Not about #myalgicencephalomyelitis as such but it is mentioned. #lymedisease #chroniclyme #myalgice #mecfs #cfsme
The Daily Republican-Register, Illinois, US. 1st March 1989. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
About #gulfwarsyndrome #gws but mentions #myalgicencephalomyelitis #cfsme #mecfs #myalgice The Daily Post, Liverpool, England. 1st March 1999.
The Evening Telegraph, Derby, England. 1st March 1997. #mecfs #myalgicencephalomyelitis #myalgice #cfsme
The Daily Telegraph, UK. 1st April 1994. Rodney Silver (a.k.a. Anthony Daniels) gets a reply to his diatribe. #myalgicencephalomyelitis #cfsme #myalgice #mecfs
Royal Free 1955@rfh1955.bsky.social · last yr.The Daily Telegraph, UK. 30th March 1994. "Dr. Rodney Silver" is, allegedly, Anthony Daniels. en.wikipedia.org/wiki/Theodor... #cfsme #myalgicencephalomyelitis #myalgice #mecfs
The Hoddesdon and Broxbourne Mercury, England. 1st March 1996. #mecfs #cfsme #myalgicencephalomyelitis #myalgice
Thirty years ago today. The Guardian, UK. 1st March 1995. #cfsme #mecfs #myalgice #myalgicencephalomyelitis
Pension letter today, short because there aren't many numbers and they are small. I retired on 9-Feb-2026 age 59 (due to disability, the #LongCovid life-upside-down mess). Very strange feeling. Cash runs out in 7 years, state pension age in 2033, but hey ho for now. Housebound & fractured pelvis.
www.nature.com/articles/s41...
Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome - Nature Communications
Post-infectious myalgic encephalomyelitis/chronic fatigue syndrome (PI-ME/CFS) is a disabling disorder, yet the clinical phenotype is poorly defined and the pathophysiology unknown. Here, the authors ...
nature.com
Do you have a link to the published paper? Is it a new analysis of the original NIH study describing PEM as "effort avoidance"? @davetuller1.bsky.social are you aware?
International Long COVID Awareness im März International Long COVID Awareness Day am 15. März 2026 Thema 2026: Impacts of COVID & Long Covid on the cardiovascular system www.longcovidawareness.life #LongCOVID #COVID #COVID19
From Chronic Fatigue to 90 Minutes of Daily Yoga. indonesiakini.id/2026/02/28/f...
From Chronic Fatigue to 90 Minutes of Daily Yoga - indonesiakini
From Debilitation to Deep Healing: A Journey Through Chronic Fatigue and the Power of Movement For over two decades, Caroline Ings-Chambers has dedicated her career to guiding others through the trans...
indonesiakini.id
New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment. ekhbary.com/news/new-stu...
New Study Uncovers "Exhausted" Immune System in ME/CFS, Offering Hope for Diagnostics and Treatment
A groundbreaking study from the National Institutes of Health (NIH) has revealed critical insights into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/C
ekhbary.com
"…pharmaceutical firms want to await a concrete biomarker that could serve as a clinical trial end point before putting any resources toward long COVID studies, but it’s not possible to find such a metric without more studies." They need proof. We need hope. #Medsky #LongCOVID
Long COVID studies stymied by pharma’s lack of cooperation
Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them
cen.acs.org
Our paper on Symptom Patterns, Recovery, and Impact of #LongCovid is now published. This is follow up data over 1 yr. Note how the pattern of symptoms changes over time with most starting out as fluctuating pattern and more ending up with a constant symptom pattern. academic.oup.com/ofid/article...
The Times, Shreveport, US. 28th February 2024. #longcovid #cfsme #myalgicencephalomyelitis #myalgice
The Chronicle, Crewe, England. 28th February 1996. #cfsme #mecfs #myalgicencephalomyelitis #myalgice
The Daily Post, Wales. 28th February 1995 - thirty years ago today. About #gulfwarsyndrome #gws but mentions #cfsme #myalgicencephalomyelitis #myalgice #mecfs
