Post-Viral ME/CFS with POTS in a Pediatric Patient: A Case Report danilobuonsenso.substack.com/p/post-viral...
Post-Viral ME/CFS with POTS in a Pediatric Patient: A Case Report
Abstract
danilobuonsenso.substack.com
Danilo Buonsenso
@buonsenso.bsky.social
Pediatric Infectious Disease doctor. Fighting to care for children with Long Covid & ME/CFS. My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
14yro with Long Covid treated with ivabradine and anticoagulation danilobuonsenso.substack.com/p/14yro-with...
14yro with Long Covid treated with ivabradine and anticoagulation
BEFORE YOU READ:
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CASE REPORT - A neuroscientist with Long Covid on low dose rapamycine danilobuonsenso.substack.com/p/case-repor...
CASE REPORT - A neuroscientist with Long Covid on low dose rapamycine
Welcome to a new real life case report.
danilobuonsenso.substack.com
A Pathogenic Monocyte Signature in Long COVID: What It Means for Buonsenso and the Kids danilobuonsenso.substack.com/p/a-pathogen...
A Pathogenic Monocyte Signature in Long COVID: What It Means for Buonsenso and the Kids
Long COVID has puzzled scientists, clinicians, and families alike for years — especially when children and adolescents continue to struggle with fatigue, shortness of breath, and other persistent symp...
danilobuonsenso.substack.com
"These findings reinforce an urgent message that children and adolescents can develop #LongCovid not only after an initial infection, but also after reinfection. The public health implications are substantial." @buonsenso.bsky.social www.thelancet.com/journals/lan... #LongCovidKids #Children
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex, multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact the daily life of those...
thelancet.com
Long COVID is here to stay—even in children 😢 @buonsenso.bsky.social These findings reinforce an urgent message that children and adolescents can develop long COVID not only after an initial infection, but also after reinfection. The public health implications are substantial. Before this study,
Long COVID is here to stay—even in children
Post-acute sequelae of SARS-CoV-2 infection (PASC, also known as long COVID) are complex, multisystem, long-lasting complications of SARS-CoV-2 infection that profoundly impact the daily life of those...
thelancet.com
Plasmapheresis, apheresis, and why people with Long Covid or ME/CFS talk about them danilobuonsenso.substack.com/p/plasmapher...
Plasmapheresis, apheresis, and why people with Long Covid or ME/CFS talk about them
as we are implementing a protocol for plasmapheresis in patients with Long Covid and ME/CFS, I wanted to summarize with you what it is and why we are thinking about that.
danilobuonsenso.substack.com
Long COVID: When the Fire Inside Never Turns Off — A Personal Reflection danilobuonsenso.substack.com/p/long-covid...
Long COVID: When the Fire Inside Never Turns Off — A Personal Reflection
Every parent wants their child to be healthy and whole.
danilobuonsenso.substack.com
after years of illness and gaslighting, this kid with #LongCovid is leaving again❤️ grateful for this mum’s email. Why IVIG and immunemodulation work most time is written since two years in my book tinyurl.com/4tsvhwat and blog substack.com/@mecfslongco...
Energy Metabolism and Immune Signatures in ME/CFS: What the Latest Paper Means for Kids and Families danilobuonsenso.substack.com/p/abnormal-e...
Abnormal Energy Metabolism and Immune Signatures in ME/CFS: What the Latest Paper Means for Kids and Families
Chronic fatigue syndrome (ME/CFS) remains one of the most puzzling, debilitating disorders in medicine — especially when it affects children and adolescents.
danilobuonsenso.substack.com
Long COVID, Immune Dysregulation & What It Means for Kids — New Insights and Future Therapies danilobuonsenso.substack.com/p/long-covid...
Long COVID, Immune Dysregulation & What It Means for Kids — New Insights and Future Therapies
Long COVID isn’t just a collection of lingering symptoms — it may reflect deep changes in the immune system that can persist for years.
danilobuonsenso.substack.com
When I started the #longcovid in kids journey we were literally alone. Now, we arrived to speak about long covid in children in @TheLancetInfDis Podcast!❤️ MY LONG COVID JOURNEY, WHAT I DO AND WHY IN MY BOOK: tinyurl.com/4tsvhwat 🔊 Spotify: bit.ly/4p7jnpy
You Are Not Alone – Let’s Connect Families, Young People and Communities Living with Long Covid and ME/CFS danilobuonsenso.substack.com/p/you-are-no...
You Are Not Alone – Let’s Connect Families, Young People and Communities Living with Long Covid and ME/CFS
When a child, teenager, or young adult develops Long Covid or ME/CFS, the world can suddenly become very small.
danilobuonsenso.substack.com
a new major study on Nature immunology further reinforces the overwhelming evidence of chronic immune activation in #longcovid, perfectly justifying off label use of immune modulators (eg IVIG) in the most severe cases that cannot access trials. Saying since a few years in my book lnkd.in/dPHkH3re
This link will take you to a page that’s not on LinkedIn
lnkd.in
So the Pediatric Infectious Diseases games are ready to go in 2d! Impressive amount of different european countries participating this year!
When Patients Ask for a Cure: A Doctor’s Honest Reflection on Long Covid and ME/CFS danilobuonsenso.substack.com/p/when-patie...
When Patients Ask for a Cure: A Doctor’s Honest Reflection on Long Covid and ME/CFS
In the past months, my inbox (and whatsapp!) has filled with messages from patients and families living with Long Covid or ME/CFS.
danilobuonsenso.substack.com
Oxaloacetate, long COVID and ME/CFS: what the new trial shows — and a pragmatic (non-prescriptive) scheme for clinicians danilobuonsenso.substack.com/p/oxaloaceta...
Oxaloacetate, long COVID and ME/CFS: what the new trial shows — and a pragmatic (non-prescriptive) scheme for clinicians
Fatigue and cognitive fog remain among the most disabling complaints for people with long COVID and with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
danilobuonsenso.substack.com
with the only and one!!
Danielle Beckman@daniellebeckman.bsky.social · 11mo agoFinally met @buonsenso.bsky.social in person and got an update from one of the best researchers in #LongCovidKids. Kids with hypometabolism in the orbitofrontal cortex, the same region of the brain where I see the virus in the🔬. It is not even fully developed until we reach 25 years old..
Low-Dose Rapamycin for ME/CFS and Long COVID: New Clinical Data, Promising Hints, and Ongoing Caution danilobuonsenso.substack.com/p/low-dose-r...
Low-Dose Rapamycin for ME/CFS and Long COVID: New Clinical Data, Promising Hints, and Ongoing Caution
Over the past months, I have written several posts exploring the potential role of low-dose rapamycin in Long COVID and ME/CFS (Part 1, Part 2, Part 3).
danilobuonsenso.substack.com
What’s new in the Long COVID / ME/CFS endothelial story — and what that means for treatment danilobuonsenso.substack.com/p/whats-new-...
What’s new in the Long COVID / ME/CFS endothelial story — and what that means for treatment
You may remember that in earlier posts we discussed how both Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) appear to share a key feature: endothelial inflammation/dysfunct...
danilobuonsenso.substack.com
you’ll read several success papers about #nirsevimab and #RSV but to make it a successful and long term sustainable interventions you need to read also of out chorus provocative voices, like this one ! rdcu.be/ePXTa
Long COVID and the AMPA Pathway: New Clues from Brain Imaging danilobuonsenso.substack.com/p/long-covid...
Long COVID and the AMPA Pathway: New Clues from Brain Imaging
Over the past few years, Long COVID has become one of the most puzzling and impactful conditions in post-viral medicine — especially for the many children and adults who continue to experience “brain ...
danilobuonsenso.substack.com
new on covid impact on kids www.tandfonline.com/eprint/ZY2VI...
The second-order effects that the COVID-19 pandemic has had on pediatric populations
SARS-CoV-2 can have long-term health consequences that persist beyond acute infection. While this is evident in adults and the elderly, the impact on children and adolescents remains under recogniz...
tandfonline.com
The latest from @buonsenso.bsky.social rings so true: Yet when patients and families ask for treatments, the answer is almost always: “There are no approved options.” open.substack.com/pub/danilobu... #PedSky #LongCovidKids #pwLC #pwME
When There Are No Treatments: Why Off-Label Drugs Should Be on the Table for Long Covid and ME/CFS
What Does “Off-Label” Really Mean?
open.substack.com
glad our team contributed to another very important study on iGAS. PEGASUS network www.sciencedirect.com/science/arti...
Paediatric invasive group A streptococcal infections and associations with viral infections in 15 European countries after lifting non-pharmaceutical interventions against SARS-CoV-2: an interrupted t...
After lifting non-pharmaceutical interventions (NPIs) against the transmission of SARS-CoV-2, various countries experienced an increase in invasive Gr…
sciencedirect.com
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients danilobuonsenso.substack.com/p/we-cant-do...
“We Can’t Do This Alone”: A Doctor’s Plea for Support in Caring for Long COVID and ME/CFS Patients
As a pediatrician and infectious disease specialist, my days are full.
danilobuonsenso.substack.com
again viruses and dementia. those of you negating this slow science progression and patients prevention options. all started w #LongCovid revolution. years ago I said LC is clearly giving this indication and now science is confirming all in my book: tinyurl.com/4tsvhwat
Working (and Keeping Your Salary) When Long COVID or ME/CFS Makes Full-Time Work Impossible danilobuonsenso.substack.com/p/working-an...
Working (and Keeping Your Salary) When Long COVID or ME/CFS Makes Full-Time Work Impossible
1.
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I have a strongest feeling and growing evidence that lung ultrasound will play a growing role not only in diagnosing pneumonia but also in understanding which cases need antibiotics rdcu.be/eJ1tQ
Point-of-care lung ultrasound to differentiate bacterial and viral lower respiratory tract infections in pediatric age: a multicenter prospective observational study
Scientific Reports - Point-of-care lung ultrasound to differentiate bacterial and viral lower respiratory tract infections in pediatric age: a multicenter prospective observational study
rdcu.be